So greatful to you all : Hi everyone... - Atrial Fibrillati...

Atrial Fibrillation Support

31,213 members36,854 posts

So greatful to you all

Redders profile image
16 Replies

Hi everyone, just like to say what a great site this is. All your replies have lifted my spirits no end. At 71yrs old (but so much younger lol ) it's changed my look on AF. Back to work tomorrow.

Written by
Redders profile image
Redders
To view profiles and participate in discussions please or .
16 Replies
BobD profile image
BobDVolunteer

Happy we could help. Take it easy now. Well done.

Barry24 profile image
Barry24

Hi Redders,

Welcome, and take it easy now as BobD has already said.

Kind Regards

Barry

SRMGrandma profile image
SRMGrandmaVolunteer

Good for you! Wishing you a happy heart as you go back to work!

Trilby8 profile image
Trilby8

Hi Redders - you must be delighted you've done so well after your 2nd Ablation ! I'm now on Guy Haywoods waiting list for my first Cryoablation for PAF - I'm terrified to say the least - best wishes Cathy

Redders profile image
Redders in reply to Trilby8

Hi Cathy, don't be too worried about your ablation if you have full anaesthetic you don't know anything about it. How long have you been on the list cos it took 9 months for me to be done.

Trilby8 profile image
Trilby8

I only saw him 10 days ago he said it would be 9-12 months and would be sedation for Cryoablation urghh !! He did say he wants me to get started on anticoagulants for a month before but to start asap in case he could get me in sooner. Did you have Cryoablation ? Cathy

Redders profile image
Redders in reply to Trilby8

To be honest I don't know. Just a catheter ablation where they scar around the heart. For someone who has had AF for nearly 20 years I'm still not sure of all the technical / medical terms. The ablation you're having. Is that where they freeze around the heart ?

PeterWh profile image
PeterWh in reply to Trilby8

I would get started ASAP for two reasons. Firstly you will be anticoagulated sooner which in my view is important. Secondly the taking of warfarin may not be so easy - it is for 99% of people but I was amongst the 1% who had problems. At the end of Nov 14 it was agreed that I would go on ablation list. Told to start warfarin 6 weeks before date when I got the letter giving me ablation date. I contacted GP straight away to get the referral to the Anticoagulation service for this area (covers 4 hospitals) for both the reasons and also so I could be in line for a cancellation. Saw lead Anticoagulation nurse about 7 to 10 days later and he suggested starting the first day back after the new year because of needing 2 or 3 tests a week initially. Started on Mon 4th Jan. However INR went all over the place. After about 4 weeks told to stop all green vegetables and salads but still had big swings. Only given 2.5 weeks notice of ablation for the end of March. I certainly did not have the required 4 weeks in range (2.5 to 3.5). On the morning of the ablation was only 2.2. Fortunately EP was pragmatic and realistic so gave heparin boost and went ahead with ablation because as he said I could still be having problems in 3 or 6 months time. BTW quite separately it was found from genetic testing that I had some intolerance to warfarin.

The moral of the story is start early because you just don't know!!!!

Trilby8 profile image
Trilby8 in reply to PeterWh

Hi PeterWh - the consultant wants me to be started on Apaxiban one of the newer anticoagulants - I was on Warfarin years ago following a pulmonary embolism at that time I didn't have any problems with it. At least with the more recent drugs you don't need yo have blood monitoring done. Cathy

Trilby8 profile image
Trilby8

Yes Redders it's the freeze procedure which he said is quicker therefore more suitable for sedation

Redders profile image
Redders in reply to Trilby8

Ask for a double dose of sadation.

Trilby8 profile image
Trilby8

Don't you worry I will - Dr Haywood promised they'd give me Valium before they gave any sedation when I told him I was very anxious about the procedure !

Redders profile image
Redders in reply to Trilby8

Oh that's good, you won't know much about it then. Doctor Hayward is a good guy when you can get to see him. do you live in Plymouth ?

Trilby8 profile image
Trilby8

No I live near Truro but did live near Liskeard until 5 years ago so was aware of Dr.Haywood at Derriford and his good reputation. I have seen two cardiologists in Truro very nice but was told they did very few if any ablations - you definitely need to be operated on by an experienced consultant don't you ?! Cathy

Redders profile image
Redders

Definitely, and I think dr Hayward is one of the best. Southampton is another hospital I would trust. I think dr Hayward was trained there

Trilby8 profile image
Trilby8

Thanks Redders that really reassuring to know

You may also like...

Great to see you all today

organising a lovely afternoon- it was great to see everyone and the food was great- will take my...

Thank you all so much!

I just wanted to say thank you to everyone and there person who invented this news group. Two...

I survived!! Thank you all so much xxx

What a lovely bunch you all are!! Thanks so much – kept reading your replies last night and they did

So what would you do?

stress. Since then, I have had a further 2 episodes for no apparent reason. All episodes were...

Thank you - all of you lovely people

I have been well and truly supported by you all as I approach my catheter ablation scheduled for...