Hi everyone, I haven’t written in a long time, just trying to cope as we all do. But I am panicking at the moment. I suffer from P-Af and for the last year I have had some really scary experiences when I come out of it. From shaking body, flashing lights and weird sensations in my head. Any advice please. Thank you Rienij70
Panick: Hi everyone, I haven’t written... - Atrial Fibrillati...
Panick
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Rienij70
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BobDVolunteer
If you are suffering in this way why not speak to your doctor (cardiologist)? Sounds unusual to me.
Hello Bob, I know I keep promising myself to make a doctors appointment. Just never get around to it. Haven’t seen a GP for 18 months, since our GP left the practice. I am a carer to my husband, who has vascular dementia. And time runs away with me. I was hoping you or someone had the same happening to them. Thank you for replying. Kind regards Rienij
Please make the time. You need to be fit and well to cope with your caring duties. W are supportive but not medically trained and you MUST get proper advice.
Hi Bob as per normal, it is now Wednesday and I still haven’t made an appointment. But someone is looking out for me, have to go for INR test anyway. But had a letter in the post calling me up for a Doppler test on the 12 the of December. Thought might take that opportunity to get myself sorted. It is at the doctors practice with the practice nurse. So I recon that could sort it. Rienij
I sometimes get this shaking like a tremble, and this sensation like something is moving under my scalp it is a funny feeling. I have fainted a couple of times also when I was out with the dog, both times were on a Saturday morning.
Keith
It's hard to find time when you are a carer but you need to look after yourself in order to look after your husband. You need to discuss the shaking with your dr and ask for a referral to a cardiologist/Ep as they will know if other medication is needed
A couple of times I have had a strange sensation when reverting to normal rhythm almost like a fizzy sensation & lose myself for a few seconds. Cardiologist seemed to think it was a drop in BP as rate changes. It is scary
Hi Pattiannj, I will make an appointment, it is scary when it happens. I am currently still in Af. So fingers crossed. Rienij
Are you staying in afib, persistent??? If I am in persistent afib, I go to ER and they cardiovert me if my INR is in range. If not, they do a TEE to check for any blood clots, then do a cardioversion once the INR is in range 2-3. I cannot function in afib very well at all.
Hi spoiler, I tend to be in a fib for about 24 to 36 hours at the time. I tend to hope that because I am on warfarine I won’t get any clots. I only go for help if I get chest pains and feel dizzy and nauseous. It is difficult to know. Last time about 3 years ago I was in A&E they gave me some pills, than my blood pressure went through the floor. I asked could I do something like that at home, and they said definitely not. Rienij
I guess it depends on your rate and how you feel when in afib, mine will not revert to NSR without intervention, cardioversion. My rate goes way too high for me to function, I cannot imagine being a caregiver if I was in afib. Some people do not have high heart rates during afib, but I do. Please get plenty of rest, stay hydrated and get medical help as soon as possible.
Hi Reinij, I'm so sorry that hear about your scary experiences - and I know that caring for your husband with dementia must take all your energy (physical and emotional) and time. But I'm so glad you're going to get it checked out.
One thought is that you could get fixed up with a loop recorder to see what happens 'electrically' when you come out of AF. (I'm assuming it happens too suddenly for something like a hand held Kardia to be any use?
Of course all sorts of things can happen to our body during the rhythm shift out of AF that wouldn't show up on that (e.g. Blood pressure drop, oxygen changes etc). And they can make us feel odd - and can have an impact on neurological symptoms. Try not to worry (easier said than done i know!) and definitely get it checked out as a priority 
You're not alone - please do let us know how you get on x
This used to happen to me. In my case a 7 day Holter monitor showed it to be caused by a pause in the heartbeat between AF finishing and normal rhythm resuming. I had a pacemaker fitted 3 years ago which sorted the problem
My GP referred me to an EP (electrophysiologist) who authorised the Holter monitor. I would suggest that you make an appointment to see your GP and request a referral to an EP
When I revert to NSR I get a black mist wash over me and feel very dizzy like I am going to pass out but have not done so yet and my heart rate drops right down. Told Cardiologist about this but he did not seem worried.
When this shaking happened to me in A&E, the nurse said it was the body trying to get a regular beat back in the heart
[quote''The nurse said it was the body trying to get a regular beat back in the heart'']
Hi Grannycake that's interesting, I have the shaking all the time I am having a bad episode (usually for about 8 hours) not just when I am going back into NSR.
I thought it was due to the high heart rate and see sawing blood pressure causing a kind of shock to my body.
Thank you makes sense but unnerving.
I had a very similar episode in hospital for PAF, I became dizzy and thought I was going to faint, colour drained from my face and I had to lie down. Discovered through the monitor I was on this was my heart going back into sinus rhythm, very scary.
Yes it is scary. Hope you are well. It sounds as if quite a few people have experienced it. Thank you for your input.😊
