crazy Hazy and her extra/ missing heart beats

[Hazel1010]

Hello all , I’m here again and I wondered what anyone thought of this …..

Last week I has really bad symptoms of premature contractions, swollen legs which ached like hell. facial flushing and vertigo I was falling over crawling around my flat ,sinus problems, blood in my eye so I looked like the devil 😂😂 I’ve been booked in for follow up appointments etc so all that is in hand 👍

Friday I went to stay with my son and found I’d brought an empty pack of clopidogrel 🤷🏻‍♀️ which I was taking at night and I thought that I’d have enough in system for a day at least as I was going home Sunday morning anyway 👍

My point is I have no premature beats , no balance problems, no flushing, no swelling or aches etc I can breath , my eyes gone back to normal and I feel like a different person 🤷🏻‍♀️

I’m not advocating to stop talking something without doctors instructions and I’m on the phone first thing Monday to talk to doctors to maybe lower dose or change to something else but this seems too much of a coincidence and I wondered if anyone had had similar possible side effects

Thanks Hazel

[bantam12]

It’s not uncommon to feel better when we first stop a medication either by accident or design ! trouble is it’s common for that feeling not to last long !

[Hazel1010 in reply to bantam12]

Ah right , well I’m going to hang until Monday and see what the doc says 👍

[Jetcat]

Your doctor may indeed change your meds? I hope you continue to feel better hazel either way.👍 best wishes.Ron.

[Hazel1010 in reply to Jetcat]

Thank you , I’m hoping it continues it’s been a bit of a week for me , I think my local surgery will blacklist me before long 😂😂😂 they are brilliant 👍

[Jetcat in reply to Hazel1010]

They won’t. Their here for us when we need looking after.👍

[Hazel1010 in reply to Jetcat]

they recognise my voice I don’t even say my name and they are always so nice bless ‘em ❤️👍

[Jetcat in reply to Hazel1010]

We lucky to have them. I know folk like to moan but how many folk around the world can just phone a surgery and get booked in to see a doctor.? Some people have to walk three days to hopefully get to see one, and then there’s no guarantee.!!!😢

Someone I know at work had pains in the upper back for 2 days with breathlessness and I said go to A+E that needs checking out. He replied with I’m not waiting 5 hours to be seen.😳 so I thought more fool you all for the sake of a wait.

[Hazel1010 in reply to Jetcat]

I know I’ve been in A&E and heard people be so rude to the staff because they have to wait 😡

[Jetcat in reply to Hazel1010]

Disgusting isn’t it.! It’s because some folk expect not to wait for anything. Ungrateful

[BobD Volunteer]

Not sure why you would be on such drug anyway. Like aspirin it is an antiplatelet not an anticoagulant and has little value for stroke prevention in AF.

[Hazel1010 in reply to BobD]

Hi , 2015 the eye hospital thought I had a TIA , at the time the main hospital department couldn’t find any signs of it and other than a tiny speck in my eyesight I had no other symptoms, but nonetheless I’ve been taking it since then 🤷🏻‍♀️ you just do as you are told I suppose but I’m checking in with the doctor Monday morning 👍👍

[jeanjeannie50]

I had the same 'feeling better' after dropping one of my heart pills at the recommendation of my cardiologist when he looked at an ECG of mine. Sometimes pills can cause more grief taking them than without.

[Hazel1010 in reply to jeanjeannie50]

Hello, I have to be honest I’m turning into a raving nutter , my hearts too fast , too slow ..omg I can hear it , omg I can’t hear it honestly what a game 🤷🏻‍♀️😳😂

[jeanjeannie50 in reply to Hazel1010]

All designed to drive you mad isn't it!

[theonethatgotaway1]

Hello Hazel. Not sure why you are on this drug for so long. I believe it is mostly for short term use as the risk of bleeding complication rises with long-term use. I was on this drug a year longer than I was meant to since having a heart attack as they 'forgot' to stop it. Anyways since stopping it, I have also felt much better. I remember stopping it being worried and honestly my chest pains were less. Also just felt much better all round.

[Hazel1010 in reply to theonethatgotaway1]

Hello , I know a nurse questioned it about a year ago and the doctor said oh it’s fine , but I’ve set my alarm and I shall be first in the queue tomorrow for a doctors call 👍👍

[MWIC in reply to Hazel1010]

Hi Hazel - I was on clopidogrel for a year post heart attack then it stopped - can’t say I noticed anything on stopping it but we’re all different - I continue in Apixaban for stroke prevention - I’d query why you’re still on it - good luck

[Cumbremar5]

I have experienced same as you but with apixaban prescribed 5mg twice daily but read in patients information leaflet after 80 reduce dosages to 2 .5 mg twice daily doctor says continue with 5mg but this is Spain and feel they prescribe high dosages here for everything so been cutting 5mg in half and feel much better no missed heartbeats. I'd discuss with your cardiologist.

[Ppiman]

The following are two true stories. I remember my late Aunt Barbara, then in her early 80s, becoming very ill over an extended period with the family thinking the worst. She only eventually went into hospital where they found little to be wrong and, in the end, the only treatment they decided upon was to remove all her many prescriptions bar two, one for calcium that she claimed she had to take standing up, the other I can't recall. She made a quick and full recovery, gained all her lost weight and vigour and went on to lead a good life for more than another decade, finally leaving this world in her mid-nineties.

My father, too, in his mid-seventies one day felt strangely ill while helping my brother build an extension, experiencing a "turn" with slight chest pain and dizziness, and a strange weakness in the left ankle. It perplexed the doctors who sent him back home as "perfectly well" only later to send an apology follow up letter to say that he had, in fact, suffered a heart attack. He was given only a daily aspirin. Over the following months he deteriorated with nausea and lost appetite, wasting away physically. We genuinely thought the worst. Off his own back, he stopped the aspirin, and made a full recovery living for five more years till a second heart attack following the loss of our dear mother.

In your case, there is no evidence that I can find that clopidogrel should cause your symptoms. And yet, your stopping it has made you feel better. Unfortunately, it's not a drug you can do without, but maybe it is interacting badly with another, or something unexpected like that?

Steve

[Hazel1010 in reply to Ppiman]

Absolutely 👍 and I’m literally just waiting to talk to doctor,

[JOY2THEWORLD49]

Hi

Yes, stopping to find out what is causing ... if you can.

Always happens in a weekend!

Take care, JOY

[Hazel1010]

definitely 😂 always a weekend 🤷🏻‍♀️

[Snowgirl65]

This may sound like a crazy response, but my first reaction was that you were having an allergic reaction to something in your flat, and being away at your son's made the symptoms go away. Could that be a possibility, and not the drug?

[Hazel1010 in reply to Snowgirl65]

I never thought of that 👍 I’ve been back for 48 hours now and still ok so fingers crossed, but if they come back I’ll look into it 😊

[Snowgirl65 in reply to Hazel1010]

Hope you find answers!

[Jetcat]

Hi hazel, I’m booked in at doctors Thursday morning. Iv still got the ectopics and I’m going to ask if I can have a 24 hour monitor. It will definitely catch them because of the amount I’m having. I’m getting abit worried now because Iv never had them everyday for this long before.!! Going into second week now.!! Iv got it into my head they are PVCs and I’m going to expire.! My health anxiety is creeping in and Iv been doing so well in keeping calm until yesterday.!!

[Hazel1010 in reply to Jetcat]

Ahh bless you x it’s a mad circle that the more you worry the more you get and no matter how many time you get told they are harmless every gets them it’s not very reassuring is it .Vita minds service on the nhs is good for helping with the anxiety and you can self refer if you want .

i started walking around my flat or garden when they started to walk slowly through it ( I felt like Forest Gump last week ) but distraction or ignoring them like a naughty kid works for me , get to that doctor and say you need help x

[Jetcat in reply to Hazel1010]

Laughing my socks off here.? Forest gump😂 I’m going to go for a steady ride on the push iron and see if that helps. Thanks for replying hazel.👍

[Hazel1010 in reply to Jetcat]

You are welcome and I’m usually not too far away if you need a natter x take it easy 😊

[Jetcat in reply to Hazel1010]

Thanks Hazel. I do appreciate it.👍

[Cavalierrubie]

Good for you Hazel. It’s all about quality of life. I have had lots of problems with side effects of drugs. Admittedly we can’t do without medication but it’s finding the correct balance and what is right for you. We are all different and only you know how you feel. Hope it goes well with GP.

[Hazel1010]

hi , I also think that although something you took five years ago might not suit you now , it’s just convincing doctors sometimes.

I’m on 75 mg of aspirin now I had to have a lecture about it not being as good as clopidogrel but hey ho 🤷🏻‍♀️ I’m happy to give it a go , have a good evening 😊

[Sizzlerman]

Strange you should mention that. I have not long stopped taking Clodiprogrel and since have had dizzy spells and what feels like an extra breath, was going to leave it but now back to work and on a moving track could be a problem with balance, I am hoping that maybe one of my other tablets could be altered because this also coincided with going to the gym and doing more exercise after doing cardio rehab. I only wish that this happened when I was at rehab they would have noticed this in the monitors. After having another stent fitted my statin was increased and Bisoprolol which was 1.25 had increased to 5mg.

[Hazel1010 in reply to Sizzlerman]

Hello , well maybe coincidence but within 4 days of no clopidogrel my awful vertigo went , my extra beats have all but gone and my legs feel so much better 🤷🏻‍♀️ but as I say I’m not advocating anyone stopping meds without consulting doctors 👍👍👍