Hello😊: I am happy to find a place to... - Atrial Fibrillati...

Atrial Fibrillation Support

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Hello😊

Lunchlady64 profile image
6 Replies

I am happy to find a place to share this journey ! I think it is very frustrating at times and not always easy for our partners to understand the emotional ups and downs that can happen. I had a catheter Abation March 2nd off drugs April 2 nd hopefully of 2 years of grace but I just had a episode jumped right up to 160. So disappointing I want to cry !,

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Lunchlady64 profile image
Lunchlady64
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6 Replies
Kaz747 profile image
Kaz747

Hi Lunchlady64 and welcome to the forum 👋

wilsond profile image
wilsond

Hello! Sorry to hear your disappointment,hope things have settled down now.It can be a lonely winding road coping with AF ! Xx

jennydog profile image
jennydog

" I am happy to find a place to share this journey."

That is a lovely way to describe this site. It's a very accurate description. Your personal experience makes you an AF expert because you understand its debilitating effects. Sharing is a great comfort.

Do not be too pessimistic about your recent episode. It might be a one-off but you may get more. Post- ablation I have mild AF which I can control with flecainide as a pip. You will learn avoidance techniques ( for me, it's stress ) but the uncertainty never goes away. That' s the nature of the beast!

CDreamer profile image
CDreamer

Hello and welcome. It certainly is enough to make you cry and there is nothing wrong in shedding a tear or two if it helps.

Unfortunately we build up our hopes that ablation will work and eliminate the AF and sometimes does and sometimes it doesn’t. It is disappointing but having had 2 ablations after which I was AF free for over 3 years, AF returned. Episodes now are now more spasmodic, less symptomatic and don’t usually last as long.

Yes, you have found a place to cry where people understand because many of us have been exactly where you are now and can cry with you.

Best wishes CD.

I identify with your comment about emotional ups and downs. It took me a long time to get on top of the downs. Understanding that anxiety about episodes of AF just made my AF worse was a big step forward. My wife’s robust approach to my negative mindset was in retrospect actually quite helpful 🙂

Rubymurray25 profile image
Rubymurray25

Hi, for me it is indeed the ability to share with people in the same position and whilst my wife is supportive she has her own health issues and I hate her worrying about me as well. I have learnt so much from this page which has helped me handle things much better. Keep sharing when the time is right as there are so many eyes waiting to help with a particular issue. Take care.

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