For those who have had radiation on tumors seen on PSMA scan, how long did the radiation put your cancer in remission?
effectiveness of zapping what is seen... - Advanced Prostate...
effectiveness of zapping what is seen on PSMA scan
For me 3 years so far.
I just finished radiation in December 2022 and my PSMA scan has been clear. I am still on Lupron and Erleada for another six months. It would be nice to know if you can attribute your good fortune of having not had a relapse in three years to anything in particular. Exercise, diet, luck, supplements or some other treatment?????
All of those things but if I had to pick one thing that MAY have helped it was that very early on, within a few months of dx, I did the Rick Simpson cannabis protocol. A medical dispensary in Michigan made a super concentrated reduction of the cannabis plant which had the consistency of black tar, put it into syringes, one gram per syringe, which I would use to squirt the content sublingually. One gram per day for somewhere between 60 and 120 days. My body and blood stream were saturated with it. It was the only time in my life where my liver functions were borderline bad. I like to theorize that, like chemo is supposed to do, this killed a lot of CTCs ( circulating tumor cells). In fact each time my CTCs were measured they were either ZERO or very low.
Ten years ago a friend had a large excess of sour diesel flowers not pretty enough to sell. I made a ton of resin for it not knowing why because 3 grams would last me a year. I haphazardly did the RSo treatment and got to the point that maybe .5 grams of active canabanoids would not mess me up too much to function. I had had the resin tested by a reliable lab and the active canabinoids was about 70% almost entirely activated THC and a little CBD and very little CBG I also have a high CBD resin made from flowers from another friend. I am considering doing a full treatment and would like to know the details of the resin you used. High THC, CBD both etc. What was the daily dose of active THC and CBD? Other canabinoids worth mentioning? Both of my resins are fully decarboxylatred (sp) so there is almost no THC or CBD acid. Are these important?
Thanks for your reply. Very interesting. How did you have the CTC’s measured?
about 6 months for me. SBRT on right scapula and left hip in 2019. Found more in lung, then went on chemo after that. Now the lesions I have are all related to MM. PCA in remission since February 2022. Had bilateral orchiectomy last March. Not regrets. Was on Erleada for awhile Now waiting for another ADT.
You're still on ADT? What benefit was the orchiectomy?
Orchiectomy replaces Lupron. No testes to produce testosterone. Of course the Adrenal glands also produce testosterone, though at a much smaller rate. The second gen ADT is used for that.
Yes. So the benefit was no more Lupron shots? Anything else?
Nowhere near the side effects I had with Lupron, but yes. I rarely get hot flashes. Nowhere near the emotional roller coaster that is Lupron. Weight is a bit easier to contain, still have lost muscle mass and since there is no cure coming anytime soon, there's no point in keeping the biscuits. If in the next decade, I'm still kicking and a magical cure comes along, I can always take testosterone injections. I see little (actually nothing) in the pipeline for cure, certainly nothing in the next ten years. Mostly what I see are trials for new drugs to keep the disease chronic and the wallets empty. Cynical I know.
2 years for me, then it was back & been on ADT ever since.
I’ve had 3 lots of SBRT over about 5 years, two on the spine and one on a fixed rib. I’m off ADT again now. There has been no sign of return where the met wa irradiated. Currently my PSA is 0.36.
Thanks. My radiation oncologist says he has never seen prostate cancer return to any area he has radiated.
I had SBRT to four mets in July 2020, and on 2 recent PSMA scans and an FDG scan they were all inactive. Unfortunately, 4 more popped up and only on the FDG scan.
Thanks. What was the purpose of doing FDG scan if you did PSMA scans?
My PSA was doubling every 3 months, so we knew the cancer was back and spreading. My MO suggested we run the FDG after the 2 clear PSMA's to see where it was. I also biopsiesd a met to check for Treatment Emergent Neuroendocrine cancer. Fortunately, the biopsy showed adenocarcinoma only.
after eighteen year remission the disease reoccurred. Lesions seen on axumin scan in 2018 remitted with tomotherapy. New.lesions in different locations appeared two years later n psma scan. First time was only lymph nodes. Second time different nodes. Remitted again on psa but then recurred with bone lymph and lung. Began bicalutemide. With moderate psa response and went to low dose enzalutemide to hope for better side effect experience. That was successful in producing better scan results. Then added lupron and most recent scan showed NED after nine months. Prior to starting bicalutemide i had not had any hormone deprivation/blockade.
oops. After that first axumin scan all followups (3) have been psma pet/ct
The 3 rounds of high dose radiation killed off the one met the PSMA PET found in my pelvic area. But PSA slowly rose and 3 more Mets were found in different places. Did chemo and have been NED since (2 years 10 months).
What was your original Gleason and PSA