I just thought that now I have been on immune suppressant treatment for 2 months now I would give those who know my ups and downs an update. 6 weeks into the treatment I started to notice a definite improvement in my body strength and energy levels, it was very gradual. Then about 2 weeks ago my eyesight started to improve. Double vision went to just blurry but I could manage a few hours a day without patching. Then I got a sniffle which completely floored me again, couldn't move out of bed for a week, back came all the symptoms and my hopes of driving again were dashed.
I slowly recovered and today was the first day I have been able to focus for any length of time and do more than a few seconds at screen work. It's late now and my eyes are tired and the double vision is starting to return BUT it is the first day I have managed ALL day without a patch! So hope is high again.
What I have learned is that I can't take anything for granted anymore, any stress, I flare, if I don't pace myself very carefully, I flare, if I catch the slightest sniffle I flare, if I don't take my meds exactly every 3 hours I fall down, literally some days! But today was a good day! Yeah!!
Oh and forgot, if I don't get 8 hours sleep I flare so goodnight, and sleep well!