Hi my BHF FAMILY! I want to call you that because you have all been so fantastic, I read your comments before going to see my cardiologist they honestly kept me uplifted. So thank you.
So I saw him and he said that they should never have written the letter like that. He will write me another letter which explains it more clearly. He said that the referral to the inherited cardiovascular clinic was just for preventative measures and that nothing has changed since I saw him last. He said obviously I have heart issues which I know and I’m on top of with meds and so on but there is no new diagnosis or new imminent issue. I have to do follow ups and that’s it for now. So it’s the best possible outcome.
Again thank you all so much for being there this forum really does help ease the stress and anxiety of it all !!
So had covid - kicked of a pericarditis got rid of that found out I had tachycardia was managing that really well and now I have an MRI which I don’t even understand. So many confusing things in the letter but when I google them it basically said I was dead.
Been referred to the inherited cardiovascular disease clinic so assume I have that…
I just feel so sad… I’m 32 with a 6 year old and all I can think is how long do I have with him?
Was feeling absolutely fine until I got the letter and since then I’m in lots of chest aches and pain I keep imagining numbness I just basically feel like I’m actualising symptoms
I see the cardiologist tomorrow for him to explain but I’m so scared… so I’m venting on here just because … I feel like my life is over … I feel like I will never be able to do anything again will I be able to go on holiday how many Christmas’s do I have? Did I have this before covid? What could I have done differently? I feel really really broken.
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scm21
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I’m so sorry that you’re feeling so down! I cannot comment on your condition, but I urge you to wait until you have seen your cardiologist tomorrow before you draw any conclusions.
When things are explained to you I’m sure you will see things differently!
Hello, unfortunately googling often proves fatal 🫣 I do hope it’s not as bad as you think - I had a similar letter once and I still don’t know what it meant (and my doctor said she didn’t either!) I wish those medical letters came with a Ladybird version so we patients wouldn’t freak out. It’s great you are seeing the cardiologist tomorrow but in the meantime you might find someone on the British Heart Foundation forum who can interpret some of your letter and also when you’ve seen the cardiologist there will probably be someone with the same condition. If it’s a hereditary problem there is probably absolutely nothing you could have done different but the COVID has revealed it and that may be a good thing because the earlier you have treatment the better.
I do really feel for you but all I can do at a distance is send big virtual hugs 💞💞💞 Do come back and tell us how things went with the cardiologist 🍀
Hi scm I’m so sorry to hear you’re struggling. You’ve been through a lot , what with Covid and the pericarditis, so it’s not surprising that yet another thing to deal with has knocked you for six. As Buffafly and mrgwair have said though, try not to jump ahead with all the worst case scenarios and wait until you’ve seen the cardiologist today. Dr Google is not our friend in these situations! He predicted a grisly end for me after I “consulted” him following a letter giving my echo results a while back but it transpired he was exaggerating rather dramatically!
It’s a tough time for you, I know but as Buff says, if you have an inherited condition, the sooner it’s picked up and treated the better, so, if that turns out to be the case and bizarre as it may sound, having Covid and pericarditis may ultimately end up to have been a good thing. As for your question what could you have done differently, if it’s something inherited then the answer is not a lot, other than choosing different parents next time round😊
I wish you all the best for your cardiology appointment today and remember, it may be virtual but there are plenty of members on this lovely forum ready to support you whatever the outcome. TC x
Hi Sam, sorry to hear of your post Covid cardiac difficulties. Assuming the worst, that you have a myocarditis along with the pericarditis, In many of the case studies I have read, this post Covid heart inflammation clears spontaneously. Meanwhile the cardiologist should be able to monitor you and treat as necessary.
I really feel for you, but Google is not the place to look to define your symptoms. I know we all do it though! I'll be thinking of you today, please report back on what you are told, because we'll be waiting.
You have my sympathies. Health anxiety is truly awful and whilst I don't know what your MRI and other tests showed, I do know that I have had reports that have frightened me a very great deal, yet which have proven to be nothing that mattered much at all.
So far as I know, inherited heart conditions are common with most going undetected. After you see the specialist, I hope that you will feel much calmer about matters and be better able to rationalise about what the future holds.
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