Heart rate after pace and ablate - Atrial Fibrillati...

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Heart rate after pace and ablate

Alphakiwi profile image
13 Replies

Ive had a pacemaker and av node ablation completed 12 days ago. Im still getting the heart thumps but i dont feel the afib at all. I havent tried excersise yet eccept walkng to town. I dont feel strong at all yet. My resting hr is set at 81 and while walking it stayed at 89 but just before arriving home i notticed it was 108.I eould like the thimps to stop because they give me memory problems. On monday i have visit to the pacer technician. Any thougjts as i feel a bit nackered.

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Alphakiwi profile image
Alphakiwi
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13 Replies
Pintpool profile image
Pintpool

I had this same procedure on Oct. 21 2024. You seem to be coming along well. I've had 6 ablations over the years and was in the hospital 17 times in 2024. I'm still not well, but better then before, it justs takes time I was told. Hang in there, and enjoy life.

Alphakiwi profile image
Alphakiwi in reply toPintpool

Thanks for replying Pintpool. Thats lousy having 24 times inside lol but seriously maybe 2025 is going to be your year. I actually had the pacemaker insertion done three and a half years ago with the intension of having the node ablated after a six week wait. Unfortunately I was handed over to the care of another cardioligist who had been newly put in charge of Northland cardiology who was anti ablation. This caused me to put on further trials of drugs even ones i had been on. It was miserable. Im so plrased it has bèn completed by the Dream team in Auckland New Zealand. I remember when i had the pacemaker done i had go to the Whangarei hospital and have the pacer adjusted as i was getting large thumps in heart like now. I have been told to go there this coming tuesday to be adjusted again. What settings are you on now and what type of pacer did you get. All tje best, Colin, NZ.

bassets profile image
bassets

Get a lot of R&R :)

AVNA profile image
AVNA

It took me three months to get the right heart rate after a few appointments with the technician to get the PM responding accordingly and then I started to feel much better.

Ppiman profile image
Ppiman

So far as I know, we can't feel the atrium itself, but can feel the valves shutting and, in your case, this is likely caused by some natural or PM related process and of no concern. I would, though, ask your GP or arrhythmia nurse, maybe?

Steve

DawnTX profile image
DawnTX

Valentine’s Day was the second anniversary or I call it the birthday of my pacemaker and ablation. You have a long way to go. I hate to tell you and even with the pacemaker you will still feel the thumps of a fib or flutter or both. If they didn’t tell you, you will always feel them when they act up. Your pacemaker has taken control so that your heart is beating like it should nothing stops a fib. There is no cure. That being said it doesn’t mean you’ll have it all the time, it still does what it wants to do, but you’re not going to get damage anymore. I also have heart failure and it has actually reversed ejection rate from 40 to 70 since the pacemaker and that was in the first year. I can’t believe it’s been two years. It seems like yesterday we were talking about it being done. I had no option and I have no regrets.

I also hate to tell you, but 12 days is just the beginning of healing. It took me almost a year. A simple ablation can be several months or longer. Think of the trauma your heart has just been through as well as adapting to something new in there. Just the healing leads are takes which is why if they didn’t warn you be very careful what you do with your arms, especially the left one you don’t want to be pulling them out. They are not healed just think about even a cut finger how long it can take to stop hurting and heal and you are talking about your poor little heart that has been through so much

I don’t understand why doctors do not tell people these things they don’t seem to tell them there is no cure they use the word successful that’s not the right word and they don’t know that fast. We may never know if something is successful because a fib and flutter come and go when they want. I hate to tell you, but ablations are just Band-Aids and you hope they cover the right spot. Also, you can have more than one spot and usually will each ablation is for a different spot and ablation doesn’t fail it either didn’t take at all or you have a new spot. If they were to look at it, it’s probably still holding strong, which means it was the right area. Don’t blame your doctor. It’s like a needle in a haystack or being stuck by an extremely thin pin. I had a catheterization done through my wrist. I could not even see the spot he used so think of it like that.

in the meantime, stay out of your head about things like numbers they are going to fluctuate always the same as people who don’t have a heart problem. It depends on what you are doing, although we are probably more sensitive.

my pacemaker is said it’s 60 it started off being set at 80 and each month. It was set back 10. 60 is the area when I wake up before I do anything. It’s not unusual for me to stay around 80 unless I’m laying down. I have been sick for a while with some type of virus or whatever it was not unusual to hit 99 that was at the doctor. don’t freak out about it unless you have other symptoms with it or if it continues I hope you read your fact sheet. all the things you should not do I hope on it they tell you to be patient and how long it can really take don’t overdo anything meanwhile, look for your triggers. It will give you something to do if you start feeling it more. Think about what you’ve done just before it hit did you have a big meal or a heavy doesn’t mean be big something like fried food can be too cold ice cream does it to me I swear, the first spoonful I can feel where it hits like a cold shock. Even drinking too much of anything not just alcohol especially carbonated I think. But even water will bloat you and bother your diaphragm, the area that triggers a your up to you to figure it out. These are some. I know several people have found are a big one and harder to control. If you find that to be a big problem, you need to speak to your GP. My EP spoke to my GP because I didn’t believe what it was. I had meds to take as needed, but he said I didn’t realize how much I need why he spoke to my other doctor and sure enough a world of difference when. Also remember, it’s not always your heart. If you have any gastric issues, including spasms, it feels very much like a fib. The poor gets blamed for everything even if you had it before you had a fib. The body is complicated. That’s why we have an EP for the electrical Cardiologist for the plumbing part of our and the GP if it’s something else. You are going to need to learn, patience and with it I think once you’re healed, you will find when you do get a fib or It’s not gonna be as bad but again we are all different. I find it annoying and aggravating tiring if it last for a while, I just had a three week bout because I was sick I think my whole body was complaining it wasn’t really painful. It was there and I wanted it to go away. One of the first things my EP told me to do was get rid of my oximeter because of all the fluctuations once a month, my device would be checked by my tech who has been with me since the OR when it was all put in. now it is every quarter and they also do from the clinic. I have coming up March 3. I only know because they told me the date it does not affect me at all. It’s done remotely. I have an app. I don’t know if you do it monitors 24 seven my doctor would know before I do if there is something wrong with my pacemaker

I wish you the best of luck just know my doctor said there’s nothing I can’t do that. Anyone without heart problems can do and this includes with my heart failure that has improved. I left the hospital in a wheelchair like I arrived. I had not been able to walk for over six months before that. It was difficult because I also had and have tachycardia. I was in pain sitting still if I tried to stand up I had tears from the pain if I tried to scuffle to the bathroom, I would almost black out because my circulation was so bad. Now, as I mentioned, leaving the hospital, the wheelchair was protocol. I was able to stand up and climb into my car. Something I never thought I would do again. I was able to take my dog out every time I snap his leash on. I am so grateful.lol even standing washing dishes is exciting now I never thought I would feel normal most of the time I do

you have much to look forward to ask the others on here, including Bob D who has a pacemaker. Just do what you need to do, including taking meds. FYI, I will be on Xarelto the rest of my life it’s not a big deal. I’m thankful for it. It’s definitely better than having a stroke. They don’t have all the if they did, we would have I was the first one to have the pacemaker. I have the whole system when there is a question not only do I have my doctor EP and the tech but they also bring an engineer in on the phone. They tease me and call me unique I’m thinking of having my name changed lol

positivity, mind and body go a long way

I wish you the best. I wish everyone could feel as I do right now even though it’s not perfect.

Alphakiwi profile image
Alphakiwi in reply toDawnTX

Hi Dawn. I didnt have an AF ablation. I had an AV node ablation. That was because my left Atrium has become to large probably due to my athletic life

DawnTX profile image
DawnTX in reply toAlphakiwi

I don’t claim to know everything what I know of the is it pretty much is the natural peacemaker and we have ablated because it is not working right and that is what is throwing off the our. Once closed off the pacemaker is the one doing the work without interference. Perhaps it’s used for other things as well. You are the one that was told by your doctor so I am not going to go against it. I am not a doctor myself.

DawnTX profile image
DawnTX in reply toDawnTX

PS I just now saw you already have a pacemaker. Did you have the node done? Quite a while after you got the pacemaker? Most of us get them hand and hand. I had mine two weeks after being fitted for the pacemaker they do that so the pacemaker doesn’t get interfered with.

Alphakiwi profile image
Alphakiwi in reply toDawnTX

Hi Dawn im off to the pm clinic today. Ive written down a lot of questions for the technician as im having lots of palpitationsln the centre of my heart which is not nice .If it wasnt for these big bangs and conseqent coughing and nasty burning feeling in centre of chest,i then suddenly feel cold and shaky for a short while. It might be because i did a bit much on sunday walking up the hill over rail tunnel. Better slow down. If it wasnt for these thumps i could almost declare myself 100% better. Heres hoping. Colin

DawnTX profile image
DawnTX in reply toAlphakiwi

it does sound as if you’ve been pushing yourself much too much for many of us at least within an ablation. Three months is good if you are healed at that point, and I have a feeling you’ve been doing things pushing yourself much earlier.

you cough there’s a good possibility. You have some type of virus like I which will trigger a fib. I felt awful overall because I wasn’t getting sleep because I was coughing nonstop even in my sleep. Hopefully it will finally get an answer I’m glad to hear you mom make the statement about being 100% better just be good to yourself so you can stay that way. I had that bug and I had flutter for about three weeks and I have no doubt that they were tied together. I be surprised when it all comes together. Just remember positive my EP reminded me is may react to whatever else is going on. Sounds like you and I when it comes to that. This will be our week probably the rest of our lives. The poor though gets blamed for everything.

I was also having gastric issues as if I could not swallow my food or I would get heartburn again I would get the ache in my heart, which is how it presents itself to just a dull ache and flutter.

please let me know how you make out at your clinic. They have a couple of easy tests they can do when is an ultrasound to see if you have anything like pericarditis. My last visit to my cardiologist I found out they can actually do a blood test to see if you had a heart attack. There are ones that are small enough that you can write off to yourself being something else it gets so confusing, I know.

when I first got my pacemaker, I would see my doctor once a month with the tech. readjusted each month starting off at 80 finally leaving it at 60 that is the one thing I still have some will see when I go to end of the month but by the time I get to him and the check, my heart rate is about 85 and he does not like that I told him I hate driving here. I find it stressful maybe that’s what is doing it to me on my way to see him.

I think you and I are pretty lucky compared to many It just takes time and patience and remember having the pacemaker keeps the heart from further damage so even though we are feeling those thumps, they are not hurting us. I don’t recall if you also haveF as I do or if I told you how mine has improved since getting the PM. Yes I am grateful for what I have no regrets.

feel better and keep in touch

Jajarunner profile image
Jajarunner

Taken me weeks to recover from some of my cardioversions and months to recover from each of my cardiac ablations!! Not surprised you are knackered!! You are doing amazingly. (Ps I'm pretty fit and 20 years younger!!) 🤣🤣

Alphakiwi profile image
Alphakiwi in reply toJajarunner

Thanks for the confidence everyone. I go to the Pacemaker clinic on the coming Tuesday.I believe the technician will adjust my heart rate. When my pacemaker was implanted three years ago i was getting many huge thumps so i called the hospital and they call me into the clinic where they adjusted the speed and and also and sensing

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