Hi everyone, my journey with dodgy rhythm problems started when I was 17 and started experiencing prolonged episodes of svt usually coinciding with menstruation and ovulation. I was told by various doctors that it was anxiety/ panic attacks as every test they did came back normal. i felt really uncomfortable with this explanation but sufficiently ashamed at my lack of emotional strength that i just accepted what they said and kept it a secret feeling embarrassed that my inability to cope with life was causing such harrowing symptoms and totally powerless to stop this as I didn't feel particularly anxious or panic stricken unless my heart was beating at 240 bpm!!!!!
At the age if 35 I had my first episode of afib, I was scared enough to call an ambulance and at last they caught the problem on a tracing. I was converted after 18 hours with an IV of flecainide and sent home with a prescription for 50mg twice a day. I have been taking them ever since apart from last year when I thought I might be fixed and gradually stopped taking them only to end up in a&e last January with a 9 hour episode that converted in it's own. I have no contact with a cardiologist and I'm never checked over by my doctor and feel really lost. Since restarting the flecainide last year it's just not as effective at controlling all the dodgy breakthrough stuff, extra beats etc. the road to diagnosis was so long and so damaging that even though I know I need to take control and be more assertive with all this I just don't know where to start. Sorry for the enormous post I am looking for a bit if advice on what to do next. I live in Lincolnshire and was supposed to be under the care if Scunthorpe but they never contacted me after my hospital admission last year. Is that normal? Do I just keep taking these tablets forever? Is it normal for them not to work as well after having a break from them?
Thank you in advance to anyone that gas made if to the end of thus rather long ramble!