Nebivolol reaction

[Carolx]

Good morning you lovely lot

I’d like to know if anyone has had the same or similar experience as myself. I have ARVC, inherited gene. Life long palpitations.

Been on Diltiazem for 2 years but still have the palpitations. Not as intense or lasting as long as pre medication.

Cardiologist at St Thomas’ decided to put me on Nebivolol and Ramipril last week.

I started the Nebivolol 4 days ago. Told to hold off with the Ramipril until I’d got used to the Nebivolol.

Ended up in A&E yesterday 😔

Having terrible palpitations, pretty much constantly. My heart is extremely erratic.

Chest feels tight and like someone is sitting on me!

Had same experience with Bisoprolol last year.

I’ve emailed my cardiologist this morning on advice from the A&E doctor.

I thought these beta blockers are supposed to slow the heart rate down! I feel awful. I’m scared to move for fear of starting more palpitations.

Anyone else had similar experience?

Carol

[jeanjeannie50]

Welcome to the forum Carol. Generally members here are singing the praises of Nebivol, but I know of people on here who can't tolerate any beta blockers at all and I hope they'll respond to your post.

Your chest feeling tight and heavy doesn't sound good, what did they say about that at A&E? Did they do a blood test to rule out a heart attack?

Jean

[Carolx in reply to jeanjeannie50]

Thank you Jean for suggesting this group. Really kind of you.The doctor at A&E just advised me to talk to my cardiologist asap.

They did all the usual checks. Blood tests were all fine. Ruled out heart attack.

I’ve heard good things about Nebivolol too but it seems I just can’t tolerate beta blockers. I felt exactly the same when they put me on Bisoprolol.

No idea why it had that affect on me.

All I know is I felt dreadful.

I’m wearing a holter monitor, so all the episodes will be recorded thank god.

I’ve run out of space on the symptoms diary 😆

The mad thing is when I left A&E I had more palpitations on the way home!

Typical ay.

I’m feeling much better now. I’ve stopped the Nebivolol and gone back on the Diltiazem x

[meadfoot]

Hope you can get an answer from your medics quickly. I am with guys and st thomas too for afib and svt. Looked at your older posts and i have also had cardiac mri and cardiac ct there. Still awaiting mri results three months later.

Excellent medics not always easy to get through to them either by phone or email as is the way with nhs sadly. I trust medics there so i am confident they will sort you out. Was it their a and e you were in. Best wishes.

[Carolx in reply to meadfoot]

Thank you for your response.It wasn’t St Thomas’ A&E no.

I have had a reply from my cardiologist suggesting I stop the Nebivolol immediately and go back on the Diltiazem.

Which I have done already.

She agrees beta blockers are not an option for me.

Not sure what is to be honest.

I have no complaints regarding the cardiology team at St Thomas’. They have always been very thorough and speedy with tests and results.

My only complaint, and its a biggie, is I suffered a terrible burn whilst in the MRI scanner there.

I seem to be one of the rare ones unfortunately!

Can’t tolerate beta blockers and get burned whilst having a MRI 😫

Due another one there soon.

Fingers crossed it doesn’t explode! 😂

[meadfoot]

Yes i saw your burn photo, how odd. Did they give you any reason for it, was there an exposed wire or fault with the equipment. They will be ultra careful with you given your experience.

Pleased you have got a response from your medical team at hospital and a way forward agreed. Good luck with current treatment.

[Carolx]

It was human error. The radiologist didn’t put anything between the ecg leads and my skin. The radiation heated the metal up and burned my skin.Lucky I was only in there 7 minutes. The doctor terminated the scan as my heart rate was too high.

I was supposed to be in there an hour!

Thank god I wasn’t.

Big investigation, obviously, they’ve admitted liability.

The scanner had no faults. They had to get Siemens in to test it.

A very harrowing experience.

I’m left with a scar.

I don’t want to scare anyone obviously, this was a very rare event and I’m sure lessons have been learned.

Thank you for your kind words of support.

[ETHEL103]

Yes 2 beta blockers made it feel like someone sitting on my chest. Also hyperventilating because I couldn't seem to get enough air in. Did help with the ectopic beats and a fib which at the time I didn't know I had. Verapimil is OK but my arrhythmia is persistent but the awful ectopics have lessened greatly. Lots of trial and error where meds are concerned. Best wishes.

[Carolx in reply to ETHEL103]

Thank you for your response Ethel.I guess it’s just finding the right solution.

Other than the palpitations I have no other symptoms.

If they could just stop them from happening I’d be a very happy girl 😊

[ETHEL103]

. E too lol.