Just diagnosed: I experienced a spinal... - Atrial Fibrillati...

Atrial Fibrillation Support

32,307 members38,578 posts

Just diagnosed

Rufus_4 profile image
9 Replies

I experienced a spinal stroke a few months ago. It was totally out of the blue. I don't drink or smoke, am slim and physically active. I've now been diagnosed with PAF, which I'd never heard of before. So I would like to say a big thank you to you all as reading the posts on this forum has been a life saver! It's really helped me understand my illness, and realise that it's not the end. There is life out there after AF, despite the warfarin! So a great big thank you to you all

Written by
Rufus_4 profile image
Rufus_4
To view profiles and participate in discussions please or .
Read more about...
9 Replies
dedeottie profile image
dedeottie

Welcome! You can't go wrong on here.Take care.x

Hi Rufus, I've only just found this forum after donkey's years and it is literally life-changing so I'll join in your thanks if I may.

Beancounter profile image
BeancounterVolunteer

Hi Rufus and welcome to the forum

If you've been diagnosed with AF then this is the right place, everyone here is in exactly the same boat, and understands what you are going through, except that, and I didn't know this until I googled it, a spinal stroke is really rare I have discovered and very serious so there might not be anyone else here who understands that part.

Neverethless I am guessing that the stroke is behind you and now you are learning to live with AF, because in the end that's what we all do. To say that each of us has a different story is a bit of an understatement, we all share parts of the same condition but AF really does manifest itself in a myriad of different ways in everyone on the forum but with some common threads.

Here you will find someone who has experienced either the same, or very close to what you have had or are having, here are people who have had TIAs, some have had full strokes, and now at least one who has had a spinal stroke.

But you are completely right when you say there is life after AF, and I'm going to amend that slightly and say there is life WITH AF, because for most of us that is what this forum is about learning to live with it, and despite it.

Welcome again, I look forward to hearing more about what you have gone through, and perhaps if we can offer any support to the journey you are now on.

Good luck, be well and welcome again

Ian

Welcome sometimes just to post something on here helps to unload it and share it x

cavendish10 profile image
cavendish10

yes this forum is the right place for you. I found it after over 60 years of suffering paroxysmal fast af. I felt very alone and isolated as no one else I knew had this problem and didn't understand how I felt. I hope you continue to find help and strength from this community cavendish10

Mamamarilyn profile image
Mamamarilyn

This is the place! Welcome!

You've come to a great place - I've just been so grateful for all the help and support on here. You learn something new every day and everyone is so kind and helpful... I would like to add my thanks too :)

Terjo profile image
Terjo

Welcome Rufus, this forum is the best, so many helpful kind people who are always there. When you need to cry they're here and helpful with knowledgeable suggestions. Hope you're feeling better. Teresa

Rufus_4 profile image
Rufus_4

Thank you everyone for your kind comments, and thoughts. I'm pleased to say that I'm making good progress, and I've been very lucky! I still have some numbness down my right side, a weak leg, and a foot with a mind of its own but with physio and sheer determination I'm getting stronger by the day. The PAF diagnosis was a shock as I was unaware of any symptoms, certainly nothing as strong as has been described by other members. It sounds as if some of you have had some difficult experiences. I'm still waiting for a cardiology appointment. Can anyone tell me what's likely to happen there?

Not what you're looking for?

You may also like...

Just diagnosed with afib

Hello there! Newbie here, glad to have found this site. I have been having heart rhythm issues for...

Just diagnosed AFib

Hi, I am reaching out to you because I was just diagnosed with A Fib as well as an irregular heart...
kitttycat profile image

Just been diagnosed with AF

Hi All, I have found everything on this site so helpful in the past week since I have been...
Tweeds profile image

Hiya everyone, just saw GP with my Kardia...

Hello, I went to GP today. I took along my Kardia... Mmmmmmmm, I know, swanky!.... It's been my new...
Boombiddy profile image

Just need some hope

Hey all, It's been 8 months since my last afib attack. Well, it's the last that I know of. My...
T_costa profile image

Moderation team

See all
Emily-Admin profile image
Emily-AdminAdministrator
Kelley-Admin profile image
Kelley-AdminAdministrator
jess-admin profile image
jess-adminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.