A FLUTTER MIRACLE ??: I have had a... - Atrial Fibrillati...

Atrial Fibrillation Support

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A FLUTTER MIRACLE ??

Alphakiwi profile image
11 Replies

I have had a terrible time with atypical atrial flutter for over 3 years now. it has become worse after falling from a ladder almost a year ago. Now it has been present night and day and only a couple of days a month of some respite. Good news! Last Thursday morning all symptoms dissapeared. I have checked with my Emay portable ECG and it says NO ABNORMALTIES. I still feel a little tired but this is just amazing. Puts me on a high after all that. I am on a waiting list for Pace and Ablait procedure. Has anyone else experienced this ? Will it last, will it it come back. Maybe im the recipient of a true miracle.

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Alphakiwi profile image
Alphakiwi
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11 Replies
jeanjeannie50 profile image
jeanjeannie50

That's strange isn't it and you can't help but wonder why. Way back I discovered that artificial additives, especially sweeteners hidden in food were causing my attacks. Alcohol is also a trigger, could these things be your cause too!

Enjoy your AF free time and if you discover what was the cause please let us know.

Alphakiwi profile image
Alphakiwi in reply to jeanjeannie50

Yes I am enjoying the AF free time. I guess anyone who hasnt experienced AF just wouldnt understand. I lead a pretty healthy life. No sugar no alcohol no smoking, have been a lifetime athlete. it doesnt explain why it comes and goes. looking at my diary it seems i have 2 months af and then back to fairly normal for 1 week. This time feels different. It will be interesting to see if it comes back in a week

jeanjeannie50 profile image
jeanjeannie50 in reply to Alphakiwi

Make sure you keep us informed as to how you progress, it does sound like a miracle! The life of Brian film is springing to mind. If I were you I'd be racking my brain trying to think what I'd eaten, done exercise wise, etc. If you think of something, then make sure you report it here, there might be a chance of being normal for all of we forum members

Quite often in the past, well twice actually, I've stopped taking my Flecainide and beta blockers around this time of year and had 6 months totally AF free. I tried it a third year, but had bouts of AF all the time so gave up.

I've now been in constant AF for over a year and on the whole can forget about my AF. I gave up giving it any attention and feel so much better for doing so. If I strap on my BP machine I'll become aware of my heart thumping and I hate that feeling. I think I have a very powerful mind.

Jean

AussieHeart profile image
AussieHeart in reply to jeanjeannie50

I am a newbie dx but can relate to a powerful mind. Sometimes my aFIB “shudder” symptom which wasn’t present, kicks in after me thinking about it. It’s like I conjure it up!

jeanjeannie50 profile image
jeanjeannie50 in reply to AussieHeart

Yes, my heart was once so calm I wondered what my pulse rate was. I got out of bed to get my BP machine and as I got back into bed again my heart was really thumping - if only I'd not got out in the first place I would have still been fine.

bassets profile image
bassets

I hope this will continue for you :)

McIvor profile image
McIvor

Better get a proper ECG. Some mobile devices aren't good enough to pick up AFL.

I don't know how reliable your device is.

Slow regular flutter looks like normal rate sinus rhythm on the old Kardia. At rest it feels normal in my experience.

Lead II on either Kardia is the best trace to pick up the p-waves associated with AFL

Cookie24 profile image
Cookie24

I have atypical aflutter controlled with an ablation and some propafenone and diltiazem.

Alphakiwi profile image
Alphakiwi

Its 8 days now since i went into remission from at least the debillitating effects of this. At times during the last year i felt as though I was standing on the edge of the cliff but now i feel i am standing a couple meters away from it. my emay portable ECG says each day NO Abnormalities and most importantly I feel NO abnormalities apart from the odd thump in chest with an involuntary sucking in, but i have experienced that quite a bit over the last 8 yrs. I am going to venture back out on my bike and see what happens to my heart rate under load and to see if i will stay in sinus rythm after. Meanwhile this present is so good I have getting back into those projects that you do when well with the enthusiasm it brings.

Alphakiwi profile image
Alphakiwi

Just to be more precise about the cliff edge experience let me say that the times which are few I heve been on the edge were my best days, but by far i have been more than halfway down especially at night.

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