Just an update on my journey,

I now have my Cardiologist and ENT referral thanks to the Heamotoligist in September and my Neurologist is testing me for mitochondrial Disease . I am making headway on my journey for diagnosis, I wish you all the same xx

Ps thank you all for your support

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I'm glad to hear you're getting somewhere Poppyseed! It sounds as if they're making a real effort to set things right which is great.

Lis

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Good news poppy.

[CDreamer]

Well done for finding a neurologist who will test for Mitochondrial failure! I thought I might have that until I was diagnosed with Myasthenia. And I still wonder if mitochondrial failure is the underlying reason for a lot of undiagnosed conditions and diagnosed disease.

You may already know this site but if not you may find it very useful drmyhill.co.uk

Good luck Poppy, I think you may be on the right track now.

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Thanks for site details, I may have to go to muscle biopsy as Nuero thinks I may be to old for it to show up in cells on the genetic test. It's all interesting stuff .

[Rellim296]

Glad that you are making progress, poppyseed, and hope that you will get some answers.

[meadfoot]

Great that progress is being made.

Kind regards

Dee

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Thank you all xx