Nobody ever told me.

[BobD]

You may recall that a week or so ago I asked for input as above with a view to trying to put together a Patient's Guide to Recovery from Ablation. Well I received very many suggestions with thanks but some were about things they wished they had know BEFORE the ablation. Flapjack was kind enough to take on the task of collating those issues into a manageable paper and we each critiqued the work of the other.

I will now be forwarding the two papers to a higher authority when it will start the long journey to approval by the governing bodies. Please don't expect anything to appear any time soon as all this takes ages even if my first drafts are accepted but we are trying.

Thank you all again for your input which is greatly appreciated.

Bob

[Luludean]

Good work! Let us hope it helps gets intuitive and efficient help for ablation Guinea pigs,

[Hidden]

Good work!

I'm intrigued. Who are the higher beings and celestial bodies?

[BobD Volunteer in reply to Hidden]

The people who hold the hoops and such that have to be jumped through to publish anything vaguely medical.

[pattiannj]

Thank you Bob for collecting these comments & getting them into print

[Afibsimon]

Thanks Bob and Flapjack.

[irene75359]

Thank you both so much and I hope that your copy makes it into print without too much editing. I will wait with interest!

[Kiwi2]

Thanks Bob

[Jefferson57]

This is a significant endeavour. There is the real potential to abate patient concerns as well as educate the medical community from the view of the subject.

I am at the base of the knowledge mountain and looking up as I have had my diagnosis now for 12 days, 21 hours and 13 minutes. Much to learn. This seems to be the place. I was expecting to be dead before Christmas but the more I learn, the lesser my fears.

Take a bow Bob and Flapjack.

[Bob_B]

Thanks Bob!

[GrannyE]

I think my post ablation problems stemmed from the stone of liquid left in my abdomen and lungs and the fact that I was discharged from the Royal Brompton a bit too soon. The care there otherwise was brilliant. I also had a pain all the way down the oesophagus from the tube they put down, and a discharge from the groin which lasted quite a while and became infected. Still have a bit of a lump there but not giving me any bother now. No-one told me that this might happen. It would have been useful to have been warned what to expect. Thank you Bob for putting it together for us.

[BobD Volunteer in reply to GrannyE]

In fairness we have not included such rare events . To do so would likely put many people off this valuable procedure. We have endeavoured to list the likely things to expect.

[etheral in reply to BobD]

As an

Emergency Dept doc who has seen many of these complications s

and personally suffered from so called rare complications I would think it is reasonable to include pleural effusions,pericardial effusion and infections catheter side insertions..groin.. are possible but unlikely complications. Patients should know even unlikely risks and decide for themselves Thank you..

[BobD Volunteer in reply to etheral]

These should be explained prior to the procedure. WE are trying to give patients a helpful guide so that when they have migraine aura for example they don't think they are having a stroke.

[MJ17 in reply to BobD]

Thank you....migraine aura was never mentioned as a side effect and it took over a month for them to subside. My EP still insists that he knows nothing about this as a side effect....

[BobD Volunteer in reply to MJ17]

Quite. That is why we are trying to get this published.