Ectopics again: Anyone get ectopics... - Atrial Fibrillati...

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Ectopics again

Padayn01 profile image
44 Replies

Anyone get ectopics when walking? Are they worse if you get them when you move rather than being still?

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Padayn01 profile image
Padayn01
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44 Replies
Padayn01 profile image
Padayn01

yorkcardiology.co.uk/ectopi...

Just answered my own question

Jalia profile image
Jalia in reply toPadayn01

Thanks! I found that interesting as one who has only recently been affected to a troublesome degree with ectopics. I've had more than my share of AF/Flutter over many years and had multiple ablations and dc cardioversions plus every drug known to man 🙄🤒

Padayn01 profile image
Padayn01 in reply toJalia

Have they recently started your ectopics?

Jalia profile image
Jalia in reply toPadayn01

Yes, in the past few weeks

Padayn01 profile image
Padayn01 in reply toJalia

Yeah they are very distracting and horrible just can’t get my head round them I’m still waiting results from my 7 day holter monitor

Jalia profile image
Jalia in reply toPadayn01

I know that they are harmless ( usually....) but they can still be very alarming. I sent a 30 second recording from my Kardia for analysis just for reassurance really and report came back with a yellow 'multiple atrial ectopics, see your physician within 24 hrs " I was back to normal by then so of course didn't bother.

Padayn01 profile image
Padayn01 in reply toJalia

How many will you get a day roughly and do you take anything that makes them slightly better

Jalia profile image
Jalia in reply toPadayn01

I wouldn't be able to count they are so numerous ! I take Bisoprolol 1.25mg as a PIP and increase as necessary

Padayn01 profile image
Padayn01 in reply toJalia

Do you get relief with the bisraprol?

Jalia profile image
Jalia in reply toPadayn01

Yes, and like Dangerousdriver stress and lack of sleep are triggers.

I also take magnesium glycinate which I consider has been instrumental in reducing my AF episodes

Coco51 profile image
Coco51 in reply toJalia

What dose of the mag glycinate do you take?

Dangerousdriver profile image
Dangerousdriver

Yep, me! Never used to but in the last 8 months when I’m walking especially if I’m carrying something like shopping I get them. I take 1.25mg Bisoprolol night and day and this helps to regulate me. Stress, lack of sleep etc will usually make mine worse. I get weeks where I get loads then nothing at all but the odd one here and there.

Padayn01 profile image
Padayn01 in reply toDangerousdriver

You take any magnesium for them ?

Dangerousdriver profile image
Dangerousdriver in reply toPadayn01

I have, I tried Mag Taurate but it doesn’t work for me. But that’s not to say it would for you. Many swear by it and say it has practically cured their symptoms.

Padayn01 profile image
Padayn01 in reply toDangerousdriver

Been on it a week notice some difference but might be placebo effect

Coco51 profile image
Coco51 in reply toPadayn01

What dose do you take?

RexH profile image
RexH in reply toDangerousdriver

Hi,

Just on ectopics, I get them almost constantly, except according to the halter monitor, when I am asleep at night.

When I go for a walk I feel the heart seems to be more steady, as if when I put it under load, it seems to help.

Had an ablation 4 years ago.

My electrical cardiologist says must keep on my pradaxa, and if I can't keep up with my wife on walks I need to go back and see him, otherwise will see him in a year.

Definitely stress is bad, and lack of sleep.

I no longer wear a Garman as only causes stress.

Padayn01 profile image
Padayn01 in reply toRexH

Is there anything you take that can make them better? How long have you been suffering with ectopics after you abalation?

RexH profile image
RexH in reply toPadayn01

I can't have beta blockers, as they make my heart go too slow. .So I only take a magnesium supplement, magnesium chelate 1000mg,

I don't know how much it actually helps, but even if a bit, it's worth having.

I have had ectopics ever since the ablation, although now much more frequent.

When I had the ablation, took over 5 hours, and the cardiologist isolated 3 short circuit, but couldn't do the 4th, said getting too tricky, so problem probually relates to that.

The positive side of things, is I can still do most things, such as walking , and we have a hobie kayak and can still use that.

Padayn01 profile image
Padayn01 in reply toRexH

So is there any other meds your on like flacinide or anything? So what’s your EP now saying another abalation or just live with them?

RexH profile image
RexH in reply toPadayn01

I am just on pradaxa, a must. Saw cardiologist last week, has said I am on a slope down hill, but seeing I am able to live reasonable well, and if I can keep up with my wife when going for walks, he will see me in a year's time.

Padayn01 profile image
Padayn01 in reply toRexH

What paradaxa? Dint think I heard of that, how far do you and your wife walk?

Rubyray profile image
Rubyray

Can you explain to me how an ectopic heart beat feels?

Padayn01 profile image
Padayn01 in reply toRubyray

Just a very unpleasant feeling that lasts for a second

Coco51 profile image
Coco51 in reply toRubyray

To me it's a lurch in my heart rhythm like I might experience if I had some bad news. I feel the extra beat like a thump, but then I feel a pause that follows the extra beat so I feel as if my heart has skipped a beat. It's very unsettling and makes me feel anxious.

Padayn01 profile image
Padayn01 in reply toCoco51

How many would you get a day?

Coco51 profile image
Coco51 in reply toPadayn01

Well sometimes a succession maybe 4 - 6 a minute for several minutes or even hours. It can feel a bit like AF. Sometimes just an odd one. Other times none that I'm aware of. After one holter monitor reading the EP said I'd had 2000 in a day.

Padayn01 profile image
Padayn01 in reply toCoco51

Do you take anything for it like magnesium

Coco51 profile image
Coco51 in reply toPadayn01

I rub magnesium oil in my skin every day. That is said to be a better way th absorb it at cellular level than tablets which people say can give you the runs. (At least that is what it says on the packaging - but who to believe? There's so much money to be made from all these supplements!)

Frankly the AF bothers me more than the ectoptics when it gets going, pounding away. I have had a run of it this week after a wasp sting. So I am considering trying Magnesium Glycinate now as recommended by Sanjay Gupta. Researching doses.

What dose of Magnesium Taurate do you take? Has it affected your digestion/ bowels?

Padayn01 profile image
Padayn01 in reply toCoco51

I take 2 tablets of magnesium taurate for about a week now by bio care, bowel movement is normal for me although stools can be quite firm

Coco51 profile image
Coco51 in reply toPadayn01

I will give it a try. Two tabs what strength?

A wasp sting has triggered a week of AF episodes for me. Apparently the histamine your body makes in reaction to a sting causes inflammation. So I am wondering if continuing Piriton antihistamine would help....

Btw FYI I am on Flecainide Bisoprolol and Apixaban for AF. Plus BP meds. Had 2 ablations after AF went 24/7 for months on end. The second worked well. But I still need the Flecainide.

Anyway the Mag Taurate sounds worth a try. Thank you.

Padayn01 profile image
Padayn01 in reply toCoco51

2 tablets is 146 mg

Padayn01 profile image
Padayn01 in reply toCoco51

Quite a low dose considering

Padayn01 profile image
Padayn01 in reply toCoco51

biocare.co.uk/magnesium-tau...

Coco51 profile image
Coco51 in reply toPadayn01

Thank you!

fifitb profile image
fifitb

It is s wobbly feeling, fluttery.

Daisee1963 profile image
Daisee1963

Hi Padayn.

I get ectopics every time I stand up, walk, eat - basically whenever I move.

I generally don’t get them when I sit completely still!!

Over the past 4 years the ectopics have come and gone- this bad episode has lasted for 8 weeks now and really getting me down.

I’ve just paid privately for a 7 day monitor in desperation to see what (if anything) is going on.

Usually by the time I get to see a cardiologist the ectopics have died down but luckily this time it was bad for the whole period including really fast irregular runs that last 20-30 mins that sometimes wake me in the night.

I have also been getting 4 and 5 ectopics in a row which feels horrible and again new with this episode.

It will be interesting to see what the report comes back with.

I’ve got a consultation with Dr Sanjay Gupta shortly.

My cardiologist wants to put me on Flecainide- I’m so worried about taking tablets!!

I started taking magnesium glycinate 3 weeks ago but not noticing much of an effect. (200mg a day)

Every day I wake up hoping they’ve gone but by the time I’ve cleaned my teeth know it’s not the case 😢

Padayn01 profile image
Padayn01 in reply toDaisee1963

Oh wow so similar to my situation everything you describe is exactly what I’m going through the only thing is I get mostly mine when at rest I also paid Dr Sanjay Gupta Privately for a 7 day holter monitor, I used to take magnesium glycinate made no difftrence but switch to mag taurate made some difference please let me know how you get on with your results, have you also got AFIB?

Padayn01 profile image
Padayn01 in reply toDaisee1963

Also why do you not want to take flacinide?

Shcldavies profile image
Shcldavies

I believe that ectopics when you start putting greater pressure on your heart can be a sign that your heart is irritated by something which may go away if you resolve the irritation (as well as what Dr Gupta says). Possibly electrolyte imbalance or too much sugar or food preservatives. The main contenders for Electrolyte imbalance are taking PPIs, low iron, low magnesium, low vitamin D and low potassium. Also irritation somewhere else in your body can also irritate your heart. No answers I am afraid but something to consider for you personal condition.

Padayn01 profile image
Padayn01 in reply toShcldavies

Do you take any stuff for electolyte imbalance?

Shcldavies profile image
Shcldavies in reply toPadayn01

I take magnesium (a mixture - but not oxide) and eat a banana a day and an avocado at least 2 times a week and I have halved my PPIs (omeprazole). I limit my sugar intake and foods that contain preservatives (thats difficult as so many do including wine and beer). I also drink more water and especially first thing in the morning before anything else. I have also found leaving 12 to 14 hours between the last meal in the evening and first the next day may help - it certainly helps with weight loss and digestion.

Shcldavies profile image
Shcldavies in reply toShcldavies

I meant to say that electrolyte imbalance can be very different for each of us but magnesium is a good start as many are deficient due to the food most eat, iron deficiency is also a common problem.

RexH profile image
RexH

Both, but I think sometimes when doing steady exercise tend to be more even, and when asleep at night perfect no ectopics at all.

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