once again, someone is trying to infl... - Advanced Prostate...

Advanced Prostate Cancer

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once again, someone is trying to inflame and hurt our community

Darryl profile image
DarrylPartner
51 Replies

once again, someone is trying to inflame and disrupt our community, this time with a clearly political username. I have asked that member to change their username before posting again. Let’s all participate, honor and celebrate our community as helpful, not as a playground for hurt and havoc.

51 Replies
Tall_Allen profile image
Tall_Allen

Any progress in getting HealthUnlocked to create an "ignore" button? In other media it really helps maintain civility. A lot of trolls are just trying to get a response.

Darryl profile image
DarrylPartner in reply to Tall_Allen

the team is aware but there is some resistance (I’m working on that)

Tall_Allen profile image
Tall_Allen in reply to Darryl

Do you think it would spur them on if many patients asked for it?

Darryl profile image
DarrylPartner in reply to Tall_Allen

let me think about it. One crisis at a time 🤗

Explorer08 profile image
Explorer08 in reply to Darryl

Tall_Allen is correct. His advice should be closely listened to on this topic.

MJCA profile image
MJCA in reply to Tall_Allen

As always, Allen, a voice of reason. Thank you!!

WSOPeddie profile image
WSOPeddie in reply to Tall_Allen

There are times when I wish there was a 'dislike' button.

6357axbz profile image
6357axbz

Thank-you Darryl

No_stone_unturned profile image
No_stone_unturned

thank you Darryl!!! You do a great job and those who know appreciate you.

EdBacon profile image
EdBacon in reply to No_stone_unturned

I agree.

EdBacon profile image
EdBacon

The best thing we can do is resist the temptation to respond. DO NOT take the "bait".

People who make posts like those are bullies, trying to provoke a negative response and then get into an argument.

If nobody responds, they are deprived of what they are seeking.

MJCA profile image
MJCA

Thanks Darryl. Obviously I took the bait. Being both Gay and Jewish I detest ALL forms of hate whether it is directed at one’s race, creed, sexuality and/or religious beliefs.

smurtaw profile image
smurtaw in reply to MJCA

I'm straight and white and I join you 100% in detesting all forms of hate. You might have "taken the bait" but we are all human.

Grandpa4 profile image
Grandpa4 in reply to MJCA

You should not feel any shame on this issue. It is not your fault for standing up for what is right.

redstratocaster profile image
redstratocaster in reply to MJCA

Peace Brother

Kaliber profile image
Kaliber

you da bomb Darryl, it’s a rough job …trying to keep this great group civil and apolitical. You and all the moderators deserve a lot of credit. That’s it big guy …just wanted to say so.

❤️❤️❤️

maley2711 profile image
maley2711

Thanks Darryl ..... I resisted the temptation and replied to him without mentioning his inflammatory username...was so tempted I admit . But, who cares, water off a duck's back??

I'm not astute enuf to ever be sure who is intentionally "trolling", and who is just clueless?

spencoid2 profile image
spencoid2

what about the moderators posting a reply explaining the nature of the posting and suggesting that no one respond. I missed the OP but would love to see it. I am also Jewish and gay.

MJCA profile image
MJCA in reply to spencoid2

Yay!! Another member of both “tribes”! Thank you for your candor!

GoBucks profile image
GoBucks in reply to MJCA

LOL. Abi gezundt.

Boywonder56 profile image
Boywonder56 in reply to GoBucks

Bless you....

Pianodude profile image
Pianodude

Thanks for addressing that. This just is not the place.

jimreilly profile image
jimreilly

thanks Darryl

CSHobie profile image
CSHobie

I know the username you refer to, I also thought this is not really the place for that name.

TommyCarz22 profile image
TommyCarz22

Are the posts offensive, or just the Username ? I think it matters

Gl448 profile image
Gl448 in reply to TommyCarz22

I saw a couple of people had issues with the name, and it lead to some name calling and heated emotions.

CAMPSOUPS profile image
CAMPSOUPS in reply to TommyCarz22

In this case the poster was very creative in coming up with a username that was very inflammatory. Not good.

spolyu profile image
spolyu

Anything inflammable in political nature should not be tolerated

fmenninger profile image
fmenninger

being a moderator is a hard job as it’s like being a ref in hockey with 30,000 rabid fans watching every move and call. Now, I’m not saying us warriors are rabid but there are always haters that try to muck up the works. Let’s keep politics and negative comments aside and focus on helping ans supporting each other to win the war against pca. Stay strong!

MJCA profile image
MJCA in reply to fmenninger

Thank you. Very well said.

wagscure259 profile image
wagscure259

I saw the moniker and ignored it and I could see why it would trigger some. However, I found the attempt extremely distasteful and I was truly offended because this forum is one of a close brotherhood where those putting forth information have spent considerable time to do so with a generous heart. Those seeking information for themselves or their loved ones are often struggling with the progression of disease, a very serious situation. So I for one concur with Allen that I would be in favor of an ignore tool when it can be effected.

gsun profile image
gsun in reply to wagscure259

Yes, we are a close brotherhood and the user name is divisive and hateful. Not what this forum is all about.

NotAlwaysSunshine profile image
NotAlwaysSunshine

I read it and ignored the username and did not respond. I have MUCH more to worry about than a user name.

MJCA profile image
MJCA in reply to NotAlwaysSunshine

We ALL have a lot going on. That’s jut who I AM, regardless of the fact I have Stage IV PC. When I see something wrong, I speak up. If the World had not buried its head in the sand and spoken up in 1939, maybe 6 million of my people would not have perished in World War II. Just saying.

HusbandsPCA profile image
HusbandsPCA in reply to NotAlwaysSunshine

I am here for my husband and try to read everything I can. It is not always sunshine, that is certain. And it becomes much more dark and clouded when inconsiderate people try to push their viewpoints or maybe worse, their egos, on people like us. We get more than enough push from our doctors. I am grateful for the moderators of this site for watching out for us and taking action whenever needed.

Kittenlover50 profile image
Kittenlover50

Thank you. I saw that and had a hard time keeping my fingers quiet.

Bronzee profile image
Bronzee

Yup! Such an obvious name! ! We are here to uplift each other and help us get over or just manage this disease! Let us not add animosity by disrupting the community!

Papa1 profile image
Papa1

here, here.

No_stone_unturned profile image
No_stone_unturned

I did not see the post but I will say this: One of the most remarkable things about this group is we all come from different ages, gender, cultures, countries, lifestyles, race, ideology and beliefs, yet we are all here together to support each other without bias to fight a common enemy. Perhaps we all fall back to our tribes when we leave the forum, but while we are here, we are one tribe, with a singular goal; to stay alive. There's nothing more human than that. Much of the world could learn from our example.

Miomarito profile image
Miomarito in reply to No_stone_unturned

no stone, no truer words… thank you!

Papillon2 profile image
Papillon2

Thanks, Darryl, for your very positive energy.

Mjex profile image
Mjex

thank you for your sensitivity

lopwillie profile image
lopwillie

Darryl, Why are all you guys talking about this jurk? I deleted him right away. He does not deserve all your attention. Getting attention might have been his goal and he sure has gotten lots. We have a delete key. I suggest you use it, instead of talking about this jerk. Cheers William of the lopwillie tribe

dmt1121 profile image
dmt1121

The last thing we need is to bring political discord into a site meant for patients with serious health issues. My preference would be to clearly outline this policy to all who want to join this site and then review their username before allowing them access. This is not Facebook or Twitter or some other social media platform.

Let's keep it that way by firming up this site's terms and conditions of use to ensure there is a clear required edicate of respect and support for each other.

Darryl profile image
DarrylPartner in reply to dmt1121

Good idea. Done. healthunlocked.com/advanced...

drmoose profile image
drmoose

Thanks Darryl and Tall Allen and all those who care about this.

My "two cents" - I am always looking for "good signal to noise". I want information. I am willing to listen to possibly "sketchy" information (for example, all of the many - including me - who are doing the (in)famous N=1 experiments, that is, we are trying things out and looking at our personal experience, something that can have both good but also bad outcomes) and judge it for myself. This can take a lot of focus and energy, but I am glad that we have that here.

And I also need a filter for the best "proven" information e.g. all of the fast-moving developments in this field involving clinical trials, recent approvals, and tons of peer-reviewed publications. I can absorb a lot of information. But nowhere near "all of it". This is where Tall Allen and others provide great - and gratis - service.

But I don't need rants, raves, "hate speech" or even measured political discourse. We can find those elsewhere.

Keep it simple. What can you offer? Personal experiences? Interesting new information you may have learned? Can you answer someone's question? What are your questions and concerns that this diverse group might be able to help with?

And I would love to have an "IGNORE" button!!!

Cheers!

alephnull profile image
alephnull

I admit I bit at the posts, this is programmer lingo, but if no Ignore, then route such posts and responses to dev/nul

Ian996 profile image
Ian996

Lets agree to keep politics and religion out of these conversations

Daddyishealing profile image
Daddyishealing

Sending peace and love to a community that is part of my heart. 🕊️🕊️🕊️

dhccpa profile image
dhccpa

Amen for all sides

Yearofthecow profile image
Yearofthecow

Thanks Darryl for your dedication. This is a place where we try to help each other through very serious health issues, and I appreciate everything you are doing, along with Tall Allen.

John

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