I have Atrial Fibrillation and Atrial Flutter, which to my knowledge started March 2014, when I was admitted to A & E by ambulance.
I have been on a very steep learning curve since then, and have had to deal with several unhelpful/disinterested GP's, clerical errors by surgery , lost referrals etc. In November last year, with a lot of effort on my part, and with the advice and support of many of you on here, I did get to see a registrar at the local hospital Cardiology dept. After several more appointments for tests etc., I received a letter from him recommending anticoagulant and medication for high BP- before I could act on this I received another letter-typed the very next day (and with no reference to the previous one) telling me my BP is ok and no anti coagulant medication needed!
Anyway, long story short, I have now seen an EP who visits Ipswich Hospital from Papworth, and he has put me on his list for ablation.
His waiting list is approx. 3 to 4 months and I have to be on an anticoagulant for 3 months prior to the ablation.
I live a somewhat 'gypsy' lifestyle, staying 2 or 3 different nights a week at my daughter's livery yard. I go off at short notice to deliver horses and work at other yards, and I house and pet sit at various places. I always eat breakfast, but may not then eat until late evening, or I eat on the road or on the run, which may or may not be 'healthy' food. I have researched the anticoagulants and I feel that all this plus frequent appointments for testing INR on Warfarin mean that one of the NOAC's would probably suit me better, especially as it is hopefully for such a short time leading up to the ablation.
My EP is happy for me to be on one of the NOAC's, his preferred one is Rivaroxaban, and he said he will suggest it in his letter to my GP. As I left the appointment he said 'Good luck with getting them to prescribe it though!'
So... it seems I need to be ready for a battle! I have read the NICE guidelines -tho I don't retain the information very well - but in a nutshell could any of you wise and experienced folk tell me how I go about presenting my case if, as I suspect, I am met with a GP who only wants to prescribe Warfarin? What are the most important points that I need to make?
Thank you all in advance for your help.