Well, that will teach me!: So there I... - Atrial Fibrillati...

Atrial Fibrillation Support

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Well, that will teach me!

Threecats profile image
55 Replies

So there I was thinking the lifestyle changes I’ve been making since my last AF episode in June are paying off, as I’ve not had an episode since and then….. bang, everything kicked off just after midnight today and here I am, over 16 hours later with it still going on😡

I’ve tried breathing exercises, cold water, both on me and in me, going for a walk, valsava manoeuvres… The cat even tried to help by ambushing me on the way back from my walk - normally that scares the life out of me as I’m usually miles away thinking about other things and so would have been useful but, of course, today I saw her coming!🙄 At least the bisoprolol is keeping the rate from getting as crazily high as it has previously but it’s not much help in getting things back in rhythm!

Never mind, onwards and upwards as they say. I hope my fellow forum members have had a better day!

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Threecats profile image
Threecats
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55 Replies
BobD profile image
BobDVolunteer

As it says on my tea mug "keep calm and carry on!"

Threecats profile image
Threecats in reply to BobD

You’re right, it’s the only way Bob. Either that or go bonkers trying to work it out 😀 Pleased to say I’ve finally flipped back into nsr 👍

CDreamer profile image
CDreamer

Hope it calms very soon. AF likes to keep you on your toes….

Threecats profile image
Threecats in reply to CDreamer

Thanks CD, it certainly does that!

doodle68 profile image
doodle68

'Been there done that' Threecats...:-) , on occasions like that I am consoled by the fact so far the AF beast has gone away just as it came. Maybe you can sleep it off, that sometimes works for me..

Threecats profile image
Threecats in reply to doodle68

It is certainly a strange beast Doodle and yes, sleeping it off sounds like an excellent plan😊

Ambler profile image
Ambler

But you have been free of AF since June! That to me is a positive, you (and all of us) will have set-backs. I would like to encourage you to maintain your "assault" on not succumbing to this gutter-level condition.

Threecats profile image
Threecats in reply to Ambler

You’re quite right Ambler. Set backs are a part of life and I don’t intend giving up on the challenge that is AF just yet😊

Brad43 profile image
Brad43

Not better today. I was doing OK 'til about 5 hours ago, then it started up with tachycardia about 135. It usually lasts 2 hours or less, but it's still going now. At least it's down to 77, but wildly arrhythmic. My ablation was 3-1/2 years ago, and I've been getting episodes about once a month most of the time since then. So this isn't unusual, except that it's usually not tachycardia, just arrhythmia. Hoping it will convert soon.

Threecats profile image
Threecats in reply to Brad43

I’m sorry to hear that Brad, I hope it settles for you soon.

Oh good luck! 🤞

Threecats profile image
Threecats in reply to

Thanks FaberM!

Singwell profile image
Singwell

Hard not to feel indignant sometimes isn't it? And 16 hours is a long haul. AF free June to November sounds good to me! Whatever you're doing, keep it up.

Threecats profile image
Threecats in reply to Singwell

Ha ha, you're right there Singwell, particularly after cutting some of my favourite things out of my diet, too - I'd kill for a cup of proper tea😀Never mind, it could be a lot worse!

Singwell profile image
Singwell in reply to Threecats

Take heart 💓. You might find you can slowly reintroduce some of your favourite foods. I can drink two teas a day with no harm. Don't drink caffeinated coffee though and no alcohol now for over a year. 🎈

Threecats profile image
Threecats in reply to Singwell

That's encouraging to know, thanks Singwell.

Ablation7 profile image
Ablation7 in reply to Threecats

I was just talking about my tea! I had made it to a month and was thinking of having a caffeinated cup Sunday morning until AF visited Saturday night. 😠 🤣My sister just told me Barry’s makes a decent decaf 🤞

Threecats profile image
Threecats in reply to Ablation7

Oh, I'm sorry about that Ablation7, the disappointment!! No Barry's round here but I have found a real decaf coffee that passes muster and for which they use Co2 rather than chemicals to strip out the caffeine. I still dream about a proper cup of tea though 😂

Ablation7 profile image
Ablation7 in reply to Threecats

Sad isn’t it 😊

HowMyHeartSings profile image
HowMyHeartSings in reply to Threecats

I’ve tried endless brands of decaffeinated tea & coffee: Grumpy Mule decaf coffee (decaffeinated without using chemicals) is indistinguishable from caffeinated coffee. Tetley decaffeinated tea is almost as good as the real thing. Just in case anyone is interested Big Drop Pine Trail Pale Ale is alcohol & gluten free and tastes absolutely superb. But alcohol free wine is all undrinkable - I’d rather have nice grape juice.

Threecats profile image
Threecats in reply to HowMyHeartSings

Thanks Sings , liking the sound of Grumpy Mule, that will suit me well first thing in the morning, I reckon 😀 Mind you, the Pale Ale sounds even better....although maybe not first thing in the morning😂

Carolx profile image
Carolx

You must be exhausted!Mine last around 10-15 minutes and I feel like I’ve run a marathon after.

I feel so drained and then get a raging headache.

I really do feel for you and others that have such long episodes.

Mine have been lifelong and they still scare the hell out of me!

Sleep sleep sleep!

Fingers crossed that was a one off since your health kick and they will never been seen again 🤞🏻 😁

Have a restful Sunday 😊

Threecats profile image
Threecats in reply to Carolx

Thank you Carolx, yes, I must say I do feel pretty drained today and you're right about the headache too! I'm sorry to hear you've had them lifelong, that must be tough for you. Whether they're short episodes or not, they're still challenging to deal with.

Barb1 profile image
Barb1

It can drive you mad looking for a trigger. Sometimes there just isn't one.

Threecats profile image
Threecats in reply to Barb1

You're right there Barb, although I'd been redecorating my hall this past week and pushing myself to get it done, even though I was feeling tired, so I think that didn't help. As soon as I finished, off it went!

momist profile image
momist

Hmm. Yes, I managed eight months without a session once, and then it started again. And then it carries on at intervals for quite a while, and eventually settles down again. I hope yours stops very soon, and doesn't then follow my (lack of) pattern.

Threecats profile image
Threecats in reply to momist

Thanks for sharing that momist. What a blissful 8 months that must have been! This AF business is a strange one, for sure. That is the thing I find so hard to get my head around to be honest, the seemingly random nature of episodes.

nikonBlue profile image
nikonBlue

Hope you're feeling better.... What a CATastrophy for you though!!Blue 🙀

Threecats profile image
Threecats in reply to nikonBlue

Lol! The cats were just relieved I was still able to stagger about enough to feed them😄

Megams profile image
Megams

~Threecats - have you tried drinking cold water with ice cubes in it?Hope it settles sooner rather than later.

Threecats profile image
Threecats in reply to Megams

Thanks for the tip, Megams, I did try chilled water from the fridge but didn't think of ice cubes - have now got some ready in the freezer for next time.... although hoping I won't need them!

doodle68 profile image
doodle68

Hi Megams :-) I find the cold water helps some times, I tried it again last night and although it didn't terminate the episode which went on all night my HR went down a bit and I was able to sleep. I gulp the water down as fast as I can . I was so relieved the episode only lasted 12 hours and not the 20 I have had of late.

Threecats profile image
Threecats in reply to doodle68

20 hours?! Goodness Doodle, I'm sorry to hear that, interesting to hear of your experience with the water though.

dunestar profile image
dunestar

I feel for you Threecats. Complete pain in the rear end. I hope you are feeling better now nsr has returned.

Threecats profile image
Threecats in reply to dunestar

I am, thanks Dunestar, just feeling washed out today but not much to do, thank goodness!

Auriculaire profile image
Auriculaire

At least you have been free nearly 5 months! Mine kicked off again on Friday after only 7 1/2 weeks which seems to be the average now since the beginning of last year. I had to wait till I converted in my sleep so not sure how long I was in afib. Hope you are feeling better. I always feel wiped out the day after and even today am not feeling like doing much.

Threecats profile image
Threecats in reply to Auriculaire

I'm sorry to hear that Auriculaire, what a pain for you. I am feeling better, thank you, although, like you, feeling knocked out today. I hope you're feeling better soon, too.

Quest4NSR profile image
Quest4NSR

Tried a high dose of Liposomal Vit C and Multi Vit ?

Threecats profile image
Threecats in reply to Quest4NSR

I've not tried that herrlip but will certainly look into it. Thank you for the suggestion.

sarniacherie profile image
sarniacherie

Thinking of you. AF/PAF is such a sneaky complaint. Creeps up from nowhere. Hope you are back to normal very soon. XXX.

Threecats profile image
Threecats in reply to sarniacherie

Thanks sarniacherie, it certainly is a sneaky one! I'm getting there, thanks x

wilsond profile image
wilsond

Don't despair. I too have made big changes since 2013. Now and then I get a breakthrough but bear with it

Threecats profile image
Threecats in reply to wilsond

Thank you Wilsond, that's encouraging to hear.

Magson profile image
Magson

"It kicked off just after midnight". Not sure if you are on Bisopropol but when I took it I could set my watch to plus minus 2.00 am. And my episodes were twice a week and lasting between 24 and 36 hours. AF is complex. After many years I still don't fully understand parts of it. But stay positive and good luck going forward.

Threecats profile image
Threecats in reply to Magson

Thanks Magson, that does touch on a concern I have, I must say. I had my second telephone consultation with the EP a couple of weeks back and he recommended I start Bisoprolol daily, 1.25mg, rather than just using it as a PiP because of my high heart rate during episodes. I did raise the point that, as my episodes have only ever started in the small hours of the night they're presumably vagal in nature, so would it still be ok to take Bisoprolol. He was rather dismissive and said it's all AF but I'm not so sure and your experience seems to back that up. May I ask what, if anything, you take instead of Bisoprolol?

Magson profile image
Magson in reply to Threecats

I dropped B in 2017 and was offered an ablation in late 2018. I was taking 1.25 mg but the side effects were awful. Many folks tolerate it and that's fine. Now I have a much improved quality of life and still take Rivoraxoban daily.

Threecats profile image
Threecats in reply to Magson

Thank you Magson, that’s very helpful to know. I’m pleased to hear your QoL is much improved now.

FancyPants54 profile image
FancyPants54

It depends on the reason you have AF I suspect, as to whether diet changes help. Nothing helped mine. I changed my diet considerably, exercised loads and lost a lot of weight. It still came to visit. It's now permanent. So I went from slim and fit, to a bit fatter and less fit, to very slim and fit and now (thanks to menopause and hypothyroidism) very fat and totally unfit and my AF just does it's own thing. Personally I think for me the hypothyroid link is huge. And so far NHS pathetic attempts to treat me have failed completely. I'm now trying self-treating with a private endo. It's a long and slow process, but I'm not giving up.

Permanent AF is much easier to live with, so I don't even think about it very often. The hypothyroidism has destroyed my life and I think and learn about that all the time. NHS really hasn't got a clue I'm afraid, if you don't respond to their one medication and one idea for dosing.

Threecats profile image
Threecats

I’m sorry to hear about your difficulties, Fancy. It sounds like you’ve had a tough time but I’m pleased to hear you’re not giving up! Good luck to you on your journey.

secondtry profile image
secondtry

Good to hear you are back in NSR. Finding the right lifestyle changes for you sometimes is quick sometimes not so, think in terms of years not months for them as a collective to prove themselves. Don't give up on them yet!

Threecats profile image
Threecats in reply to secondtry

Thank you for the encouragement, Secondtry. The thought of an ablation (or several as the EP said would probably be needed) just doesn't appeal to me at all, so that's motivation enough to keep me plugging away!

brit1 profile image
brit1

well same here, no AF for 6mths but on my birthday the other day apparently my gift to myself was an episode of AF :( Thankfully I spent the day enjoying visits with family members coming over (of course didn't mention it to them) and my episode was relatively mild and by 4pm was back in normal rhythm. I did take a beta blocker and several doses of Calm magnesium and most importantly, did some special breath work that I really believe helps get my back into rhythm.

Threecats profile image
Threecats in reply to brit1

Oh no, what a birthday present, brit1! I’m glad you were able to “keep calm and carry on” as Bob said😊 I would be very interested in hearing about your special breath work technique if you wouldn’t mind telling me more? Always keen to find out how others deal with episodes, as I’m still quite new to this particular party!Anyway belated birthday wishes to you!

brit1 profile image
brit1

I do the Dr Andrew Weil breathing which is inhale for count of 4/ hold for count of 7 and exhale for count of 8 which is not easy to start with but you can gradually accomplish it, he is on youtube. Strangely, if I call a friend and talk for awhile I have also found it to put me back in rhythm or at least slow my heart :) I don't usually mention that I am in AF and sometimes I am lucky that someone happens to call me :) As mentioned I do take 25mg metoprolol at onset and I take the Calm magnesium powder several times during the episode (I do take magnesium glycinate or taurate twice a day regularly). I also use Hawthorn herb which is great for the heart and strengthens it so I take that every day (I take a tsp of tincture in glass of water). I eat a plant based diet high in vegetables and fruit so I get plenty of potassium daily and I stay slim. I take a long brisk walk daily to keep my heart in good shape which I feel helps it cope with episodes of fast rate. I am 83yo and other than low thyroid and this stupid AF am in good health. In fact it was because a stupid dr overdosed my thyroid meds 11yrs ago which sent me into hyperthyroid and the ER that I get AF :(

Threecats profile image
Threecats in reply to brit1

Thank you for sharing all that, Brit1, it's much appreciated. As I said earlier, I'm still at the beginning of the AF learning curve, so really interested in hearing how others deal with this challenging condition. Your attitude and regime is an inspiration!

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