Hello everyone.
I have read a post which talks abot hyper urination which I have not seen before. Does this mean the need to pass water more frequently?
My life has been blighted by this and I woud be interested to find out if it is a symptom af AF which I have hade for over 30 years and would like to know how people cope with this.
Many thanks.
GarrBo
Hi GarrBo it was my post you read and indeed it was my description of what happens to me when AFib kicks off. The production of ANP which causes this diuretic effect happens from the irregular contractions of the left atrium which leads to stretching of the atrial wall. I assume it is a safety valve to reduce blood pressure as it dumps sodium. Why a percentage of us get it but not all AFibbers I have been unable to ascertain. There is not a great deal you can do about it as far as I can discover. It is at times extremely inconvenient as the volume of urine is vast as you probably know. But to answer one of your questions it is undoubtably a symptom which occurs for some who have AFib but is not talked about a great deal. I personally just keep my fingers crossed that my AFib dose not kick off when having access to a toilet is restricted, easier said than done. I would be interested to know if anyone knows the reason why some of us have this side effect, I believe approx 30%, but others don't as I have been unable to find this information so far. Regards Kathleen
I also have this problem, when I have an AF episode, if I recall correctly, it was a doctor who told me, that we have an adrenaline reaction when we experience an AFib episode, and the body needs to rid itself of the excessive amount, therefore we urinate to help the body rid itself of the extra!
Hi Catnut what I am now trying to find out is why when there are so many afibbers is it only a percentage of us are affected by this. I have paroxysmal afib therefore at the commencement of every episode this happens, sometimes more volume than others. I read a while ago that it was about 30% after intensive searching on line, but it did not give an explanation why it occurred only in some. I just like to know the far end of everything. Regards Kathleen
It’s only a guess, but perhaps some of us, produce more adrenaline than others?
We may have a over sensitive Vagus nerve, another guess?
I found this piece online:
Under physiological states, the nervous system and the kidneys communicate with each other to maintain normal body homeostasis. However, pathological states disrupt this interaction as seen in hypertension, and kidney damage can cause impaired renorenal reflex and sodium handling.
Hope this helps?
Thank you for your input Catnut, since I came across this research paper last year which stated this percentage but could give no reason why it has continued to make me curious. You would have thought that all with PAF would get this symptom. Rightly or wrongly I have always looked at it as a safety valve annoying though it is. Regards Kathleen
Great point Kathleen, and I can see your logic too, perhaps it’s worth another study?
Thanks for the explanation Kathleen. If I find an effective way reducing the effects I'll let you know. Garry
I do not think this applies to you because it happens at the start of an episode of paroxysmal AF. I think it happens if your heart is under strain as I have had it without AF after a very tiring day but I have had AF without it.
When in AF, the distressed heart secretes an enzyme which tells the body to shed salt which it does via the kidneys hence to you P a lot. The technical(medical ) term is excess micturation.
The most important thing is to maintain hydration so whatever you do, do not limit your water intake.
Yes, for me always. This is due to the body expelling Sodium so I am told so it is a symptom and a nuisance because my A/F was most times at night when I was relaxing, or trying to!!!
I first encountered this 6 years ago (I had previously been diagnosed with SVT but hadn’t yet been diagnosed with AF).
We were away from home for a wedding. I didn’t drink any alcohol at the wedding and when we went back to our accommodation and went to bed, I ended up waking every hour and needing to go to the toilet which was not at all like me. I could feel my heart going faster and thought I must be having an SVT episode. My heart rate was stuck on 150 bpm . When we got home I went to my GPs. They did an ECG and called my cardiologist who said I needed to go to hospital for a cardioversion and diagnosed Atrial Flutter. (From when the episode started until the cardioversion, it was about 3 days.
Six weeks later I went back into Atrial Flutter and the. Into Atrial Fibrillation. So if I need to wee often I do get worried that a heart event could be around the corner 😀
Hi
AF says yes.
But I have some involuntary trips to loo.
Try a tens macine.
Routinely go every 2 hours.
My urologist offered me SOLIFENACIN VIATRIS 5mg
I take 1 at the night before a full day out. It helps.
cheri JOY. 75 (NZ)
Where do you place the TENS pads?
Hi
The physio drew me pictures.
Above ankle bone up a little one higher than the other or on one side of bottom of spine one further up than other. Watch the red one. Lower I think.
Start off slowly then increase volume.
cherio Joy
Thank you. Question: inside or outside of leg above ankle bone?
I'll be using it today so shall back to you.
So much going on at the moment.
The back one is great too. Your lower spine is connected to bladder.
I use the tiny pill on special occasions and will take it for the plane. I like the window seat - more circulating air.
The pill has some sulphite in itand as I am allergic to sulphur.
I've changed to Synthroid 125mg using all 50g which are white and finally my rash is going away I reckon. But I have to 12 one of them.
cheri jOY
Thanks. I look forward to your advice on TENS placement on ankle and back.
Thanks Joy, I cant use a tens machine as I have a pacemaker but I do pelvic floor excercises which have helped.
I suffer from that too at the start of every afib episode which thankfully have all been at night. I counted once that I went 13 times in three hours and the next time I measured how much urine I'd passed - 5 pints. I make sure I have rehydration powders in the house at all times and coconut water. I dread an afib episode starting up through the day in case I was away from home. It's surprising how many medical people don't know this happens to afib sufferers.
I'm surprised too. I have had AF for 25 years and this was the first I'd heard of it. I've never measured the volume but I am familiar with the frequency!
The first time I went into afib and was taken to hospital in an ambulance I had to pee in the ambulance even though I had just been before setting off. And again as soon as we got to the hospital- enormous quantities of urine . I usually get this at the beginning of an episode but with time it is getting less. The last two episodes of afib it has been hardly there at all. I wondered if my heart was getting used to the afib and not as distressed by it. Luckily most of my episodes are at night when I am in one place with access to a toilet.
If you are male, PLEASE get your prostate checked. Urinating frequently is the first sign of an enlarged prostate.
Hi, have you had your prostate checked?
NHS site says:
"TENS is not safe for everyone to use. Do not use it without first getting medical advice if:"
...pacemaker, pregnant, epilepsy, heart problem, overactive bladder ...
It also says:
"There's not enough good-quality scientific evidence to say for sure whether TENS is a reliable method of pain relief. More research is needed and clinical trials are ongoing."
Hi
Not using it as pain relief.
Physio recommendation for stimulation when pelvic exercising don't work.
I have rapid (controlled) and persistent AF.
Also advised to use on my repair inner cuff repair on my shoulder.
cheri jOY
TENS, some types of heart rate monitors as well. I can't use one because I have a pacemaker.
How much is alot? I'm Interested because I think I P a lot alot in the night but about every 3 hours so I get up get up 2/3 times and overnight it's about 2 litres.. I'm in permanent AF with no symptoms so I can't say i'm having an AF episode. I do feel thirsty and take a pint of water up with me and also orange segments. Worse at the moment because I have to sleep on my back and I know I snore, it's it fine if I sleep on my side.
Hi
I would say once OK with the amount you drink and leave off the acid orange segments!
Permanent AF means you are never in normal pumping.
All that waking during the night not good for you.
I'd want to tested for Sleep Apnea. There's is a break through in that - medication.
cheri JOY
Try putting a small strip of surgical tape over the centre of your lips. This works well as long as you don’t have a blocked nose.
yes this happens to me for the first hour of an attack. When I first had AF it didn’t happen but now it does. My attacks are not limited to night time. When it first started I mentioned it to my EP and he said “well that’s nothing in the grand scheme of things”. Maybe not but very awkward if in a meeting, on a motorway etc
Jane
Can blood in urine be caused by too much alcohol if on Apixaban?
What type of AF do you have
URINATE A LOT WHILE IN AFIB 
Rivaroxaban and dark urine
Bloody Urine using Celebrex
