I get it: Hello Seattle Dan....Do not... - Advanced Prostate...

Advanced Prostate Cancer

21,056 members26,262 posts

I get it

myamic profile image
2 Replies

Hello Seattle Dan....Do not want to sway you one way or another..Just wanted to share with you because I had to make a similar decision...The areas medistinal and superclavicular are areas where I they have found metastasis on me. Was on 1st line ADH when 6 spots showed up on a PSMA. Previously had one spot which was radiated but did not result in log term durability. Was ready to radiate the six spots but was delayed because of covid. During that time added xtandi and when it came time to do it it was hard to pin point all the areas. I think one of the 6 was not in a area most ideal to radiate. Right now am still on Xtandi. Have not had any scans since but psa is down. Always planning ahead to next step but trying to treat as chronic disease with new treatments out there. I have stepped out of SOC and would always consider clinical trials . Want to do what I can while I feel I can tolerate treatments. With radiation, my thought even though unproven was that I might get some obscopal affect. Good luck in your decision Dan.. You have to believe that what ever way you decide that it is the right decision and do not look back . Your heart knows. Much grace.

Written by
myamic profile image
myamic
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Tall_Allen profile image
Tall_Allen

Be very careful about radiation in the mediastinum - even small doses to organs up there can be dangerous.

SeattleDan profile image
SeattleDan

Thank you!

You may also like...

What scan should I get?

Had radiation on L5, psa went back down to 0.17. Last 8 months psa on slow rise, now at 0.85. One...

On Lupron alone - Should I get scans during intermittent breaks?

Dr. wants to do scans. What is the point of the scan if I'm just going to start Lupron right after

Why can't I get Prostate SBRT when I'm metastatic?

repopulate everything. PET scan after Xofigo says one major hot spot, the Prostate and Prostate...

Never get tired of annoucing I am STILL undetectable

for the best for everyone, there is always hope, and as Jimmy V always said, keep hope alive! Keep...

Getting xtandi at no cost.

URO called late Friday an told me my xtandi would have no cost, you may ask how. We live only on...