9 months Post Ablation Checkup - Atrial Fibrillati...

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9 months Post Ablation Checkup

Ianp66 profile image
32 Replies

Just thought I'd give a little update after a fruitful appointment and review today, and hopefully make those thinking or being indicated suitable for Ablation feel there is some hope with this horrible condition we all endure with new treatments coming available.

Today I had my 9 months checkup with Dr Stephen Murray at Freeman Hospital, and ecg and other checks carried out confirming what I already knew, frankly can't believe I can say it.... I'm AF free!, this, after enduring 5 years of paroxysmal, then permanent AF for the latter part of 2018, which literally ran a big truck through my quality of life.

My QI mapped Cryo Ablation at freeman's for fast tachy issues and horrible bouts of AF carried out in April 19 seems to have been a success, to date no problems since July 19, when I endured a bad bout of flutter needing Cardioversion abroad , now moving on with no flutter, missed, skipped beats or tachy episodes, thankfully it seems I've some respite and a level of success from the near 7 hour operation.

This is the first Christmas I can remember that I've had in a long while that I haven't been laid up, or in A@E at some point with AF or fast tachy issues , this holiday time even enduring a bout of flu over Xmas / New year which historically always initiated something AF related , again, this did give me some hope that I was winning the Afib war and a positive start for 2020.

Plan given today is I'm to stop taking Apixaban (CHADS based seemingly) , and titrate off the bisoprolol (dreading it), with the caveat to keep a store for pill in pocket should it be required for both lots of medication , so the next couple of months is going to test again the hope that it's "in its box" for now! and life can be normal for however long I can achieve.Though I'm under no illusions this can change, reading so many stories and life experiences here, who knows, I suppose any day without AF is a bonus, but positive thinking helps .

I can't sing Dr Murrays praises enough, from day one proving to be one of the most approachable, and empathetic, yet professional experts I've ever come across. He filled me with confidence and listened to my concerns from the start, and this did help me make the decision to go ahead with the new procedure he offered me last April, and the aftercare by the hospital and his team was faultless .

His parting words today when we talked about the advances in mapping procedures, and other evolving advances in the field was "watch this space", with a wry smile when I asked why , hinting there was something new on the horizon, it made me wonder if there is something more in the pipeline for AF sufferers ? Maybe there is something shining more light in the dark AF tunnel to get some hope for us, can't come to soon I'm sure we all agree .

My personal plan! just take each day as it comes , don't look too far ahead, don't expect this a miracle cure, just accept today has been a good day in AF land and a step in the right direction instead of years of feeling helpless ,losing a battle which became so debilitating, and stopped life in its tracks, in my case it's a chance to get some normality back and live again .

My favourite movie of all time, The Shawshank Redemption, has a line in it which sums the feelings of the past few years up, "I was in the path of the tornado. I just didn’t expect the storm would last as long as it has", it really says it all.

Got to know some truly nice people joining this forum, had some laughs, and some downs, had loads of support, and some telling off because of my dry humour 😂, sorry Jean 😉, but I'm hanging around in here joining the odd debate and chat, as it's just a nice bunch of reprobates in general to be around .

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Ianp66
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32 Replies
JaneFinn profile image
JaneFinn

What a wonderful post, Ian! Thank you so much. It’s so good to hear how you are, and how you got to this point. It’s an encouragement and a boost to us all - and you’ve brought a huge smile to my face :)

Really glad to hear you’re sticking around - we like your company! And we benefit from your experiences, especially those of us following behind you on the AF journey.

Best wishes for your new lease of life :)

Jane x

Ianp66 profile image
Ianp66 in reply toJaneFinn

Thanks Jane, so glad I had the support of you all so many times over these past couple of years , as the low points of which there were many, never seemed so bad when shared with people that fully understand what life with AF is about like we all do here. I hope it gives a bit support back to the group sharing my positive experiences, as I've been so fortunate to have received the same from many others when I needed guidance or just had a man size moan. Hopefully medical advances just means we all read more good news and eventually just pop in to say how good we feel AF free,

Ian x

Padayn01 profile image
Padayn01

Mate your a legend so happy for you brother and fully Derserve

Ianp66 profile image
Ianp66 in reply toPadayn01

How you going mate, settling a bit? Don't know about deserve Pad, just grateful for a decent EP and a little shelter from the storm, however long it lasts, long may it reign. Just gotta stay on track, keep fit, keep my diet under control (mostly) and keep out of shady clubs of ill repute to keep my BP down. ( joke) 😂😉

Padayn01 profile image
Padayn01 in reply toIanp66

Yeah still getting the skipped beats now and again and a few dodgy bolts but waiting for them words AF FREE to be told to me lol, but in the meantime losing weight and eating super clean

Ianp66 profile image
Ianp66 in reply toPadayn01

On track then mate, be a virtual glass ready raised when ya do 👌

Padayn01 profile image
Padayn01 in reply toIanp66

Top man

Great inspiring post.....glad I’m not the only one who gets the occasional clip round the ear from JeanJeannie........all the best!

Ianp66 profile image
Ianp66 in reply to

Thank you FJ,just an honest view, a clip and a kind Ear, good mix 😂, like you all though she has always been a good support when things got a little uncertain

UnaY66 profile image
UnaY66

Great news you are doing well me too last Monday was my check up day with Dr lord at Freeman the time he had for everyone in the waiting room was incredible my turn he came out and invited my family who were with me to come in but I decided to go in on my own to me no one can understand what it's like to have AF unless a suffier with this condition or the experts - I am Af free too since Abilation next appt is in another year and do I feel amazing to feel this well - Oh yeh x

Ianp66 profile image
Ianp66 in reply toUnaY66

Brilliant news Una, so glad for you too, nothing like good news x

UnaY66 profile image
UnaY66

Also I did see on the local news that they were trying out Radio therapy on the heart at freemans and proving a success as they dont have to go through the vein Dr Sheppard was explaining this is way forward - I've being off bisoperal and blood thinners ages now and just carry PIP and I feel much better off the tablets and you will too x

irene75359 profile image
irene75359

Ian, thank you for your update. You have summed up so eloquently what many of us feel/felt when AF hit and I think your attitude now 'Take each day as it comes' is by far the best one to have. That said, I hope you are sorted out for the foreseeable future, and I am so pleased you are sticking around to join in the various discussions and maybe give help to those who are in the same boat you were in at the beginning of your AF journey. Long live NSR!

Ianp66 profile image
Ianp66 in reply toirene75359

As you say Irene, long live NSR, any day without it, il take it 👍

That's brilliant news. Welcome to the AF free bunch that still hang around here.

Ianp66 profile image
Ianp66 in reply to

Nice club to be in mate 😉

BobD profile image
BobDVolunteer

Fab U lous!

Ianp66 profile image
Ianp66 in reply toBobD

Cheers Bob 👌

Desanthony profile image
Desanthony

That is so good to hear Ian. Thank you for sharing your experience with us. I am waiting for an ablation and to be honest when I think hard about it wonder if I am doing the right thing but your story gives me confidence. Please stick around to continue your story.

All the best

Des

Ianp66 profile image
Ianp66 in reply toDesanthony

If I had to again I wouldn't hesitate, it's no worse than the dentist under sedation, and worth it for any reduction in afib imo 👌

Tryfan profile image
Tryfan

Bedt wishes Ian. Go for it

Ianp66 profile image
Ianp66 in reply toTryfan

Thank you 👌

Eirecara profile image
Eirecara

Having just come out of a 5 day run of debilitating a.fib, it was nice to read your positive post. I am on a waiting list for an ablation sometime this year so it’s nice to hear how well your doing after yours. Long may it continue. Thank you ☘️

Ianp66 profile image
Ianp66 in reply toEirecara

I had those times know how your feeling , so demoralising when it hits like that , but I'm so glad I went for it, I had worry and concerns over having the op, and it's no easy ride recovering, but well worth it in my case, if like me you hadn't anything to lose and it was becoming to much of a restricted life living with it, then go for it 👍

Hilly22 profile image
Hilly22

Good morning Ian. What a lovely post, I’m so happy for you, and for me and for everyone 😊. And thank you for recommending Dr. Murray, I know where to go now if and when I need an ablation. Oh, and it’s very encouraging to hear about possible future advances in procedures ... I’m definitely watching that space 😊

Ianp66 profile image
Ianp66 in reply toHilly22

Hi Hilly, thank you, Dr Murray is a lovely man and good EP it seems. I think Una who also has had a successful Op at the Freeman for AF said she heard about Radiotherapy advances in this field , less invasive, seems things are moving on with the QI mapping and this news etc, about time for us all 👌.

jeanjeannie50 profile image
jeanjeannie50

So glad to hear that all has turned out well for you Ian. Don't you dare go sailing off into the sunset and leaving your AF family here, glad to see you have no plans to do that! We need people that are hopefully cured of AF to stay around and inspire and give hope to others, as you have.

Margo x

Ianp66 profile image
Ianp66 in reply tojeanjeannie50

Ah thanks Margo, AF family is exactly what this place is, highs and lows and all helping each other is what it's about , and the laughs we have on the way more than compensate for the sad stories we all see,

Ian x

7164 profile image
7164

Ian

Great post thank you.

Afib is a life changer and you have encouraged me to go for the ablation.

Do you live in the North East or just hear about the Freeman and refer yourself ?

Rod

Ianp66 profile image
Ianp66 in reply to7164

Hi Rod thank you , yes I live in the North East, but had options for London etc, though later after meeting Dr Murray and the team at Freeman decided this was the best place for me.

7164 profile image
7164 in reply toIanp66

Ian

Thank you and stay AF free

Rod

dr1813 profile image
dr1813

+1 for Dr Murray and his team at the Freeman. Hugely supportive and approachable. Nothing seemed too much trouble. 2 yrs now since my ablation. Still on some meds but AF free.

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