Just started ADT and Radiation. Decipher was 1

[MOoutdoors]

Hello guys. 56 years old. Gleason 9 on pathology. Lymph nodes clear. Decipher score was 1. Three weeks in on ADT. PSA was 0.66 and 0.69 at 7th and 8th week after surgery. Started radiation Dec 1. 37 doses on surgery bed and 25 on abdominal lymph nodes. Complete diet change. All veggies and legumes and only salmon as meat. No sugars. Exercise and active but ADT is definitely knocking me back. Staying positive. Lots of support. Mind is being affected here lately. Would appreciate input from anyone in similar situation. Feels quite bad to me sometimes when I look at my numbers.

[TylexGP]

We are similar I’m 56 as well with G9, indraductal and Brca2 positive. Seven months post ADT with Zytiga and HDR brachytherapy at 2.5 months and EBRT at 3.5 months my PSA is 0.13. My favorite quote is I chose to live with my cancer vs dying from it. I try to worry about what I have control but it is not always easy when ADT is kicking my butt. All in all I feel pretty good and I am grateful. Do your best to live your best life.

[MOoutdoors in reply to TylexGP]

Thank you! I definitely appreciate things I didn't before.

[Hidden]

It sounds like your living healthy. Great job! We see our fragility clearly.

I was 53 4+4 non op imrt double adt . Undetectable over six years now. Keep truckin! 🥳🕺

[DMohr011]

You definitely are not alone with this. Get thru the radiation and keep positive. Don't look at those numbers, and don't listen to google. I did at first too. We are all different with how treatment responds, how our cancers grow and get killed and how we look to diet for the answer.

Life changing for sure. I'm still dizzy and cant believe the diagnosis and have many "stinken thinken" days. But keep to the positives in life.

Every day of my treatments I wore my favorite bands T shirt and played them every day, quite loud. Rush rocks for me, and i own at least 24 different T shirts of them.

Find your comfort. Comedy also helps a bunch. Laugh when you can!

Dave

[MOoutdoors]

Awesome! I'm trying to as much hiking and bushcraft as I physically can. Even some YouTube gear reviews soon. My wife is super supportive as well. My surgery was not nerve sparing. We can't do implant until after radiation has healed so that has added another thing cancer has stolen but a positive attitude is more powerful than anything. God is with me in it all.

[JPnSD]

Feel good about your Decipher score of 1...it means low risk/less aggressive cancer. Mine was 78....so high risk/very aggressive cancer. Wishing you...and all of us on the advanced PC train....a safe journey.

[Hidden in reply to JPnSD]

i was thinking the Decipher scores went from 0.00 to 1.0. in which case 1 would be as high as it gets. I had one done on a biopsy from 21 months ago and it was .39. What people mean from decimal scores is always confusing. If his Decipher is really the highest risk, then he needs to plan a course of treatment that is appropriate for that, what Dr. Kwon euphemistically refers to as the "deluxe treatment." If it really isn't high risk, then something else. He should have been given a document that explains that from Decipher. Sometimes you have to contact them directly.

[JPnSD in reply to Hidden]

Correct....mine was .78 rather than 78, and in highest 1/3 of scores (which is how they frame it in their document).

[MOoutdoors in reply to Hidden]

My doc said "kitchen sink" and now instead of later. Just started EBRT. Almost a month in on degarelix and lupron on 16th.

[Hidden in reply to MOoutdoors]

So I presume you are having radiation to the pelvic area as a whole, as well as SV and prostate bed. Certainly they will want 18 months ADT and hopefully that will be it. If you look at those DECIPHER numbers on a graph there is not a huge difference between low risk and high risk, a difference, yes, slightly different, but not totally divergent graphs or anything.. if that makes you feel any better.

[MOoutdoors in reply to Hidden]

37 doses to surgery bed where prostate was and 25 doses to abdominal lymph nodes. Surgery removed prostate, SV, and nerves because of perineural invasion.

[Shooter1]

Your #'s look about right for me except you put the decimal wrong. I was 53 at surgery and 63 at 6 weeks.. My cancer was thriving with my prostate gone.... Here and working on year 5. G-9/10 , +margins, spiderweb of cancer in nerves and veins around prostate. Everything to close to other organs to allow radiation... Lots of treatments available and more in the pipeline for those that last long enough. Life Is Good, so get on with it....

[j-o-h-n]

Greetings MOoutdoors,

"God is with me in it all'.... Your words..... Good attitude there..... You will beat those monsters indoors or outdoors.... but you have to have faith, hope and belly laughs. Each one of us oldies have gone through the same shit you are going through and we made it. So don't fret just live your life as normal as it was......Enjoy your hiking and your bushcraft but always wear a chute.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 12/03/2021 8:00 PM EST

[MOoutdoors in reply to j-o-h-n]

Thank you, there are many things to be thankful for and gratitude is the most powerful and healthy emotion. I will kick this PC in the ass. No other option. This is temporary.

[SallyJones]

My husband was recently diagnosed with High risk Stage 3b, with Cancer in the seminal vessicles. Gleason score of 8 with most recent PSA 10.5, prostate cancer. Surgery not an option. Had first Lupron shot, will get one very 3 months for 18 months and is finishing 2 months of Casodex. He will begin radiation in about 2 weeks hopefully. So far he feels tired and sometimes gets warm "all of a sudden". Don't have more to share at this time. But, do just take this ONE DAY at a time and stay in the present. Try not to focus totally on the what if's of the future. Whether you believe it or not, God is watching over you, you will be in my prayers and You WILL get thru this.