is anyone on eligard and no radiation? I was told my cancer is out of the pinpoint radiation area, Lymph nodes and on pelvis bone. I had my prostate removed and first pas 7 second check 16 Was told maybe radiation later but to big area now.
Just wanted to hear someone’s experience with this.Thanks Bill
You can radiate your cancer with Pluvicto / Lu177. I would try to get into this study:recruiting-trials.novartis....
Thanks I will look into this
When cancer has traveled to bones, there is no evidence that radiation of bones will do any good. At any rate, you should be talking to a medical oncologist now, and not a urologist. It may be a good time to start docetaxel or Zytiga or both.
Thanks I am taking to an oncologist. First radiation oncologist. Now regular oncologist.
I am also taking bicalutamise also.
My husband has been on ADT for 5 years- had 6 rounds docetaxel with ADT to start and zytiga plus prednisone ever since with continued ADT. Diagnosed with 677PSA Gleason 9 mets to bones. He had spot radiation (done in one visit just to one spot) this year to his T4 on his spine for a spot that lit on his annual scans but has had no other radiation.
I've been on Eligard six month injections for five years now in addition to Zytiga. I was diagnosed with PC Gleason 8 and 9s across the board, multiple bone Mets. My PSA has been 0.1 since start of treatment. I haven't had surgery or prostate removal. Mets are all stable since start also. I also had Provenge infusions in my first year. Never give up Never surrender. Leo
A lot of people including myself have Eligard (Lupron) without radiation.
I'm on Lupron only for almost four years now (with Xgeva for bones), no other previous treatment, still have prostate. A dying breed.
At one time I was told I could have as many as ten bone Mets, but last few Axumin PETs have only mentioned three.
My husband is on Ella guard and required no radiation. He had at least one bone met that is not causing him any pain and he has suspected Mets in his pelvic bones. He was just diagnosed in February and we go back to the RO in September but basically there was nothing to do. From my understanding he would only get radiation at this point if his bone Mets increased and were causing him pain.
Apologies for typos, voice to text! My husband is advanced stage 4 and surgery nor radiation was an option at all. At this point it's more systemic.
Yes. I had a RP in 2016 and I am on Eligard. It had spread beyond the prostate before surgery, though margins were negative. Since then, I had a scan that showed one lesion on my left femur (very painful) and a small tumor near my bladder in 2018. I did have radiation for the lesion which resolved it. I have been on Eligard and Abiraterone since that time and have maintained my PSA as undetectable.
Until imaging technology allows undetectable PSA patients to have good imaging of potential progression, we wait for our treatment meds to fail or feel pain before imaging is done. I would add that I placed myself on an Eligard "holiday" to be able to get the Axumin scan back in 2018 (to allow my PSA to rise high enough for the imaging to be effective) and that sis how the tumors were found. Protocol does not recommend this but I am glad I did what I did or my PCa would have spread much faster and I would not have known and would not have been placed on Abiraterone as soon as I was.
Every story is different. I recommend doing your research and pay attention to your body and your "inner voice", in consultation with your oncologist, to decide what you need to be doing.
Good luck.
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