Me again: Hi all I'm having a really... - Atrial Fibrillati...

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Me again

abihel profile image
13 Replies

Hi all I'm having a really bad time of it at the moment and feel I can get it of my chest on here....I've had two ablations the first one last 4 months it was bliss I felt just like my old self. I went back in on the 1st march  and it was unsuccessful my EP who I saw for a whole 2minutes after the ablation told me "I don't think there will be a third, took me off bisoprolol there and then and put me on amiodarone 200mg. I went back in 2 weeks ago for a cardio version but unfortunately they could not get me back in sinus rhythm.....I am feeling very down I honestly feel like giving up...I'm tired all the time, my hearts pounding, jumping all over the place at around 110bpm I'm worse than I was before the second ablation. I have also got like a rising feeling going up my neck into my throat it's horrible I feel like I'm going to choke. They now want to do an internal cardio version?? Feeling very worried and scared. Thanks for reading and sorry for moaning I know there is a lot of people worse of than me but it really is getting me down I'm 53 and desperate.

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abihel
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13 Replies
cbsrbpm profile image
cbsrbpm

I know how you feel abihel and sorry you are so down. I am in much the same position after my first ablation, it too lasted 4.5 months and was lovely while it lasted. I have been awake all night with HR 130 and pounding. I am due a cardioversion today and hoping they can get me back in rhythm. Sometimes it feels like there is no end to this road doesn't it, but I am sure sure they will sort you out eventually, just hang on in there ((hugs)).

B🐝

Rellim296 profile image
Rellim296 in reply tocbsrbpm

Hope it will go well today because your tide should be turning too.

caznear68 profile image
caznear68 in reply tocbsrbpm

very good luck to you regarding your cardioversion,let us know how you get on.

abihel profile image
abihel in reply tocbsrbpm

Thank you and good luck!!

Rellim296 profile image
Rellim296

I'm not surprised you're feeling down, and don't feel bad for sharing this with us.  I'm sure we are all hoping the tide will turn for you very soon.  Hold on to some optimism because, scary though it might sound, the cardioversion could put you right and you'll get back on track and be able to put this unwelcome episode behind you.

Please keep us in touch with how you're doing because it isn't moaning and we all know what it's like to be so bothered by what our hearts get up to.

abihel profile image
abihel in reply toRellim296

Thank you so much for your kind words...I do try and keep upbeat but just sometimes... you know the feeling!  Thanks again xx

jeanjeannie50 profile image
jeanjeannie50

Hi Abi - Like you I have had two unsuccessful ablations and have been told I can't have any more. I felt really down about it all too and wondered if I wanted to live feeling so ill for the rest of my life. Then I was given Flecainide as a pill in the pocket and after taking this my attacks of AF would soon stop. I now take Flec every day and I can honestly say I haven't felt this well for years, it did take a while for my body to get used to it. So don't give up hope and I know that I would go for the internal cardioversion.

Big healing hug.

Jean x

abihel profile image
abihel in reply tojeanjeannie50

Thank you so much....feeling a bit better again today..not my heart....my well being...I'm ready for whatever just wish it would hurry up xx

caznear68 profile image
caznear68

Hi Abi, please don't give up there is light at the end of the tunnel! I agree with jeanjeannie50 flecainide may help you! Try some deep  breathing as well this helps to calm you. Understand all you say though! Don't worry about venting your concerns to us all please.  keep in touch and good luck.

abihel profile image
abihel in reply tocaznear68

Thank you for your reply...I'm willing to try anything. keep well xxx

PhyllisK profile image
PhyllisK

I feel really sad that you are having such a difficult time with your wretched A.F. I know that there will be lots of encouraging replies to your plight, from our fabulous AF friends but, in the meantime  please let me send you a cyber   ))hug((

Best wishes my friend.                                                                                                                   Phyl.

mrsg46 profile image
mrsg46

After finally coming to terms with the fact that my third ablation ten months ago hasn't been successful, after yet another more than 24 hour episode of fast AF/atrial tachycardia, I read your post and have huge sympathy for what you're feeling.  This condition is enough to make anyone feel down so don't worry that you might be thought to be moaning, this site is just the place to vent your feelings and we all understand. Having AF is rubbish and impacts so much of one's life and also that of family and friends as well. 

I hope that the next cardioversion works for you and your life starts to get back on track once again.

Sending you hugs and wishing you well.

Kate

Lainie2875 profile image
Lainie2875

I really feel for you, my second Ablation only lasted a couple of months and now get an episode of 3 to 4 days every month 2 episodes so far in April.

Not as bad as having it all the time I know but I can empathise with the terrible feeling of fatigue and you're batteries have run out.

I am waiting to see my EP but was warned against Amiodarone by a Nurse in A&E due to being a younger patient as it can have horrible long term side effects so check it out.

I hope they find a solution for you soon.

People who don't have the condition must find it hard to understand but the people on here will always listen 

Best wishes

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