PAF IDEAS: I've been on PAF for 5 yrs... - Atrial Fibrillati...

Atrial Fibrillation Support

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PAF IDEAS

greatness profile image
10 Replies

I've been on PAF for 5 yrs and drink 24 small bottles of beer- Corona Extra per wk. I TAKE METOPROLOL which apparently reduces my heart rate and I take Aratax.I get pains etc....

You don't die because you got AF.

All i hear is fear and fear and fear about AF.

What do you members say NOW!!!!

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greatness
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10 Replies
BenHall1 profile image
BenHall1

Firstly ! which one is your PAF ?

Paroxysmal, Persistent or Permanent ? If you could clarify it might help peep when they answer.

Buffafly profile image
Buffafly in reply toBenHall1

PAF is the abbreviation for paroxysmal AF

BenHall1 profile image
BenHall1 in reply toBuffafly

Hiya Buff ............ so what are theabbreviations for the other two I listed ? I always think it best not to use abbreviations anyway where practical, then nobody is in any doubt. Sadly, sometimes these days one types into a box and there is a character warning saying you are running out of characters, like 12 characters left. Then one is tempted to use abbreviations ............ PAF !

Buffafly profile image
Buffafly in reply toBenHall1

😂 or creatively rephrase! I don’t thing they have any official abbreviations but in any case people do sometimes confuse them all.

Crimson2020 profile image
Crimson2020 in reply toBenHall1

BenHall1 , I have just looked on the list of abbreviations provided by this site (The Atrial Fibrillation Association). I have included a link below.

PAF is only shown for Paroxysmal Atrial Fibrillation.

That said, I agree that the use of acronyms and abbreviations is often very frustrating.

healthunlocked.com/afassoci...

kitenski profile image
kitenski

Not sure what your question is?

jeanjeannie50 profile image
jeanjeannie50

I think many forum members who have had AF for many years now know that it's not likely to kill them. I was diagnosed 20 years ago, but unwittingly now realise that I had it long before then. I thought everyone's heart behaved the way mine did and banged in their chest when walking up hills. After my first ablation I never had that banging again.

AF can present in many different forms from mild to severe and for each of us we sometimes think that what we experience is as bad as it gets.

Can I ask you please have you ever poured with sweat and had to fight to keep conscious when having an AF attack? That's as bad as I've ever had it but I know people who have attacks far worse and actually drift in and out of consciousness for a period of time.

When we have our first bad AF attack it is frightening as we know nothing about the condition. People come onto this forum to find out more and that's where we fellow members can help.

Please let us know what AF attacks are like for you.

Jean

greatness profile image
greatness in reply tojeanjeannie50

I SUFFER PAIN EVERY DAY SUCH AS TIREDNESS, LACK OF GOOD SLEEP, HEART RACING, FEELING HOT, DIZZY SPELLS AND ANXIETY. I HAVE NEVER FAINTED- I'VE LEARN'T TO COPE.I INITIALLY HAD LEGS THAT COULDN'T SUPPORT ME- AS BIG AS ELEPHANT'S LEGS. TWO OF THE MEDICAL PERSONNEL AT EMERGENCY LAUGHED AT ME SAYING THAT I SHOULD BE DEAD.

I HAD 4 CARDIOVERSIONS-ALL FAILED WITHIN 1 WK. I TOLD MY HEART SPECIALIST- NO MORE PROCEDURES.

HE SAID GOOD MAN AND TAKE THESE MEDICINES AND YOU WILL BE RIGHT.

HE SAID TRY NOT TO DRINK ALCOHOL ON 2 CONSECTIVE DATES.

I TAKE XERALTO TO ENSURE BLOOD CLOTS DON'T FORM.

I NEVER TELL ANYONE THAT I HAVE PERMANENT ATRIAL FIBRILATION AND I LIVE MY LIFE TO THE FULLEST.

jeanjeannie50 profile image
jeanjeannie50 in reply togreatness

I'm sorry to hear how you suffer everyday, AF is a horrible condition isn't it?

I've had 3 ablations, many cardioversions and am now in constant AF and left to just 'get on with it' but it's far better now with my heart rate flitting between 60-90bpm than the PAF attacks.

I sometimes have to remind myself that there are far worse things we could have. I guess someone with cancer would change ailments with us. I'm the same as you I never tell people I have AF unless there's a reason that I really have to.

When I was young and worked in a pharmacy I wondered why old people always talked about their ailments. To be honest I thought they were hypochondriacs. Now I'm old myself I realise just what it's like not to feel well. Like you I do my best to live life to the full.

Please don't mind me saying this but in the world of forums etc., capital letters are seen as shouting and I'm sure you don't want to shout at me.

Wishing you well.

Jean

greatness profile image
greatness in reply tojeanjeannie50

Good response- I'll listen- cheers

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