I have posted on this forum a couple of times and spent many hours reading through the posts.
I’m struggling at the moment with my heart and find myself taking great comfort from the information and advice given here and would like to be more involved than just lurking in the shadows 😊
I have had PSVT typical rates of 240bpm lasting from 2 to 28 hours from the age of 17, with maybe 2 to 6 episodes a year,misdiagnosed as chronic anxiety for 15 years even though it was captured a few times on an ecg reading?!?! I refused anxiety meds so was labelled as a resistant patient.
At the age of 32 I had my first episode of atrial fibrillation, called an ambulance immediately as it felt so different to anything I had experienced before. Converted with IV Flecainide after 19 hours and sent home with a diagnosis and prescription. Had an annual appointment to see a cardiologist who repeatedly said your heart is fine, you don’t have atrial fibrillation the ecg is clear. Eventually he signed me off saying that after lots of investigation( a holter monitor and echo) I didn’t need to be seen again.
I have managed, sometimes quite badly, to cope with the random bouts of PAF and SVT I now get them more frequently and they are influenced by my menstruated cycle and eating.
In December 2018 I had a very bad episode that led to me collapsing at work and an ambulance being called. My rate was 130 and seemed regular but I have never felt so unwell. The paramedic told me to calm down because I was having a panic attack. 6 hours later in resus after a rate of 250 when moving any part of my body the doctor finally told me I was in atrial flutter. This arrhythmia was the worst thing I’ve ever felt, even talking would make my heart rate soar. Eventually I converted after 8 hours and another flecainide. I spent 5 days in CCU in NSR but with episodes of tachycardia especially in the morning and after eating.
I haven’t felt well since December and my heart just hasn’t settled. The rate goes up and down for no reason and eating has become a real challenge because it makes my heart race so much and I burp and have a feeling of faint after every meal. I have been unable to work and just feel like my life has ground to a halt.
I am seeing an EP in Sheffield for the first time on 1st March and I’m trying to get my doctor to investigate my tummy problems that have become so difficult to live with. He has given me omeprazole and told me that he thinks my tummy problems are anxiety?!?!?!
I’m sorry this is so long, i hope someone manages to wade through it all!
I hope you are having a nice Saturday morning despite storm Erik!