RO Recommendation : Can anyone... - Advanced Prostate...

Advanced Prostate Cancer

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RO Recommendation

Alturia profile image
19 Replies

Can anyone recommend an RO between Providence RI and Boston MA for adjuvant/salvage EBRT after a RALP? I currently have a RO but it's not a great fit and I am not scheduled for radiation nutil November because of my travel schedule so there is plenty of time to explore other options.

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Alturia profile image
Alturia
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19 Replies
KocoPr profile image
KocoPr

I like Dr Chism at MGH. You can’t go wrong with Dana Fabar, MGH

Alturia profile image
Alturia in reply to KocoPr

Thanx

Tall_Allen profile image
Tall_Allen

Irving Kaplan at Beth Israel Deaconess

Alturia profile image
Alturia in reply to Tall_Allen

Thanx

MrkP profile image
MrkP

Paul Nguyen at Dana Farber is great.

Alturia profile image
Alturia in reply to MrkP

Thanx

TonyS58 profile image
TonyS58

Kaplan is also at Beth Israel in Needham

pirate21 profile image
pirate21

Anthony D’Amico at Dana Farber treated me last winter. Has extensively published on Adjuvant v Salvage. Wonderful experience. Very accessible. Also met Paul Nguyen. He too is outstanding.

dadzone43 profile image
dadzone43

I got good care and advice from North Main RO in Providence. 40 years in this medical community.

Currumpaw profile image
Currumpaw

Clare Mary C. Tempany, MD - Brigham and Women's …

physiciandirectory.brighama......

She may be one of the very best. People I confer with in Atlanta who interview doctors for YouTube videos are impressed with her. I was told about her during a conversation with one of them.

Not too far away--

Proton Therapy for Cancer Treatment | Massachusetts …

massgeneral.org/.../proton-...

Proton Therapy. As one of the first hospitals in the world to establish its own proton therapy system, Mass General has an unmatched history in treating both benign and malignant tumors with proton therapy. Learn more about Proton …

I have messaged with a doctor that oversees a well-known proton center. Years ago, when he had bladder cancer, he chose Mass General as one of the doctors at Mass General was more experienced treating bladder cancer than those working under him.

You will hear conflicting opinions here but, in the end, it is your body and your decision.

My best to you, be thoughtful. There are some things that once done, cannot be undone.

If you have any trouble with the links copy both of the lines and put them in your search bar.

Currumpaw

Alturia profile image
Alturia in reply to Currumpaw

Thanks very much

Currumpaw profile image
Currumpaw

You are most welcome.

Interesting about Beth Israel--I spoke with one of the people in their imaging department several years--no, in the autumn of 2015. They had an older GE MRI and used an endorectal probe to better identify prostate cancers. Pathology results on prostate tissues gave them a --I believe--a mid 90% success rate in identifying prostate cancers. their success rate was on the net--on their site--it wasn't just word of mouth.

It could only be better now I would think.

Currumpaw

j-o-h-n profile image
j-o-h-n in reply to Currumpaw

I had two "endorectal MRIs" at MSKcc............... First one doable with some discomfort.

Second one "PURE TORTURE, TORTURE, TORTURE..... felt like a hot poker up my rectum for 45 minutes.....(from start to finish),,,,,,

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 07/19/2022 6:04 PM DST

Currumpaw profile image
Currumpaw in reply to j-o-h-n

It is my understanding that men who choose hyperthermia as a treatment have a metal rod inserted in their penis, up through the urethra past the prostate. They then lay down while magnets heat the rod and surrounding tissue to about 102 to 104 degrees Fahrenheit. This is done for maybe five days a week for about a month. I read about the Klinik Marinus and their treatment protocol back then. Klinik Marinus is now closed. I messaged with a man that had this a as treatment and I chose not to.

Hyperthermia seems to be popular in Europe.

Here is a link describing the procedure j-o-h-n and it is just about the same as the one I looked over.

Transurethral Prostate Hyperthermia - St. George Hospital

st-george-hospital.com/st-g......

Currumpaw

j-o-h-n profile image
j-o-h-n in reply to Currumpaw

To Currumpaw,

Thank you for giving me goosebumps......Did you notice that picture of the small Quonset hut style building with the sign above "KLINIC ST. GEORG"? Apparently a patient who still had enough strength was able to remove the letter E for excruciating.

I guess the MRI I endured is considered a walk in the park.....Now my only worries are that I might have nightmares.....Thanks again....

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 07/19/2022 10:23 PM DST

Currumpaw profile image
Currumpaw in reply to j-o-h-n

Oh Lawd! I am sitting here chuckling!

Currumpaw

TomMaloney profile image
TomMaloney

You can't go wrong with MassGeneralBrigham/Dana-Farber.

There are so many hundreds of abbreviations in oncology that you can't assume we know that RALP is Robotic-Assisted Laparoscopic Prostatectomy.

August13 profile image
August13

I second the Anthony D’Amico recommendation. He was my RO. Spent two cold months up there mid-January through mid-March this year. If you choose to go that route, your sessions could be at Dana Farber or Brigham and Women’s, which adjoin one another — I did sessions at both places.

Eddy-Merckx profile image
Eddy-Merckx

I used Dr. Chipidza from Dana-Farber, Milford office. She is great!

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