Remembering a Good Day: I'm about to... - Advanced Prostate...

Advanced Prostate Cancer

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Remembering a Good Day

tom67inMA profile image
20 Replies

I'm about to run off to my next folfiri infusion, but first a blog post as I try to remember the good day I had on Friday. In other news, I'll be getting a scan on the 21st, which hopefully will show continued improvement. My best reading of my blood tests is that things should be improving, though it's unlikely I'll get the miraculous clear scan I was hoping for.

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tom67inMA
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20 Replies

Fingers crossed Tom (uncrossed now because I'm typing).

I, too, did the scaring my wife with my imminent death. After she took it seriously I was intent on proving to her that I was going to live 30 more years.

Kaliber profile image
Kaliber

So much of the psyc ups and downs you have really resonates with my wife and myself. I’ll bet it does with a lot of us here that same thing in their lives. You say it so well on your blog. Ok .... so here goes : You pencil neck , exercise flinging ... nub buzzler ... your peanut butter corpuscle crunched blood work and fogged up body scan says you are probably not gonna last til tomorrow night ...right !!?? .................... ????? ............. did that work ? ...... ( over the top or too much ?? ) as per your blog.. you should be raging with upbeat optimism and energy that none of that is true and you’re going nowhere yayahahahaya.

Just say’in. ( proves I read your blog, anyway ) 😂😂😂😂😂❤️❤️❤️

tom67inMA profile image
tom67inMA in reply to Kaliber

Actually yes, that does help. Around the time you were typing that I did notice a distinct upbeat in my outlook, and now that I read it, I can only say "You don't know nothing, I'm going to live forever or die trying!" :-)

Kaliber profile image
Kaliber in reply to tom67inMA

Omg yayahahahaya yayahahahaya .... right on warrior , screw all that naysayer crap anyway. ❤️❤️❤️

Kaliber profile image
Kaliber in reply to Kaliber

Anyone reading the above will have people jump over to read your blog to see wth this is all about .... should drive up readership considerably.....just out of curiosity. Yayahahahaya ya. You da warrior tom ...

farmanerd profile image
farmanerd

Just throwing out some possible places to BHAG:

Two laps around Walden Pond (Concord) or one around Fresh Pond (Cambridge)

Beaches at low tide . . . outer Cape, Cranes Beach in Ipswich, or Plum Island in Newburyport

Mount Monadnock

The Charles River along The Esplanade or Soldiers Field Road

Arnold Arboretum in Jamaica Plain

A section or sections of the Minuteman Bikeway (Davis Square in Somerville all the way out to Bedford)

Middlesex Fells in Medford

Along the Squamscott River (brackish) in Exeter, NH

tom67inMA profile image
tom67inMA in reply to farmanerd

Definitely Walden Pond. Also along the Charles river sounds good, 30 or so years ago I went for a run or two there when I was on loan to Draper Labs in Cambridge. Will have to research the other places as I'm less familiar with them.

As for Monadnock, I've been to the top a number of times over the years, starting at a number of different parking areas on each side of the mountain. It's definitely on my bucket list to get there again. But with Covid you actually have to reserve a hike time in advance, so it would work much better for me later in the year if they get rid of that silliness and I can just go when I'm having a good day. It's only a 40 minute drive from my house, so I can literally decide at lunch time and be on the summit by 3pm.

Thanks for the suggestions!

Dett profile image
Dett

Thanks for the update, Tom. Always look forward to your posts.

Newyork6264 profile image
Newyork6264

Good luck with the scan.

Yank66 profile image
Yank66

Oh my! You nailed the emotional roller coaster we have been on. When I acknowledge how awful things are, DH decides to count his blessings and everything is all right (for a while). And a day of activity is followed by a day or two of paying the price for it-which sometimes starts the cycle again. It's good to know this might be normal.

tom67inMA profile image
tom67inMA in reply to Yank66

I'm sharing the same "good to know this might be normal" feeling with the responses I'm getting to this post.

MateoBeach profile image
MateoBeach

Great ideas from farmanerd. Yes miracles happen and may be even everywhere when we pay attention and get out of our heads. Good luck with your scan also.

SeosamhM profile image
SeosamhM

Good luck, Tom.

Keep plugging along Tom.

j-o-h-n profile image
j-o-h-n

If you're in the mood again.... my Honda needs a washing and a wax job..... Or add it to your "bucket and soap" list..... Good days beat bad days any day...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 04/13/2021 11:13 PM DST

tom67inMA profile image
tom67inMA in reply to j-o-h-n

I do have to be careful washing cars. There's a very high risk I'll kick the bucket before I'm able to rinse the suds off :-)

Kaliber profile image
Kaliber in reply to tom67inMA

Lol 😂😂😂 don’t let j-o-h-n fool you, his wife makes him use a mobile detailing service, she doesn’t allow him near a bucket.

j-o-h-n profile image
j-o-h-n in reply to tom67inMA

Good idea: Rinse first.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 04/14/2021 5:56 PM DST

GoBucks profile image
GoBucks

You can walk and drive your car now in the same day-great! But can you also chew gum? You described something I am sure a lot of ADT guys have. I work out in the a.m. and felt great. Go to work for 4-5 hours and have a great day. Thinking I'll do that 2 days in a row. Except I sleep 10p.m to 9 a.m and can't think through my brain fog. Thankfully there is always tomorrow. (so far)

tom67inMA profile image
tom67inMA in reply to GoBucks

I don't chew gum as it gives me gas, which may or may not be a cover story for my inability to walk while doing so :-) Thanks for sharing your experience, it's helpful to know that paying consequences for having a good day isn't unique to me.

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