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I have looked at some of the advice given and as a newbie I’m still confused.com. I had my thyroid killed of because they told me I would he

Bromly1 profile image
10 Replies

hi I’m a newbie and I have looked at some of the posts but still feel confused. Just before covid I had my thyroid killed because I had hyperthyroidism then covid. During covid I took AFib they had to stop my heart. I was given anti coagulant and injection and meds vit D folic acid and B 12. I saw no cardiologist as follow up. After a year I paid and had tests down and anti coagulant was removed not needed until 65. Another year went by and I had Afib lots so had to pay again was in Afib at the time he changed meds but that he said did not work infact made things worse so that qualified me for a waiting list for oblation, waiting list 1year that was over 18 months ago. The NHS finally saw me match this year the cardiologist told me my heart was damaged and he put me on a diuretic furosemide to told me he would inform the cardiologist I saw privately. My GP having been told at 65 the anti coagulant was to be prescribed has denied the meds because I had no Afib the day they did the ECG.

I can change GP in Oct.

lost is the word for me right now. Any help please

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Bromly1
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CDreamer profile image
CDreamer

Hi and welcome. Firstly anticoagulant is first line treatment to lower increased risk of stroke which for anyone with AF is much higher. If you are female and over 65 with other co-morbidities you would be well advised to take the anticoagulants.

AF is a very common arrythmia and usually treated by GP in the first instance and only referred to cardiology and ultimately to EP - Elctrophysiologist if you are symptomatic.

I posted an infographic on AF treatments earlier today which will give you a lot of food for thought. You can also visit the AFA website for lots of info and details of Patient Day which is well worth attending if you are new to AF.

Was the cardiologist you saw privately an EP? EPs are the specialists and who are ablation experts. If you have heart structural problems you may not be a suitable candidate.

I post you a link to the thread of this morning as similar questions asked.

bantam12 profile image
bantam12

If your thyroid replacement isn’t adequate that will be having a negative effect on your heart function, heart arrhythmias are very common in thyroid patients.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply tobantam12

Hi

You are meaning the synthetic thyroxin of hormone replacement.

Her TSH will indicate if she is back t a normal TSH level of .6-4.2.

It would be nice to know her levels now after RAI Treatment TSH T3 and T4.

cherio JOY. 75. (NZ)

Buffafly profile image
Buffafly

If you saw a cardiologist privately and you are listed for an ablation there must be a record of your AF. Your GP is ignorant and wrong but you shouldn’t have to change to get the medication you need now.If he is aware of your history and still refuses you should speak to the practice manager.

RoyMacDonald profile image
RoyMacDonald

I would go A&E and explain the problem of your GP being an A hole. I think they will be able to prescribe anticoagulants until you can change GPs.

If you have AF you must take anticoagulants. I diagnosed myself ( Garmin heart monitor) and my GP told me to take Apixaban. The hospital was never able to get an AF reading when they tested me before I had my stroke (due to not taking the Apixaban, but it's easy to be wise after the event). You will be able to get Apixaban if you have a stroke but you don't want to go that route I can tell you.

All the best.

Roy

Genetee profile image
Genetee in reply toRoyMacDonald

Forgot to say I've used Aspirin as a blood thinners before just Aspirin, nt Bayer or Bufferin pure salicylic acid no additives.

RoyMacDonald profile image
RoyMacDonald in reply toGenetee

Hi Gentree.

I was replying to Bromley1 the OP when she said "My GP having been told at 65 the anticoagulant was to be prescribed has denied the meds because I had no Afib the day they did the ECG." So I don't understand your reply. Sorry. Aspirin is not suitable for someone on Apixaban or for someone with AF anyway according to my Dr.

All the best.

Roy

Genetee profile image
Genetee in reply toRoyMacDonald

My cardiologist oked the Aspirin instead of Xeralto and kept prescribing the EliquisHad plenty of cuts and scrapes to observe bleeding, but Xeralto in the equation is a different matter. I say wicked.

Genetee profile image
Genetee

I'm one of the blest ones. Covid didn't develop in me.Ha Afib for years before Covid started.

With Afib the volume of blood moved by the heart is diminished so blood moves slower through the blood vessels. Moving slowly can give it time to clot so doctors prescribe blood thinners.

Mine prescribed Xeralto. Wicked stuff cut my lip bled from 7:30ish pm till 8 am, no kidding, left work because I was getting blood on my paperwork. Use an herbal remedy for arthritis, magnolia leaf tea, topically

It's what I had handy and I used anything at that point. Worked in less than a minute to stop the bleeding. Had applied Flowers of Sulpher to stop the flow of blood but it was still seeping.

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

The best thing for you is to have a 24hr Heart Monitor.

If you were hyperthyroid and could not be controlled into normal TSH .5-4.2 Range then it looks like you must have had RAI TReatment - Radio Active Iodine treatment.

If so you will be on Thyroxine for total replacement of your Hormones. They would put your tSH into normal range.

Yes, do take an anti-co.agulant. I was not on any prescribed meds only B12 for a B12 deficiency.

In Sept 2019 I awoke with a sore head 2pm went to loo and back to bed. I awoke at 5.30am didn't get to toilet had a shower looked in mirror. I'd had a stroke.

That day diagnosed with Stroke Embolic type, AF Rapid and Persistent and within 4 days diagnosed with Papillary Thyroid Cancer. Total Thyroidectomy + 12 lymphs removed (2 affected) and dissection.

I take 125mg Synthyroid daily 1 hour before breakfast. DAILY

You must keep your TSH in normal range as above. T3 3.9 -... T4 to 22.

To raise your T3 Selemium is in Brazil nuts (2 daily)sardines, Beef Liver.

There is no alternative to thyroxine - used for at least 50 years. You need the hormones for your bodily functions.

You need blood test for above Iron, Vit D, Magnesium, Potassium, B12, full blood test plus. Including Calcium.

AF doesn't always need to be medicated. Your symptoms? Heart Rate / BP levels.

You would need an exceptionly high amount RAI to kill the thyroid. Are you sure that you have nothing left? Some folks who are hyperthyroid simply have a dose of RAI regularly to slow down the hyper state.

Let me know your levels.

cherio 75. (NZ)

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