Panicing again: Ok sorry but I’m... - Atrial Fibrillati...

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Panicing again

Lotty321 profile image
24 Replies

Ok sorry but I’m panicing again, I think I need to stop googling!! I was just starting to relax that atrial flutter won’t kill me but internet says if you have atrial flutter 1:1 then you go in to cardiac arrest??! Is that right, I’m really freaking out now x

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Lotty321 profile image
Lotty321
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24 Replies
jeanjeannie50 profile image
jeanjeannie50

Lotty, Lotty, Lotty! - Now if you really want to scare yourself look up how many people are killed in car accidents, die from cancer etc, etc. You are no more likely to have a cardiac arrest with atrial flutter, than a lot of other ways. I've had flutter for 13 years and am still here and today feeling really fit and well. Stop searching or you will will find all sorts of things on the internet that will scare you.

Big hug - no need for this worry.

Jean

Lotty321 profile image
Lotty321 in reply tojeanjeannie50

Jean what treatment do you take for yours and how often do you get episodes and how long to they last? X

jeanjeannie50 profile image
jeanjeannie50 in reply toLotty321

Along with AF I've had it lasting months, while awaiting cardioversions. My attacks used to happen every 4-6 weeks. Since my third ablation 2 years ago things have got a lot better. Though immediately after that ablation the very next day I went into the most draining flutter and couldn't leave hospital. I've been taking 2 x 100mg Flecainide and 2 x 12.5mg Metoprolol daily. Over the last few weeks I've stopped those medications as I'd had 8 months in constant mild AF and felt they weren't helping, since then I've been in normal sinus rhythm. I won't hesitate to go back on my meds should I need to.

PAF and flutter are scary and at times I felt I would surely die with the way my heart bounced around in my chest. I worried for many years, but I now realise how unnecessary all that worry was and as someone experienced with it just wanted to give you some reassurance.

Are you in flutter now?

Jean

Lotty321 profile image
Lotty321 in reply tojeanjeannie50

No not at the moment, had the one episode that lasted over 2 hours and then went back to normal rhythm on its own not had anything else since then (not yet)!! X

jeanjeannie50 profile image
jeanjeannie50 in reply toLotty321

Only one attack ooh I envy you. Lets hope you never have any more .

Good luck and always here to help should you need it.

Jean

WendyWu20 profile image
WendyWu20 in reply tojeanjeannie50

Can I ask, how do the two types of arrythmias feel different? I mean, you get a sensation in your heart that isn't normal, and how do you know whether it's a flutter or AF? Just curious :o) Thanks, W.

jeanjeannie50 profile image
jeanjeannie50 in reply toWendyWu20

Hi Wendy

Flutter is a fast even beat. AF an irregular one.

Jean

WendyWu20 profile image
WendyWu20 in reply tojeanjeannie50

Thank you :o)

bmand profile image
bmand

I have two types of a flutter, aflutter and atypical flutter. I had an ablation for a flutter in May. It was an hour long procedure and worked very well. At the time my pulse was consistent at 140-150 bpm. The ablation for a flutter solved that problem and it was an about an hours procedure. After my ablation for aflutter. Two things happened my atypical flutter raised my pulse back in the 150 range. I went to the hospital 2 or three times and with cardioversion and meds they brought my heart rate down. In Addition my afib started acting up. Since this was happened almost weekly the Doctor recommended a ablation for my afib. As far as the atypical flutter they said they would attempt to fix it but it's a guess on their part as to where it might be located. Anyway, if you only have a flutter you should consider an ablation just for that. It might take care of your problem. Good luck

Vonnieruth profile image
Vonnieruth

Lotty stop panicking I thought I was bad In reality every one is at risk of cardiac arrest It's called life !! It's the worse sinario that may happen if not treated Stroke or heart attack if left untreated You are getting treated Are you waiting for appointment to come through If so phone appointments at your hospital and push them for a date Be honest tell them the anxiety and stress this is causing you in your everyday life Go to your doctor and ask if you can be referred for therapy for anxiety I did mine on line and it does help believe me Go on play store on phone and down load app called Afib companion and try it Also try app called relaxing music and make a play list

Lotty321 profile image
Lotty321 in reply toVonnieruth

My referral is in September!! I’m going to refer myself online for the anxiety because it’s definitely getting the better of me x

Vonnieruth profile image
Vonnieruth in reply toLotty321

Keep phoning Appointment department to see if there are any cancellations I did

Vonnieruth profile image
Vonnieruth

Just remember you were told it went through as none urgent Like I was I waited twelve weeks It's a good thing in a way Lotty If it was urgent they would push you in

Lotty ...i would say keep away from the internet! I've had all this going on for 25 years , terrible episodes of A flutter, 18 electrical cardioversions, 3 ablations and on the list for no 4. Still here and grateful to wake up each day ! (?) I really haven't got time to worry about AF anymore ( might change my mind when I get my ablation date though😁)

Sandra

Lotty321 profile image
Lotty321

I think it’s time for a change for me! I’ve wanted to move down to the coast for years but haven’t done anything about it but I think now it’s time for a different pace of life and to do what I want for a change x

seasider18 profile image
seasider18 in reply toLotty321

Hospitals in cities are better than in coastal towns. In Sussex it depends which day you have the stroke or heart attack as to where you are sent. Today Brighton, tomorrow Eastbourne and the next day Hastings.

Rubymurray25 profile image
Rubymurray25 in reply toLotty321

If it reduces your anxiety I would be the best thing possible! It has taken me ages to realise the more anxious I get whilst in AF the longer it lasts,now through breathing I am so much more in control, but it takes time and as everyone always says " We are all so different"! Good luck and take care.

BobD profile image
BobDVolunteer

Not even going to bother answering that Lotty. Just sending calming cyber hugs ((((( ))))))

Lotty321 profile image
Lotty321 in reply toBobD

Is that because my comment is right about 1:1?!!! X

BobD profile image
BobDVolunteer in reply toLotty321

No it s because you are wasting time reading too much rubbish on internet.

Lotty321 profile image
Lotty321 in reply toBobD

Fair enough

You sound just like me when i found out.take it easy u will b fine.oh and get off google lol

Morzine profile image
Morzine

You sound like me I was on the internet all the time......I now only read this forum as I feel I get better answers for being a newbie at this.......I don’t know what 1:1 is. I know how scared you are lotty and I feel its unfair to wait so long. But you’ve had it once and it went back in it’s own......as for me being a newbie I think that sounds very positive....mine kept happening.....but now on tablets I seem normal. I was wondering everyone would it help if lotty got a cheap pulse meter so she could check her pulse daily and get reassurance, I bought one and do that and get reassurance when I see it in the 50 and 60’s. What does everyone think?.....

Quilafizz profile image
Quilafizz

Only Google what's on sale.

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