Are you a TOF patient? If so I would love to hear your story.

I'm a TOF patient and I'm recently going through a crap time with my body. It's so bloody tired every day.

Is there anyone else like this on here? I would love to know.

I also have afib with mine so it doesn't help with my tiredness. Plus my heart rate is low so it all adds up.

I was just wondering if any other TOF patients have afib or major tiredness?

I'm 36 so being this drained isn't really great.

Thanks, Sarah x

[CDreamer]

Please explain TOF? I have a neuromuscular condition and fatigue is a symptom of both, as it is for many other conditions. Rest is the only answer for me, boring but only effective strategy.

Best wishes CD

[Finvola]

Hi Sarah - there is a post by Janco further down the page on TOF - this may be of help to you.