Took the leap of faith 🀞🏻 - Atrial Fibrillati...

Atrial Fibrillation Support

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Took the leap of faith 🀞🏻

Lizie-Loo2013 profile image
β€’13 Replies

After nearly 5 weeks in Af, had a telephone consultation with specialist.

Prescribed Flecaneide 100 mg twice a day.

My fear of this medication was finally out weighed with the length of this Af episode.

Took my first dose yesterday and miracle of miracles back in sinus rhythm within 2 hours!

Still feel anxious about taking this drug, but the relief of a steady heart rate is wonderful.

Hope everyone is staying safe and well x

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Lizie-Loo2013 profile image
Lizie-Loo2013
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13 Replies
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Drounding profile image
Drounding

I'm glad to hear it's working for you. I'm also on 100mg am and pm and it's been a lifechanger for me. I (touch wood) haven't had any AF episodes for a maybe for a year now since taking it at this dosage.

Lizie-Loo2013 profile image
Lizie-Loo2013β€’ in reply toDrounding

Let’s hope this little tablet carries on working! So wish I had been brave enough to take it sooner 😊

β€’ in reply toDrounding

Snap. I was having 48 hour episodes then 24 off then start again for months but 100mg Flecainide and great.

wilsond profile image
wilsond

Works for me most of the time at 100 mg per day,and can top up if need be. No problems touch wood !

Hope you continue to he AF free xx

Finvola profile image
Finvola

Good news Lizie. Flecainide gave me back my life going on 6 years now. No AF in that time and thankful for every day that passes. Best wishes on taking it.

pottypete1 profile image
pottypete1

I have been taking Flecainide daily for nigh on 30 years. I also needing a number of ablations.

I think I have also had about 20 cardioversions but I have also used Flecainide as a pill in the pocket to revert AF to normal rhythm more times than I can count.

I cannot imagine what life would have been like without it.

Pete

jeanjeannie50 profile image
jeanjeannie50

I think it's quite a wonder drug and the only one that's ever worked for me.

Jean

Paulbounce profile image
Paulbounce

I'm also a fan of Flecaincide. No side effects and it works wonders (for me anyway although we are all different).

100 mg twice a day and I'm convinced it's the Flec keeping me in sinus. My cardio told me to use it as a PIP if I go in to afib (300 mg a day max). I have twice and soon returned to sinus after the extra boost.

Lizie wrote

"Took my first dose yesterday and miracle of miracles back in sinus rhythm within 2 hours! Still feel anxious about taking this drug, but the relief of a steady heart rate is wonderful"

It's pretty normal to feel anxious when you start a new medication. That will soon pass and it sounds like it's working for you. The anxiety about taking it will soon pass.

Great news for you - keep up the good work ;-)

Paul

tunybgur profile image
tunybgur

Normal initial dosage is 50mg twice a day.

I would try the lower dose first and see if it works ok.

Palpman profile image
Palpman

I made a shrine of empty Flecainide boxes and I pray to it every night. Am I crazy? :)

Lizie-Loo2013 profile image
Lizie-Loo2013β€’ in reply toPalpman

Hope I have nt tempted fate by being so pleased with Flec - back in Af at 114! Please let it be just a little blip! 😑

Northcote26 profile image
Northcote26

Hello any help please can you still get travel cover with AF? Just been told I have it but love traveling so sad

irene75359 profile image
irene75359β€’ in reply toNorthcote26

You have to declare your AF to the travel insurance company; this is a question that comes up a lot. If you type travel insurance in the search box, top right, and tick 'your community only' you will find lots of helpful advice and good insurance companies.

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