Spontaneous coronary artery dissection

[jae2360]

Hi all I'm new ,two months ago I suffered a spontaneous coronary artery dissection (SCAD) resulting a heart attack has anyone else suffered this condition?

[Buffafly]

Hi, it's possible you may get more answers to this question on the British Heart Foundation forum.

[yorkcardiology]

youtu.be/XJoT_6w1w-k(Not working as expected?)

[tjwgc]

Hi. Yes, I have had 3 heart attacks as a result of SCAD back in Dec 2017/Jan 2018. There is a support group for people who have survived SCAD called BeatScad here’s a link to their website beatscad.org.uk/ where you can find lots of useful information and also sign up to the research group.

[SCADMum]

Hi jae2360 I see the post was a couple of months ago and I hope things are improving for you?

My daughter suffered from a SCAD and 3 heart attacks last November (2018) ‘post-partum' (after 2nd baby). Her journey of recovery has been turbulent to say the least and she is still ‘getting there slowly’. Finding out more about the condition has been difficult and we’ve had to overcome many challenges. Getting support has been crucial for us as we have found the ongoing symptoms from SCAD quite scary with a number of repetitive A&E visits. The lack of information and understanding from many healthcare professionals can be challenging at times but there is a growing community of SCAD patients and help is available from the following:

Beat SCAD

beatscad.org.uk/

[e-mail]

facebook.com/beatscaduk

Youtube: bit.ly/1TXhiLV

SCAD research

Leicester Biomedical Research Centre

scad.lcbru.le.ac.uk

European Society of Cardiology SCAD Position Paper bit.ly/2FkRKmJ

See beatscad.org.uk/useful-links for worldwide research

Facebook groups (both for patients and for families – you can also follow ‘Beatscad.org.uk’ on FB)

SCAD – UK & Ireland Survivors

For SCAD patients bit.ly/1Mizg9a

SCAD

Family and Friends Support Group bit.ly/1TMQDwc

Financial help is limiting although after nearly 8 months we finally got some help from a PIP but it wasn't easy. Limited from the condition with side effects and damage to her heart my daughter eventually got a blue badge after assessments. I don’t know your circumstances but I would encourage patients to keep and copy any notes, reports or letters from the hospital, including discharge notes and medication to support your claims as evidence. This is not something you would normally consider when concentrating on your recovery and emergencies but has been vital in not only providing evidence but also sharing medical information to emergency servcies and healthcare professionals.

Good luck and all the best I hope you recover well.

[Greenlavender]

You definitely aren't alone. Looks like you've been given the contacts especially the beat scad and def sign up with Leicester hospital for the research. I'm a year on. Still trying to get my head around it. I was 57. Have my NHS appt at Leicester in November. Managed to get a referral from my doctor - wanted to see the experts. The meds take a bit of getting used to but hopefully you'll find the correct doses. Best of luck with your recovery!

[Upe_]

Hello! I had SCAD MI in November 2018. I was surprised how relatively little about it is on BHF forums but then as kind people already listed, there are several forums dedicated to support and information just about that. I enrolled to contribute to related virtual research projects with Leicester (Dr Adlam’s) team and Mayo clinic (Dr Haye’s team in USA), both of which have plenty of resource, including articles, links to support groups, newsletters and sometimes walks! I haven’t been to any event or met anyone in person yet but I never felt alone or scared. I may be wrong but I treat SCAD as a health event rather than ongoing illness unless proven otherwise.

You’re welcome to message me if you want to have a chat anytime. I live in Southwest England; where are you?