I have had about 5 episodes of afib now and I have been put in blood thinners and prescribed pill the pocket flecanide but I’ve never taken as I am scared of the possible side effects and thought I should have first dose with supervision ..has anyone got any experience of taking at home ..
Flecainide : I have had about 5 episodes of... - AF Association
That's great news that you were checked out properly first,that was my main concern.
Flecanide has worked very well for me as a pill in pocket. If I get an episode,Which I get less of nowadays,I wait 15-20 minutes...try drinking ice cold water etc..if it doesn't stop .100 mg flecanide and 1.5 bisoprolol straight away. Within half an hour...stops it. I take the bisoprolol as I also get Flutter at times..a type of arrthymia that does fast regular rythym instead of our crazy AFib!
I am glad to use this drug like this,prefer not to take drugs every day as I had to at the beginning of all this. However I had no side effects when I did ,so if I had to go back on,wouldn't worry too much.
Some people either dont find it works or get side effects,we are all different!
Hope this helps
My AF recurred some years back when I was only on one half-securon per day, but since being put on aditional flecainide (50mg twice a day) several years ago (and a statin and anti-coagulant) it seems to be completely under control. Years back I had several really frightening and exhausting sessions where the palpitations and racing pulse went on for hours and resulted in hospitalization. For several years now not a peep, touch wood. I trust, as the other comment mentions , that you have it prescribed under proper medical control that has examined your case and history thoroughly. Check the side effect list and monitor yourself for them and get back to your doctor if any worries.
I take Flecainide daily nothing to be frightening of.
I also take it as a PIP and it is nearly always effective returning me to NSR within a matter of hours.
You mention “blood thinners” or anticoagulants to give them the correct term (THEY DO NOT THIN THE BLOOD).
Hopefully you have been given guidance as they are very important for the avoidance of stroke.
I was prescribed regular Flecainide for 12 years. Started at 50mg twice a day. After 18 months I was on 150g twice a day. Before Flecainide I had long episodes of AF about 5 days a week. On Flecainide I had one or two episodes a year.
No side effects at all
After 12 years I was found to be in persistent asymptomatic AF. I am now in my 4th year of persistent AF. The only medication I have for it is an anticoagulant, as I had terrible but very rare side effects from beta blockers.
It's now 25 years since my first episode of AF.
The good news is that apparently Flecainide works best without side effects with Lone PAF on younger people....like you? However, I agree it would be safer to have the first dose under supervision, just in case you are a rare case which causes an issue.
The most important thing is that if you see any increase in your AF episodes you need to see your cardiologist asap (worth paying privately if you have to to get an earlier appointment) to go on regular Flec at a level that stops it dead with no more recurrences, as the more you have the more likely they will increase.
I was on Flec 100mgs per day and still had 9 episodes in a month, was offered ablation but elected to try a medium dose of 200mgs/day and that worked for 5 years. Incidentally, I wanted to use PIP but my cardiologist favours regular daily dose as the former he thinks is too much of a roller coaster for the heart, which I believe he thinks is not likely to help the condition. Hope something there helps.