It all feels hopeless. AF is back and feels worse than before the ablation. I am also worried that something may have been damaged, either vagal nerve or oesophagus as I feel very sick all the time and have discomfort when I swallow and some pain dependent on how i move.
I called the ward (as they say call us if you have any concerns), they said go see your GP. So after much debate with the receptionist I have managed to secure an appointment with the Nurse Practioner at 3.35 today, no doctors available apparently.
I also called the cardiologist's secretary as she cancelled my appointment for 12th Jan as I was having my ablation on 27th Jan, she promised to send another appointment, stating that the cardiologist would want to see me within 3 months of the ablation. Nothing came. So having called today I was told no appointment had been sent, one will now be sent but it will likely be for an appointment in July! I see the EP again 29th May!
I'm exhausted, I'm constantly out of breath, I'm in AF more than I am out of it (and yes I know that AF is typically felt whilst in the blanking period) I feel so sick all the time that I can't sleep and really dont want to eat. I don't want to end up in A&E, I really hate hospitals and want to do all i can to stay out of the place, I just want some help through this. But it seems each way I turn I can't get that help.
If this is what it is like for a patient already in the system, it must be hell on earth for someone waiting to be seen for the first time. My frustration is that I am in the system but as soon as one procedure is done, you end up back at the start again. They say I want to see you again in 3 months to see how you are getting on with med changes or review you since the op but then you cant see them for 6 months. I know NHS is struggling, I know I am not the only patient. I am tired, emotional and a little scared and it all feels abit hopeless and pointless right now.