Asking for a friend.: A friend of mine... - Advanced Prostate...

Advanced Prostate Cancer

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Asking for a friend.

Echotango51 profile image
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A friend of mine has a good friend that has been DX with a Gleason score 3+3 =6. Don’t know his PSA number. I told my friend that guys in my PC support group with a Gleason score of 6 have been on active surveillance for years. Anyone riding that boat with some info I can pass along. The guy is scared to death.

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Echotango51 profile image
Echotango51
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Tall_Allen profile image
Tall_Allen

Tell him to make no decisions for at least 3 months. If his PSA<10, active surveillance is the only thing he should consider.

RMontana profile image
RMontana

Pass along my journey, which has some pitfalls that I wish I could have avoided. Here’s the link.

healthunlocked.com/active-s...

Within this laundry list here’s some key points that he should focus on.

…he should consider a pMRI guided biopsy and have a specimen sent for genomics testing. If he has a low Gleason and a low genomic score cell type, then he is a great candidate for long-term active surveillance. He should then have the scan as often as he needs to to track the tumor. The overriding goal is to keep this tumor from escaping the prostate.

Also, he needs to have a PSMA PET scan. He needs to do that right away. this along with the MRI will tell him if he has metastasis.

So…If he could treat it as late as possible and avoid its escape, then he’s in good shape. But he cannot allow active surveillance to give this tumor a chance to spread outside of his prostate gland. That’s his overriding goal.

Tell him as well to avoid ADT TREATMENT OF ANY KIND. He doesn’t need it until he has to have it. It’s got way too many side effects to be of use to him right now.

He’s in great shape. Tell him not to worry at this point. But he has to watch out for his own health. Do not subcontractors to a doctor. I don’t care how good he is. Good luck to him. Rick.

j-o-h-n profile image
j-o-h-n in reply toRMontana

Tell your friend's friend we have a special room for guys who worry worry worry. It's called the "worry your ass off room", He's Lucky the last time I checked there's room for one more worry wort.

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 08/04/2023 2:44 PM DST

jfoesq profile image
jfoesq

My brother was dx with Gleason 6 and is on watchful waiting. I believe his MO said the medical field is rethinking whether Geason 6 even qualifies as "cancer".

dac500 profile image
dac500 in reply tojfoesq

Don't tell me that. I was diagnosed with Gleason 3 + 3. Now, I am fighting castrate resistant cancer.

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