Well can’t thank you guys enough for all your kindness and advice but I am here again and will no doubt drive you crazy before long – I am at a loss what to do and who to take notice of, doctor, nurse, cardiologist, friends….. I know I need to see an EP but waiting list is months on NHS in UK so will have to save up and go private – so what shall I do for now – I will briefly outline my journey so far.
42yrs old, female, had hole in heart surgery at 8-discharged no problems. Had gastric bypass, lost 13st now healthy (ish) weight.
Diagnosed with Parox AF two weeks at A&E, heart rate 178bpm for hours – just about to shock me and went back to normal, sent home.
Scared to death, doc gave me 1.25mg Bisopropal, nothing else said I was 0 stroke risk said I should be fine and sent home – ended up on A&E again with HR 160bpm for hours and went back on its own. Cardiologist through NHS would be 8 weeks wait so got a loan for a private consultation and echocardiogram (thatnearly gave me a heart attack £450.00 arghh!)
Echo showed small enlargement where I had heart op as a child but structurally okay- Thank God. He said he was certain the heart op had caused the AF. Said I will have to learn to live with it and probably continue to persistent AF and when it happens again I have to ride it out – Don’t bother with A&E – I still can’t get over that!!
This was last week; my heart rate is now 40bpm resting and not much more moving. I am so tired and depressed and scared. I still had a bad AF episode on the tablets (Yes and you all helped me through it!!)
What I can’t seem to find out is what is the future for me – is there medication that will make me feel ‘alive’ again – is there lots of options? I am not 100% if I can have an ablation due to heart op. I have this awful vision of me dropping dead, having a stroke or eventually been bed ridden with heart failure? Does this happen? Everyone keeps saying you can live with it, it won’t kill you but what is the quality of life like? My heart rate id 40bpm and steady now but I feel rubbish, my chest feels jittery – is this AF – I think I should also buy an AliveCor when I can afford it – are they worth it?
Finally ( I PROMISE) I am gonna ring the doc tomorrow what should I ask?
Sorry I did promise this would be short and brief - !!!
Oh I am in Bradford, UK is there anyone close by? x