As many of you know, I have had a somewhat chequered journey with my AF and treatments but currently am happy with my status quo ie: Pacemaker which seems to help control AF and certainly lessens episodes, unless I have an infection.
Very recently, I have developed what I can only describe as internal earthquakes, dystonia - especially at night and after exercise, muscle spasms, especially in my feet and legs. Now I have attributed my symptoms to the neurological condition I have - Myasthenia gravis as this phenomena is widely reported on Mg patient forums and thought to be a side effect of one the drugs we take which stops the breakdown of Acetycholine. However, the escalation of symptoms whilst my dosage remains stable is making me rethink.
Dystonia is commonly recognised as a symptom of Parkinson’s Disease and MS but not so far associated with other conditions.
I recently came across this paper which lists similar symptoms in EDS patients - symbiosisonlinepublishing.c...
Symptom List
Involuntary muscular contractions without movement such as fasciculation on the face, blepharospasm mainly, on the thigh, reminding of a mobile phone vibration in a trouser pocket,
Sudden movements such as a fit of the wrist, the shoulders, the legs or wide movements which results in hitting objects or people or throwing off balance the patient for whom they occur in the lower limbs
- Trembling, jerking, hesitant hand movements
- Trembling fingers or thumbs in motion or at rest
- Muscular contractions often described as hardening of muscles, rigidity, constraining movement, or as cramps
- Lasting contractions in forced flexion of the thumb or fingers, in flexion and adduction of the feet,
- Writer's cramp when writing after variable amounts of time,
- Incessant, repetitive movement in flexion or extension of the foot and knee when sitting with feet on the ground,
- Repetitive movement of the trunk alternating between flexion and extension at the hip
- Diffuse tonic crises at the lower limbs with alternating, violent movements worsened by tenting to immobilize them
- Short contractions of the lower limbs leading to a fall
- Partial or generalized tonic-clonic movements and the possibility of hematomas facilitated by the fine skin and the fragility of the vessels. These can be confused with seizure activity but the EEG remains normal
- Restless leg syndrome at night, which sometimes evolves into very violent jerks
- Bruxism, (grinding teeth) which we often encounter in EDS patients could be related to dystonia
Now my question is - I have seen many posts reporting an inner shaking prior to or during an AF episode. If you have ever experienced this phenomena please could you reply with a brief description and whether you knowingly have another condition such as Dsytonia.