Thanks to all of the poeple on here for making me feel so welcome. After my last post where after 5 years of paraxosimal Af culminating in the past 5 weeks in and out of hospitial, frustrated and worn out, finally some light at the end of the tunnel.
I contacted Dr Steven Murray at Freeman Newcastle after researching and asking as much as I could on recommendation and reputation on the best course of action , and got a super quick appointment within a week after contacting him direct . Went today and after quick ecg confirmed still in af, he's said I'm a great candidate for an ablation and he's pretty condifident he can help. Got to say what a nice chap he is , very open and honest. Now on the waiting list and also make myself available for any cancellation just so ready for this after this latest bout of af . He says cryo is less likely to cause other damage to the heart as other methods can, wonder what others views on this are? , sounded informed.
Waiting game now or pay private see what's offered first before deciding.
Discussed magnesium etc and he said he was an Advocate of anything that helps keep the beast calm, and in chatting he had heard of the magnesium taurate brand I use helping fellow af sufferers, not one negative thing I could say he made during our long conversation .
Just pleased I found a good ep who seems caring, not arrogant and really does inspire confidence, and thanks again to all who replied to my dark weeks I've had hopefully light at the end of the tunnel.
Hi,Dr.Murray is my EP. Yes he is a really lovely person and makes you feel that he will do all he can to help with the AF problem. I have had an ablation for Atrial flutter performed by him and his team at the Freeman and the care I received was really good.
Just to clarify the Cryo V RF situation. Cryo is easier and faster for both EP and patent BUT it can only deal with any rogue signals coming from the four pulmonary veins , There are also limitations in that some people do not have conveniently similar veins. For example some may be conjoined or larger. It is therefore quite common in such circumstances for a follow up RF ablation to be needed to deal with any areas which the balloon could not. Hope that clarifies things.
I had a cryo ablation 29th January at Royal Stoke. Just coming off the last of the meds now so hopefully it will hold . Been off the flecainide for a month.
We can go through nightmare times and feel that AF has closed doors. Sometimes the first meeting with one's EP can see the light dawn, with the prospect of making progress, opening those doors again and doing things that seemed to have become impossible.
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Any hope is worth looking forward to and like you say, speaking to Dr Murray has lifted me out of the pit a little of nothing else given some hope.
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Well, do be encouraged, because an EP's expertise really moves some of us forward.
Like you my paraxosimal Af got increasingly worse and I was in and out of A&E after suffering 5 days out of 7 in AF, I was completely worn out, after being on the waiting list for a year my ablation was on the 2nd of May, I have not felt this well for years I have had one short Af episode for an hour on day 6 but nothing since, nice steady rhythm between 65 to 75 bpm.
I consider myself lucky that things are going so well at the moment and I feel so much better.
Fantastic to hear success stories like this , and your symptoms sound very similar to me what I've experienced , hoping for a similar outcome and hopefully get some quality of life back,thanks for taking time to reply
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