Hi everyone, I said I would post re my eyesight, well it's got a lot worse and finding it really difficult to cope so went to my optician on Friday who gave me an immediate referral to the regional eye clinic who got me an appointment today (only saw the optician on Friday so test was obviously not good). This clinic only see people with double vison. after about an hour of testing they more or less confirmed that it is probably Myasthenia gravis. This mean I cannot drive, any movement makes it worse so I have to have one eye covered if I walk and even then I am swaying from side to side. The clinic found that although I thought it was just in one eye, my left, both are affected and the right eye is actually far more unstable than the left.
Evidently anti arrhythmic drugs and beta blockers are known to worsen the condition. So feel between the devil and the deep blue sea. At present I have no other muscles affected but the rate it is going who knows?
Still not heard from the neurologist but the girl I saw today, who was a star, said she will write to neurology and chase them as the sooner I get treated the better. In some ways it is good to know what this is, on the other side this is a very unpredictable disease (nothing new there then!) which could be far more life limiting than AF. SHIT!
The other thing is that having visited the Mg forum, they are not the supportive, friendly bunch you guys are, in fact they seem to be rather the opposite as no one has replied or even acknowledged my post sent 3 days a ago. Please can I stay with you guys?