Digoxin again (and again): Long story... - Atrial Fibrillati...

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Digoxin again (and again)

jd2004 profile image
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Long story but after being on digoxin for just under a fortnight I began to feel ill : violent palpitations, high heart rate, diarrhoea ( frequent) and generally feeling terrible. Consulted gp who told me it was a bug but he’d write to cardiologist and if I didn’t hear anything after ten days to phone back. As you can imagine I wasn’t happy. By Thursday of this week things hadn’t improved. Phoned surgery. Closed early due to bank holidays. On Friday I didn’t take the digoxin, just Bisoprolol and apixaban. Phoned NHS 111 ( Scotland). Advised to attend A and E. Was there for five hours. Had bloods and ecg which was fine possibly because I hadn’t taken digoxin and I was symptomless. Eventually was spoken to by a nurse practitioner. I told her I thought digoxin was poisoning me. She left me for 40 minutes. Came back and said she had spoken to cardiologist whose advice was to take half a digoxin as this was clearly the problem but it was unfortunate because it was dealing with flutter well. It wasn’t. Now, trying to half a tiny tab is difficult but I managed and guess what? AFib kicked in in the middle of last night. I’m venting here but since April I have contacted gp and a and e multiple times and I have yet to see a doctor face to face. Not sure how to proceed but I’m logging everything. Does anyone know any cardiologists I could see privately (Scotland) so that I could actually discuss this with a real live qualified person and improve my quality of life? Thanks for reading but I’m ill and I’m p***^* off.

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jd2004
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jd2004 profile image
jd2004

Replying to my own post but here goes: I should also have said that my HR was down to 30 and up to 152 in the space of 10 minutes.

mrgwair567 profile image
mrgwair567 in reply tojd2004

Oh ! Poor you!Something’s not right. I know it’s difficult but try and get a private consultation with an EP.

mjames1 profile image
mjames1

Sorry what's going on. The digoxin issue really has to be addressed by a cardiologist. Even the half dose may not be right for you.

If you don't get a name of a local cardiolgist, maybe try a private televisit. I came across this site but there are probably others. Don't have any personal experience with them but hopefully this will be helpful.

topdoctors.co.uk/

Jim

jd2004 profile image
jd2004 in reply tomjames1

Thanks. I’d rather see someone face to face as their would be more benefit to my peace of mind and feeling of trust. Thanks anyway.

Gillybean123 profile image
Gillybean123

Hi there, how are you feeling now. I was on digoxin many years ago well about 10 years it was one of the first pills they gave me. It affected my eyesight. I could follow a big yellow ring all the way around my eyes. I came off that and went on amiodarone, which was amazing but you can’t stop on them long. How long have you had AF? Our surgery is pretty good I am in AF as we speak. Will call doctors or message tomorrow and they will get me in for ecg and see a doctor. I’m hoping it goes off soon. I have been on bisoprolol not good now I am on Verapamil which has been amazing but I am still having a bout of AF. Tell them you want to come off Digoxin and ask to be put on something else. It’s your body at the end of the day. It takes a long time to find the right medication and you can still have the odd bout. Wishing you all the very best. Xx

rosyG profile image
rosyG

HiIf you ring the AF association they will be able to give you the names of suitable cardiologists near you- you need a proper opinion as others have said good luck!

Kennyb1968 profile image
Kennyb1968

Sent you a DM bud

jd2004 profile image
jd2004 in reply toKennyb1968

Saw you had ordered a Kardia. I’ve just discovered I can print all of my ecg’s from it as I’m seeing Dr. Wright this week. Handy to know

Kennyb1968 profile image
Kennyb1968 in reply tojd2004

That's good mate - he's a top bloke

jd2004 profile image
jd2004

It was fine for the first ten days. Yes I did check for contraindications. Problem is that now it’s in my system it could be even more dangerous to stop abruptly which is why I’m looking for recommendations for a private consultation as NHS is too backed up, always.

ETHEL103 profile image
ETHEL103

Morning.I was in this position last year so I had a private cardio and also private ep appointment as no contact with anyone to help.Expensive but very helpful.

jd2004 profile image
jd2004 in reply toETHEL103

Thanks. I’ve to speak to my GP about my visit to A and E on Friday but there’s no point in trying today. I’ll phone tomorrow but I have the name of a private consultant and can be seen next week, or earlier if I choose someone else.

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