Need Info on latest PSMA scans/locations - Advanced Prostate...

Advanced Prostate Cancer

22,289 members27,991 posts

Need Info on latest PSMA scans/locations

compiler profile image
6 Replies

I was dx. with PC in Dec. 2009. Failed surgery and SRT. Have done well with HT (numerous lengthy HT vacations). Anyway, fast forwarding:

A few years ago I had this scan as my PSA was rising. They found 2 spots (lower iliac nodes). They did SBRT, 10 sessions (those nodes and very nearby). It did wonders, knocking my PSA from 7.8 to below 0.21. That was in Jan, 2019. My PSA has been bouncing around between 0.21 and 0.75. It is now 0.47. My next PSA will be late January, so basically 3 years after my SBRT. If it rises some more, depending on the amount, I might opt for a Ga68 PSMA scan or maybe the newer PSMA scan. We now get to my question.

I no longer see the PSMA scan on the Umich site. I vaguely recall reading that it is only given at UCLA and in SF. Is that true (it was in clinical trials when I had it at Umich and now I think the trials are over and the FDA approved it). So, where do I get one of those 2 PSMA tests. I know the newer one is preferred because the tracer has a longer half-life and hence it can be done at more places. Is the newer one better in terms of results?

Bottom line: where can I get the PSMA test in Michigan. Due to a spinal injury, it is hard for me to travel (not to mention Covid concerns and flying).

Mel

Written by
compiler profile image
compiler
To view profiles and participate in discussions please or .
Read more about...
6 Replies
tango65 profile image
tango65

Many places are doing the “new” PSMA PET/CT , know as Pylarify or 18F DCFPyl PET/CT. IT is similar to the Ga 68 PSMA and it may have a better detection rate at low PSA like in your situation. Call the different Medical centers in your area to find out if they offer this scan. Medicare pays for PSMA scans now.

Tall_Allen profile image
Tall_Allen

Call pylarify 1-800-964-0446 to find a site near you.

As you know, I think it was a mistake to treat only the most visible pelvic lymph nodes:

prostatecancer.news/2020/12...

I hope that a good RO will be able to work around your previous two radiation sites to provide full pelvic coverage (assuming, of course, that it is still confined to the pelvic LN area).

compiler profile image
compiler in reply toTall_Allen

Tall:

I said:

>>>>>>>>>>>>>>>>>>>>>>>

They did SBRT, 10 sessions (those nodes and very nearby). It did wonders, knocking my PSA from 7.8 to below 0.21

>>>>>>>>>>>>>>>>>>>>>>>>>>>

So I know he did the suspect nodes and more. It finally slowed the PSA velocity.

Thanks for the info.

I have a call in to Umich to see what they have.

Mel

I

Tall_Allen profile image
Tall_Allen in reply tocompiler

Treating the known LNs and a small area around it, is NOT the same as treating the entire pelvic LN field. In fact, the pelvic lymph node treatment area has been expanded to include the common iliac LNs. One has to treat the entire pelvic L N drainage area, otherwise cancer will escape to other areas..

redjournal.org/article/S036...

You are also making the mistake of using PSA as your indicator that the treatment worked. This is a common misunderstanding among patients and doctors. Most of the serum PSA comes from the larger loci of cancer - the sites large enough to have generated their own leaky blood supply. This is called "treating PSA" instead of treating the cancer. Please read this:

prostatecancer.news/2020/07...

Concerned-wife profile image
Concerned-wife

Here are the current and currently planned locations for Pylarify PSMA scans

pylarify.com/ordering-and-r...

compiler profile image
compiler

Based on the web-site there is no site in Michigan, nor is one planned. I will still call. According to Umich site, they do PSMA scan and use:

>>>>>>>>>>>>>>>>>>>>>>>>

[18F]fluorodeoxyglucose (FDG), a radioactive sugar molecule that can be used to identify tumors and diagnose cancer:

>>>>>>>>>>>>>>>>>>>>>>>>>>

Does anyone know anything about this tracer?

Is this outdated, or is PSMA still key?

Mel

Not what you're looking for?

You may also like...

PSMA SCAN LOCATIONS?

Does anyone know of any PSMA PET scan trials that are still going on during the Corona lock downs?...
joeguy profile image

PSMA scans-any update?

Saw this link this morning. Any update on this research or trials? Kinda describes my situation:...
Geno2853 profile image

LU177? Or? So many questions!

History: dx in '09. Failed surgery, then flunked SRT. Since then did VERY well with Lupron/Casodex...
compiler profile image

PSMA PET scans

I am currently undergoing SBRT to three mets in my upper right lung as part of the comet 3...
Ian996 profile image

Crossroads - ADT or wait for psma pet/LU 177? Meeting with oncologist to discuss tomorrow

My husband has oligometastatic prostate cancer (lymph node only, pelvic and Retroperitoneal) ,...
Vany4 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.