PAF or Full AF

[mjm1971]

Hi All

So I have a question

I’m on 200mg of Flec and 5mg Bisoporol per day .

I’m literally in AF 50% of the time .

One day in AF one day out of Af .

Surely the fact I’m on those drugs and still in AF 50% of the time and so frequent must mean I’m no longer PAF

To be honest surely when your at the stage of needing drugs to stay out you can’t be PAF ?

What are the actual credentials for not being considered in PAF ?

Thanks

Matt

[Bertiedette]

Well I am called irregularly irregular by my Consultant. I am never in Sinus rythmn.Been this way for two years. I have never been cardioverted I don’t know why.. I have never asked the question off him ..maybe I will….

[Jalia in reply to Bertiedette]

Maybe your rate is under control. My husband has been in AF permanently fir about 3 years with rate around the 70s/80s. I only discovered his AF by chance after he had been on Naproxen, an NSAID, for a few days and he asked me to check his BP as he felt a bit odd. I captured AF on my Kardia device and got in touch with his GP.

[JOY2THEWORLD49 in reply to Bertiedette]

HiI was left too.

Under DHB Heart Specialist changed from awful Metroprolol - breathless no energy

A little better from 186 to 156 day average.

By Bisoprolol. It is better for those with AF.

But not controlled day so priv Heart Specialist tried me on CCB Diltiazem.

MAGIC.

Some tweaking!

Now 120mfg Diltiazem a.m

2.5mg Bisoprolol at p.mBP 123/72. 93 hbpm. but night 48 average - no exertion.

Try something different!

Cheri. JOY

2 weeks ago Dr said NO IRREGULARITY! TESTS ARE BEING ARRANGED!!!!!!

[Jalia]

If you are going in and out of AF then it is considered to be paroxysmal A F. If you stay in AF continuously for over 7 days ( some say 14) and can only be returned to sinus rhythm by cardioversion, electrically or chemically, then this us classed as persistent AF.

Those who cannot be returned to NSR are deemed to be in permanent AF.

Whether or not you are being assisted by drugs makes no difference.

[Guitar335 in reply to Jalia]

Thank you for such a clear and concise explanation

[mjames1]

Like Jalia said. You have PAF. But being in afib 50 per cent of the time while on 200 flec and bisoprolol begs the question if you shouldn't try something else. Be itfa different dose, different meds, trigger mitigation, lifestyle, ablation. You might even feel better on rate control and allowing yourself to go into persistent afib with the understanding that if you remain in persistent too long your chance of a successful ablation will drop.

Jim

[mjm1971 in reply to mjames1]

Hi Mjames

I had a Cryoblation 10 weeks ago . Waiting for consultation in 3 weeks and I will certainly be discussing options for different meds .

Currently seriously looking into mini maize .

I’m not having a lifetime of meds and feeling spaced out etc . I’m only 51

[mjames1 in reply to mjm1971]

Wasn't aware you had a recent ablation. You're still within the blanking period meaning these episodes may only be temporary. Feel your frustration but certainly too early to draw any conclusions. Should your cryo eventually not work out, I would think the next step would be a relatively minor RF touch up ablation, as opposed to a significantly more invasive mini maze which seems best suited to those in long standing persistent afib which you do not have. Hopefully your doctor will help you sort things out.

Jim

[mjm1971 in reply to mjames1]

Hi Jim

Didn’t mean it too sound so abrupt . I’m ok with it just not going to accept that I have to be on drugs that make me feel spaced all the time etc and if needed in future I will have the mini maize etc .

Thanks

Matt

[mjames1 in reply to mjm1971]

Hi Matt,

I get it. I also hate how the drugs can make me feel. Until things get sorted out, you might ask your doc for a trial on diltiazem rather that bisoprolol. Some people, like myself, tolerate calcium channel blockers like diltiazem better than beta blockers like bisopolol. They basically serve the same purpose. Beta blockers always made me feel spaced out as well.

Jim

[Kennyb1968]

I think you will be in a perfectly normal post ablation period where afib episodes are to be expected. I have just started on 100mg of flecainide twice per day and have had 3 episodes in the last week that go in about 2 hours after taking my additional 100mg. A quick consultation with my consultant (appointment on Tuesday) has suggested that I may not be having afib but atrial flutter from the flecainide as my dose maybe too high. My consultant wants a chat before potentially knocking me down to 50mg twice a day. I'm awaiting an ablation. - fingers crossed it'd soon.

[JOY2THEWORLD49]

HiAre u in AF when you exert yourself only?

I am and they have called mine rapid persistent AF.

I am controlled since Dec 21 when private specialist put me on CCB Diltiazem!

But it was a case of balancing.

120 DltiAzem a.m

2.5 Bisoprolol at pm.

Seperation is the key.

Now 123/72. 93hbpm day

48hbpm night

Averages.

EXERTION = my AF.

cheri. JOY