Heart does a quick double beat - Atrial Fibrillati...

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Heart does a quick double beat

Padayn01 profile image
44 Replies

Any one so tuned in with there hearts like I am it’s quite obsessive and I am trying to get better at it, I’ve noticed my heart can do a quick double beat at times can this be due to breathing the way you breathe that controls your heart rate? Been reading a lot on heart rate variability and the way you breathe controlling your heart rate all fascinating stuff, on a separate note I’ve ordered an Apple Watch but really don’t know if it’s a good idea with my Heath anxiety but I do wanted one as I’ve increased my exercise and wanted to know how high my heart goes

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Padayn01 profile image
Padayn01
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44 Replies
jeanjeannie50 profile image
jeanjeannie50

My AF was diagnosed 15 years ago. In that time one thing that I've learnt is the more I concentrate on what my heart is doing, the worse it becomes. I can be sat with a perfect heart rate, but as soon as I think 'what's my heart doing', well off it goes out of rhythm and clonking around!

Once my AF really set in, in the early days I too was obsessed with what it was doing beat wise. Honestly, honestly and I'm sure others will confirm, give your heart rate your full attention and it will play up.

Jean

Padayn01 profile image
Padayn01 in reply tojeanjeannie50

Thanks Jean so do you try not pay attention to your heart now for me it’s when I’m sitting or lying or just relaxing is when I time into my heart the most

jeanjeannie50 profile image
jeanjeannie50 in reply toPadayn01

I would have a glass of water, sit and do some deep breathing, letting go of any tension in the heart area with each out breath. Then try and distract myself by reading a book, watching t.v. or getting a friend to come round for a chat. At least that's what I'd do now.

Back when my AF first started I'd go into a flap, sit all pathetic wondering how long I should give it before calling for help (always sent my daughter a text to let her know). I live on my own and had an awful fear of having a stroke and not being found for a long time. That's what happened to my dad, he lay on the floor in his house for 3 days before my brother broke in and found him. He died about 6 weeks later and never left hospital in that time.

Jean

Bertiedette profile image
Bertiedette in reply tojeanjeannie50

What very useful use of words.( clonking around ) love them!

jeanjeannie50 profile image
jeanjeannie50 in reply toBertiedette

To me that's exactly how it can be. Yes, it's a lovely old fashioned word.

Finvola profile image
Finvola

I had undiaagnosed AF for about six years - I ignored it, assumed it was lots of things to do with everything else except my heart and I just got on with my life, resting which I had my 'funny turns'. Once I had a diagnosis of 'heart trouble' the episodes got worse, I got worse and worried myself sick.

Jean is right - if you concentrate on the little beggar, it will play up. Jumps and bumps are normal in everyone - we AFers just notice them more. Take a deep breath and carry on Paday.

Padayn01 profile image
Padayn01 in reply toFinvola

Thank you finvola yes us AFIBBERS are just to in tune it can get unhealthy, amazing how you ingnored it for 6 years

Finvola profile image
Finvola in reply toPadayn01

I went to my GP several times, explaining that occasionally I had difficulty breathing - I didn't mention my heart as I couldn't feel anything out of the ordinary! Nothing was found on ECG's or tests - naturally as I have PAF.

If I had taken my husband's advice and gone to the doc when an episode was active, diagnosis would have been faster.

Padayn01 profile image
Padayn01 in reply toFinvola

And how are you now? How’s the AFIB now is it well controlled?

Finvola profile image
Finvola in reply toPadayn01

Yes I'm well, thank you for asking. I started Flecainide shortly after diagnosis in 2013 and have had no AF since then. Bumps and jumps, ectopics etc but the Flecainide has been my friend.

Padayn01 profile image
Padayn01 in reply toFinvola

Are you on beta blockers also?

Finvola profile image
Finvola in reply toPadayn01

Yes, Nebivolol 2.5mg - changed from Bisoprolol 2 years ago because of fatigue and breathlessness - all gone with Nebivolol.

Physalis profile image
Physalis

I think the double beat feeling is what they call ectopics. Pretty harmless but you'll be able to see them on your Apple watch ECG.

Padayn01 profile image
Padayn01 in reply toPhysalis

Thanks Physalis

Ianp66 profile image
Ianp66

Sounds like ectopics Pad as others said. I used to worry myself daft as you know, not so much now. Even after my ablation I am AF free but still get the odd bumb / tumble feeling, and weird misplaced beats. I think I probably always have had this happen all my life , just having afib for years and fast tach with bad episodes for days thrown in with hospital visits, it makes you take notice of your heart so much more to the point of obsession , where once you wouldn't ever have done before, it takes over your whole day, it did me . I used to check my BP too much, listen to heart beats lying down to sleep ( still do sometimes, hate silence), and loads of moments worrying if I felt a missed beat etc Jean gave me loads of advice and Fin and others here about relaxation, breathing and what are basically distraction techniques.

I totally know how you feel mate it's so frustrating and drags you down . I don't think 2020 has helped with the stress which is basically afibs fuel, I use loads of stuff now, from lavender oil, breathing, and magnesium etc etc, like a walking Sage of old, Wizard P 😂.

It really is state of mind mate and if you really struggle I would ask about CBT and other tools, even though I'm old school "get on with it" era, I know loads of friends who have gained help with accepting and relaxing techniques and maybe it's worth an ask of your GP, if he's not receptive, then go private, as you can't put a price on quality of life.

Padayn01 profile image
Padayn01 in reply toIanp66

Cheets pal hope you are ok mate and looking forward to Xmas pal

Padayn01 profile image
Padayn01 in reply toIanp66

I think we will always get the odd miss beat etc for life pal

Ianp66 profile image
Ianp66 in reply toPadayn01

I reckon so Pad, and always be more aware of our hearts than you would normally, just had to go get covid test, not been week since Friday, hoping its just a bit cold, roll on 2021, we got to have a better year 😉

Padayn01 profile image
Padayn01 in reply toIanp66

Ahhhhh what mate let us know the results mate hopefully just a cold pal

Ianp66 profile image
Ianp66 in reply toPadayn01

Couldn't make 2020 up could you Pad, I will mate il let you know , I drove home from test centre with a bell in front shouting "unclean" out of window 😂🛎️, the lady at the testing place said, "oh you look rough are you OK" bless her , I said yea fine, she said "I had it in July was poorly for 3 weeks and had no energy felt awful ", I said oh dear, well if I've got it I won't be able to sit about that's just a woman's perogative , "cheecky bugger" she said with a laugh "I still did my housework", I was going to say my dishwasher "the wife" still works, but though better of it, she was too nice but maybe I was going to be the first murder at a test centre . And as if by magic, just had message from the cleaner comes once a week to say she's been "ill" last week, she was due today, soooo maybe she's spread the germ love around , hopefully just a bit of cold, luckily didn't go into work last week was working on software from home for peace and quiet, so don't have to close the business. Again, one small mercy 🙏

Padayn01 profile image
Padayn01 in reply toIanp66

Quality mate lol 😂 😂😂 make sure you let us know pal the results you look after yourself pal take it easy

Fibber222 profile image
Fibber222

I agree with Jean. It’s easy to almost be obsessed with heart beats in the earlier journey with AF. I feel the difference immediately when my heart ‘takes off’ into AF. I have learned not to worry about the odd skipping or double beat. I take a few deep breaths should I notice it and it usually resolves itself. Try not to worry because you’ll know soon enough if you go into AF. As they say ‘keep calm and carry on’. Easier said than done I know but I think most of us will identify AF without a monitor. It may make you more aware of minor irregularities and worry you needlessly.

Padayn01 profile image
Padayn01 in reply toFibber222

Cheers for this much appreciated

fabjabfab profile image
fabjabfab

My Iwatch saved my life, so hopefully that should put your anxiety to bed.

I was busy with life as most mums with young children are and ignored all the signs. But when my watch alarm kept going off (you can set up what you want) and my best friend saw it. I was “made” to go doctors (best mate told husband) and within three weeks I was booked in for surgery. Boom.

I think of it as my little jiminy cricket. It will tell me if I need to know something. Record it in a fancy graph that I collect and hand to my EP when I see him. Saves loads of time.

Strangely I have never used my watch to actually tell the time 🤦‍♀️

Padayn01 profile image
Padayn01 in reply tofabjabfab

Wow what did you have the surgery for AFIB?

fabjabfab profile image
fabjabfab in reply toPadayn01

I had a PVI ablation, I think this is the Cryo one for my Afib, I then had the CTI ablation for my ATachy and ectopic beats, they then did a full EP study and discovered I had a flutter as well so while he was in there my EP zapped that as well. No idea what he did first the ice or the heat but I know I was bloody sore after.

Padayn01 profile image
Padayn01 in reply tofabjabfab

And how are you feeling now? No more episodes?

fabjabfab profile image
fabjabfab in reply toPadayn01

Well I had a couple of post operative issues (unique to me) but I can honestly say I have not been aware of any of the previous symptoms/episodes since the procedures. I am being fitted with another Zio patch on Wednesday to monitor me for two weeks so fingers crossed.

Padayn01 profile image
Padayn01 in reply tofabjabfab

May I ask how long ago was the op?

fabjabfab profile image
fabjabfab in reply toPadayn01

10th October

Padayn01 profile image
Padayn01 in reply tofabjabfab

Oh so only recent you have plenty of time to recover please keep us updated with your progress

Slidingdoors99 profile image
Slidingdoors99

I’m guilty of this too! It’s crazy to think that you have to doing something all the time because you know when you relax, sit quietly, watch TV etc you are aware of fast beats and heart shaking feelings! I’ve got my cardioversion on the 17th December! I’m so hopeful, but the cardiac department keep reminding me that I may not stay out of AFib for too long... it just depends apparently.

Padayn01 profile image
Padayn01 in reply toSlidingdoors99

What about an abalation is that an option for you?

Slidingdoors99 profile image
Slidingdoors99 in reply toPadayn01

I think that might be the next option, hopefully a while down the road!

Padayn01 profile image
Padayn01 in reply toSlidingdoors99

You not to keen in getting an abalation?

Slidingdoors99 profile image
Slidingdoors99 in reply toPadayn01

I don’t know much about them! Have you had both or either? I wasn’t offered one anyway, just a cardioversion and I’m nervous enough about that!

Padayn01 profile image
Padayn01 in reply toSlidingdoors99

I had an abalation catheter in august 2019

doodle68 profile image
doodle68

Hi Paddy 😊 I had something similar happening for days and captured it on Kardia , I paid my £5 for analysis and it came back as...

''MULTIPLE ATRIAL ECTOPICS You have multiple extra beats originating from the upper part of the heart.

ATRIAL COUPLETS Your atrial extra beats occur in pairs.''

Hardly a day passed when I didn't have P-AF, ectopic, double beats, missed beats or some strange thing and I was sick of it hence my paying to go and see an EP and for an Echo because of the C19 delay and asking to be prescribed Flecainide .

I decided to start taking the daily Flecainide when next I had an episode of P-AF ( I was getting 3 x10 hour episodes in every 10 day period for months) .

Something odd as happened, I thought I would try a couple more things from studys I have read before resorting to Flecainide (which is sitting waiting on my shelf ) and for 4 weeks I have had no P-AF and hardly any odd beats.

I fear this is a temporary reprieve and they will all come rushing back, so I don't want to say what I am 'trying out' just yet 😊

Padayn01 profile image
Padayn01 in reply todoodle68

hi doodle68 just to confirm did your Kardia device tell you that you had Multiple Atrial Ectopics?

doodle68 profile image
doodle68 in reply toPadayn01

Hi Paddy , I sent the reading to the Kardia diagnostics team and for £5 got the results sent to me. I could could see the 2 beats close together myself on the reading and as it was happening all day I wanted confirmation it was nothing to worry about.

The report also said...

''NEEDS REVIEW

Significant ECG abnormality

observed. Forward this report

to your physician for his/her

advice unless the abnormality

is already known and been

assessed/treated.''

...I told the EP about it, he made no comment.

I get the impression the medics I see think I am too 'enquiring '

Padayn01 profile image
Padayn01 in reply todoodle68

So how long do you think you will hold on the Flacinide for before retaking it? and are you still waiting for an Echo?

doodle68 profile image
doodle68 in reply toPadayn01

Hi Paddy 😊 I will take the Flecainide after the next episode of P-AF having been told the episodes are now too frequent to take it as a PIP and I should take it daily .

I was told I needed an Echo before I could be prescribed Flecainide but that I would have a long wait for one, 6+ month. So having already waited 6 months to discuss the increased frequency of episodes because the clinic was cancelled due to C19 I paid for an Echo and got one and the results in a week.

Padayn01 profile image
Padayn01 in reply todoodle68

Oh please let us know what the results say, thanks @doodle68 for your time today can i just ask do you do any exercise at all?

doodle68 profile image
doodle68 in reply toPadayn01

HI Paddy 😊 I do stretching exercises every day a sort of self taught Yoga and walk the fields with my dog a minimum of a mile x 2 . I also garden and grow vegetables, all good exercise.

I won't know for a long time if the things I am trying are working or if it is just coincidence we will see .

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