Suddenly Develop AF: Six weeks ago I... - Atrial Fibrillati...

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Suddenly Develop AF

papillone profile image
29 Replies

Six weeks ago I was an healthy person , keen walker approx 10km/ day , had a urine retraction issue , prescribed Alfa blocker till the HoLAP procedure , two weeks ago went for pre op told had a high heart beat needs attention I had no previous issue with my heart fully fit bp115/75 beat 65. BMI 23.

I am in a shock why and how I develop the condition , only I can think of that alpha blocker Alfuzosin ,may be urine infection may caused it , My operation has been cancelled and put on hold

Start taking Bisoprolol and Apixaban.very worried as I needs the prostrate op . I do not know what it would to do my AF.

I have seen a cardiologist who did ECG , ECO confirm AF and may be some heart volvle leakage, put me on Bisoprolol 5mg , Apixaban 10mg and also will adding some more to bring my BP down ,I am planning to have cardioversion soon.

Currently my resting HR is 58-64 , but is goes up to 100 going on the stairs, BP ~ 130/80

Any advise on the success rate with cardiovertion and other treatments ,

Also I will need prostrate removed by HoLAP procedure, I do not know how it will impact on my AF .I am concern in carry on taking Alfuzosin after cardioversion as it may be the cause at first place targeting AF any advise, also any suggestion regarding the good consultants around Liverpool.

Sorry for a long story , my life has turn upside down and I had no sleep for numbers of days , please advise what I should do .

Thank you

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papillone profile image
papillone
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29 Replies
dangalf profile image
dangalf

Hi, it is a shock when you first get diagnosed. Certainly took me a while to get my head round it and was 'mourning' the life I thought I was going to have. However, it is also not as bad as you may think. Many people with afib will be able to continue doing the things they love l, although some things may need to modified etc. There's loads of good resources here so have a read. All the best.

papillone profile image
papillone in reply todangalf

Thank you dangalf for your encouraging words , life at the moment look dark especially about not know to which direction turn to get some hope. Now wait and see

Thanks again

papillone profile image
papillone in reply todangalf

Hi dangalf At the moment my HR goes up as soon as I do something , from 75 to100 , how long took you before you start doing normal activities , like walking , traveling etc.

dangalf profile image
dangalf in reply topapillone

Anything up to 100 is considered within normal range to my knowledge. I would try not to overly fixate on your heart rate, if you feel ok whilst walking etc then do it. If there is a lot of breathlessness, or sone chest pain or discomfort then you need to speak to your doctor.

My AF was paroxysmal. Whilst the symptoms are unsettling and I can get a high heart rate whilst in it I find carrying on as normal as possible is best for me. Walking, cycling etc have all been fine.

I would recommend getting a referral to an EP if you can and talk through everything as they will be best placed to advise you. If you can afford it then going private will get the appointment much quicker.

Please try not to to worry too much - anxiety can be a cause and factor in AF. You can drive yourself mad with worry about it but most people can live very normal lives with AF.

papillone profile image
papillone in reply todangalf

I can walk with HR 150 without any problem but the cardiologist I should keep HR below 100 , that I cannot do much , before Af four weeks ago I can wak 15 km without any problem . This is what depresses me

dangalf profile image
dangalf in reply topapillone

That seems quite conservative from the cardiologist but I do not know your circumstances so am sure there is a rationale behind it. But if you like walking and feel ok doing it then I personally would do it, especially if it is good for your mental well-being as well.

dangalf profile image
dangalf in reply todangalf

Would maybe just do easy walks though - avoid hills etc

papillone profile image
papillone in reply todangalf

I think cardiologist concern putting a strain on the heart chambers and valves, will be going for stress MRI , has anyone through this?

dangalf profile image
dangalf in reply topapillone

I haven't I'm afraid

Fannyphasbees profile image
Fannyphasbees

I had one incident of AF lasting 10 months and had cardio version in November. Best thing ever ! Go with a positive mind and believe it will work. Try not to stress if possible. 🐝

papillone profile image
papillone in reply toFannyphasbees

Thank you, I am very stressed and finding difficult to sleep and I have to say it making my condition worse .

Do not know how get out of it and take some sleeping aid . Does any one have this experience and would like to share if they taken sleep aid or other methods to overcome it

Please advise

Peony4575 profile image
Peony4575

Sorry that happened to you I was the same . My AF started when I took one have dose tablet of Celecoxib a prescription anti inflammatory two days running and went into AF the second night . It is a shock

The best is Professor Gupta at Liverpool heart and chest but his nhs waiting lists are very long on the NHS, he does work privately . There are other excellent EPs at LH&C

papillone profile image
papillone in reply toPeony4575

He has long waiting list . I am trying see other consultant there especially about the medications as our GPs are not any help and I am afraid have poor understanding and no time

Peony4575 profile image
Peony4575 in reply topapillone

Is it about ablation or medication you want to see someone ? If it’s medical management rather than ablation you are after Dr Joe Silas runs the rapid access AF clinic on The Wirral and also works privately at Spire Murrayfield . Really experienced and knows his onions as far as medical management goes. I am only after Prof Gupta for ablation. Agree, I wouldn’t be managed by a GP either

Peony4575 profile image
Peony4575 in reply topapillone

The other consultant my friend recommends at Liverpool Heart and Chest is Dr Luthor

papillone profile image
papillone in reply toPeony4575

I do not know about him but I will try to find out thanks

secondtry profile image
secondtry

Yes, it causes anxiety in most on diagnosis. However, stay positive by reading (here and elsewhere) about how people manage it and that resulting lifestyle changes can avoid the common chronic issues in later life.

I am still here 11 yrs after first diagnosis, have improved my lifestyle including spiritual growth and in the last 5 years achieved stuff I would never have even attempted previously.

Jasper18 profile image
Jasper18

Hi Papillone, your circumstance is so very sad and I think I can say for sure, the shock of initial diagnosis for all of us is one of the most difficult aspects of dealing with AF. It certainly was for me!

However, please try to remember, you are not alone in having the worry, anxiety and feelings you have now. Please know that these feelings are natural and a part of the process (you would not be human if you didn’t feel this way!). Please also know that almost all the people suffering from AF, including the good people of this forum, have felt the same, but importantly these feelings will lessen as you manage Afib and begin to live with it. And it can be managed and you can live with it!

I am writing to you particularly, as I recently met an old friend at a function. We’d not seen each other for over 30 years and, of course, after a short while we began to discuss ailments (we were both 60 and male!). I noticed he looked in pretty good shape (good hair!) almost unchanged I thought! It turned out we both suffered from Afib, but he also told me he’d had his prostate removed around a decade earlier. We both discussed our conditions at length that day, but what became clear is how we were both living pretty normal lives despite our ailments and that all our conditions were being “managed”.

I think I remember BobD on this forum using the term “Afib shouldn’t define you”. I think it was this, and it’s certainly true, please try to remember it, it shouldn’t and it wont! All the very best, you’ll get through it 👍

papillone profile image
papillone in reply toJasper18

Thank you for your encouragement . Let’s hope I manage to reduce my stress level, if I manage to get some sleep that may help . What is worse that my prostrate problem remains while I develop the Af . It is hard to, thank you for sharing your experience

Jasper18 profile image
Jasper18

Oh, and also, my understanding is that it can take a few weeks for Bisoprolol to “cap” your heart rate, so that it doesn’t race. I know others will likely have more (and better!) advice than this, but I remember it being the case for me.

RVine3 profile image
RVine3

You ask any success rate with cardioversion? It may be worth a try for you. I can only speak from my experience but after cardioversion I've been in Normal Sinus Rhythm two years after, so no AF symptoms for those two years - and my symptoms used to be severe - dizziness, nausea and ready to faint - so it has been definitely been worth it for me. I could go back into symptomatic AF tomorrow - no guarantee how long it will last - but for now there's some relief from it. Good luck.

ozziebob profile image
ozziebob

Looking online I also found Alfuzosin mentioned in relation to causing arrythmias, so you are correct to pursue this further with your cardiologist and other medical specialists.

As for dealing with the natural anxiety, worry and sleeplessness many new AF patients face, and which are ever-present in some, you will find many helpful suggestions from Forum members. In particular, there is a list of helpful tips compiled by one member which contains much wisdom. Of course I haven't been able to locate it at the moment, but I think it is by CDreamer , and now I've tagged her, perhaps she will post it in a reply.

Good luck. One step at a time. One deep breath at a time.

papillone profile image
papillone in reply toozziebob

Thank you I could do here some help as I am really stressed and can not sleep

papillone profile image
papillone in reply toozziebob

They problem I needs to take it not not have blockage till the operation and I am especially worry taking after my carioversion

Looks like I am stuck

Ppiman profile image
Ppiman

I was changed from doxasozin (very similar to yours) to tamsulosin as I was told it has less effect on the heart and blood pressure .

The procedure on your prostate causes much less blood loss which will be better, I guess, since you’ll have to stop the apixaban for a while. The procedure won’t remove the prostate but increase the size of the space in the middle of it, to allow urine to pass through more easily. It’s only performed on patients with a smaller prostate, I gather.

Steve

papillone profile image
papillone in reply toPpiman

My prostrate is in mid rage The issue I urine retention is high so keep getting infections On Alfuzosin , I do not know going for cardioversion with infection , will it work Any one have any thoughts on it

Ppiman profile image
Ppiman

I don't have retention, luckily, just night time frequency, which ruins my sleep patterns (I have insomnia, too...). Perhaps you could use self-catherers for a while before the ablation to empty the bladder and reduce the chance of infection?

I hope your procedure does the trick. Our unit sticks with traditional TURPS, I have been totem preferring that to laser.

Steve

papillone profile image
papillone in reply toPpiman

Hi Steve

Self catheter is an option but few weeks when I first tried lot of bleeding and danger of infection

Now I am on blood thinners I do not what will happen if I bleed, my urologist did suggest to me but worried about bleeding more as I am on Axpiban

I get up once night no problem there it is worries keep me awake

thanks

Ppiman profile image
Ppiman in reply topapillone

I’m on the same but, surprisingly, I don’t seem to bleed or bruise much differently from before.

All of these health issues knock confidence and sap energy. We could both do without them.

Steve

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