Are there any AF’s out there who also have the blood disorder called Von Willebrands disease. My husband has both but so far is reluctant to take either Warfarin or Apixaban as is afraid of a serious bleed.
I have persuaded him to have a discussion with his GP about this.
If anyone out there is such a person I would love to hear from them
Jean
not von Willebrand’s but I have an unclassified bleeding disorder and am under the local Haemophilia Centre; I assume your husband is too? I recommend speaking to them as well as to your GP. Because of my condition I am not allowed thinners so have instead been given a procedure called left atrial appendage occlusion - which blocks off the section of the heart where clots are most likely to form, and reduces stroke risk by 80%. I have just heard that the CT angiogram to check the situation 6 weeks on from the procedure shows the blocking off isn’t quite complete and I think this means continuing drugs for some more weeks. Nothing is ever simple!
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