I have now had a successfull A V node junction ablation which has mad a huge positive difference to my life but I am still getting palpotations. I seemed to be withoit this part of the complaint for the first 2 weeks after the operation of course im hoping that it will go away again. I saw .my pacemaker technician today who says all is working well but cant help with the palpitations and thumps which i find to be the worst feature of afib overall Im wondering if so many have been hit with this lousy thing if they miight have found a way through it
Thanks so much everyone. Colin.
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That’s because although your pulse is now steady, your AF will continue and you may still feel the palpitations, nothing can be done to stop them but I found with the pacemaker that the intensity lessened.
That should have been explained to you - P&A may not stop your AF.
Big thumps are most often PVCs, Premature Ventricular Contractions. Often caused by sensitive areas in the ventricles firing when they shouldn't, ans very often a sign that the heart is more generally out of sorts than pure AF. I have found supplementing magnesium has helped reduce my PVCs in the past. Worth checking rhat tour potassium and calcium are ok, too (blood tests). Also, anti-arrhythmic drugs can help - Flecainide is currently helping me limit the PVCs I have, though Flecainide is not suitable for some.
I would say it's worth talking to your cardiologist
Thanks Cliff. Sensitivity could be it. Its onlya few weeks since my AV node was destroyed with heat so its no wonder the thumps etc have come on Ive just this moment taken a magnessium tablet. I think i will take this aproach and see what this can do at least. I will also start working on some fitness. I will be back to see my GP soon as she has been on holiday and i havent seen her for some weeks on holiday
And be fastidious about being well hydrated. If I wanted to deliberately induce palpitations/ectopics, I'd drink no water for a day.
Personally I don't drink 2 litres per day as per the recommendation, but I do aim for three 500ml bottles. And that's plain water, I don't count the cups of coffee I enjoy or anything else - experience has shown it's the water that does the job for me.
Of course, in certain conditions, such as doing physical work on a hot day, I need to up that intake.
Like so many of us, my arrythmia is closely linked with gastric problems which can be irritated by gulping water into my stomach, so I find regular sipping to be the best method.
Ive thought about that to Steve but now i realise that the av node not being there then thr spark must be able to get through from somewhere else because my pacemaker is doing its job very smoothly and evenly from how i feel it ad it is attatched to the heart muscle directly i guess.. The thumps must be caused by rogue ectopic beats getting through from wherever its produced allthough not as efficiently thankfully as the Biotronik pacemsker Im hoping that as things settle down the thumps will become less intense etc.. meanwhile ive added magnesium tablets to my arsenal. I have no other tabs eccept an anticagulant now. Yes i do not feel afib anymore a d that is wonderful along with no drug side effects. I think i may have virtually won the battle. Time will tell. As always all the best and let me know your ongoing thougjts where those ectopivs mihht be coming from. I think the experts know but we are all different. Colin, NZ
I have no idea but have managed to read some studies and, it seems, so much depends on the kind of pacing you've been given when they implanted the pacemaker. My bet is it will all settle nicely, but I suspect an ECG would be helpful if it could catch these ectopic beats happening so the doctor knows their origin.
Thanks Steve. Good thinking. There are also some good home ecg out there that are 24 hrs and more that i could get. I dont know how well they work with a pacemaker though.
They are said to be unreliable in knowing what is what with a PM but the actual ECG trace will be fine (although only single lead). I have the Wellue 24-hour device which works well but does suffer with body movement.
I know what you mean Steve unfortunately.! Missed beats and the thumps cause me more grief and anxiety than any episode of my AFIB does for some reason. 😡
When I have AF the feelings are generally constant but the unpredictability of the ectopic beats and their “thump” feeling makes them hard to ignore and somehow makes me, although not breathless, feeling the need to take a deeper breath.
I am 4 1/2 months post PF ablation for AFIB, and bedeviled with PVCs since then (AFIB at bay, so far). After cycling through many beta blockers, CCBs, and antiarrythmics it seems best of the bunch for me is a combo of Acebutolol and Flecainide. Still getting some thumps and hops, but recently much reduced and can sleep through the night. We're all different, but be hopeful there will be something for you too.
I would be surprised if you find only a few people that haven’t had this. I think I recently mentioned to you even with the pacemaker you are going to feel those but the difference is they are no longer your heart because your pacemaker is in charge.
on top of that with you, you have a long way to go with healing your doctor and others should tell you this. Maybe you’ll be lucky and it won’t take as long, but it was almost a year that I could honestly tell you I felt normal. Even an ablation takes a couple of months. If you think about what they did to your heart and the trauma that it took you should understand why it takes so long to heal. Just like with other surgeries, it depends on how many layers and other things they have to go through. If you ever had abdominal, you would know how long it takes because of the layers of skin, nerves, etc. not like we are an envelope and you can just glue it Everything has to knit back together so to speak. The area where your leads are really need to heal around the base of the leads to keep them intact. It is amazing with the body does. Years ago they dropped a needle inside of my during surgery. They did not discover until she was closed. To go back in and search for it would’ve been more damaging than to leave it. It turns out that the body will actually grow and cover it up and closed as if it were in a little box normally it should not cause any harm. That’s just how amazing the body can be.
I suggested to you the other day mind and body working together some of the best medicine you can have the more you stress the will feel. You need patience. It takes time. I will tell you even in the I did not find myself in a lot of pain. I would be surprised if you say it’s painful more than it is aggravating as long as you realize it’s not harming you. I think a lot of of it is we are afraid we don’t know what’s going on and we can imagine all kinds of bad things that aren’t really happening. Positivity is what you need. It is what it is. There’s nothing you can do about it if it does get painful or extremely scary contact your doctor we are all different out here we all have our own thoughts on it and none of us can help you. We can just share what we have been through to let you know it normal and it just takes time.
Its about 20 days since i had my AV node ablated and today is the most tired i have ever felt. I just keep falling asleep in the early afternoon onwards. I have not had any pain at allThose of you out there who have experienced AV node ablation can you give me an idea of how this may last and what i could possibly do to get through it . I know i just have to jave patience etc. But i have never been a tired person. Thankd to all who have given me imfo and ecouragement, Colin.
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