EELEADA - (apalutamide)

[TONNEY]

HI all.

I have been on the above for 5 weeks . has anyone had any side effects such as an uncomfortable

tingling sensation from groin area which makes you want to move your leg / legs.

its not painfull but is keeping me awake . also sudden intakes of breath

[Boywonder56]

been on it 4plus years....in the titan trial....i would assume taking it with lupron.....?

[Johnko]

sounds like restless legs syndrome. Always has it but Erleada made it worse at the beginning of treatment. Now the same as before.

[TONNEY in reply to Johnko]

Thanks for your reply. I get a weird sensation groin / private area and if i try not to move my leg / legs i get what i can only say feels like a mini electricic shock of a quivering feeling.

Has anyone else had this , I this RLS?

[Chadsdad]

Agree with Johnko about the restless leg syndrome. It took a few months after starting Erleada before it started for me. After almost 3 years it has gotten some better, not gone but better. Now it seems to be triggered after I get up at night to pee. Once I get back in bed my legs feel tingly for a short period of time (couple of minutes) then will go away. Happens every night.

[Hidden]

I have been on Erleada since June 1, 2022. Have noticed tingling feeling on my legs, more so at the beginning and less now a few months later. Also experiencing leg cramps usually during the night. Exercise seems to set that off.

[Boywonder56]

i got the doc to rx baclofen 10mg.....its a muscle relaxer and seens to help.....i had the r legs bfore this crap....i too get cramps...either pickel juice or tonic water (has quinine)...offer quick relief..m