Tumor Analyzed

[westerville]

Anyone have a prostate cancer tumor removed from your lung test positive for a gene that allows for another option in treating prostate cancer .

[Tall_Allen]

What gene was that?

[westerville in reply to Tall_Allen]

That's what I am going to find out . When the nurse practitioner said we can send your tumor out to be tested I said okay . But with my history didn't give it much of a chance of finding anything . Cost was $3500 but I got I got financial help so cost was half that . While you are talking to the doctor that I have no more treatment options except Chemotherapy I should have paid more attention to what this might mean for a option of a new treatment . They just called at 4 pm and first left a message on the patient portal MyChart . So I called them and was given the news by a nurse or maybe the nurse practitioner . I have a bad cold starting on Easter . When I called back and talked with the nurse practitioner I mentioned between coughing and wheezing that I am sick . She said no you are not sick . I said excuse me ? You aren't sick . So the coughing and sneezing and chills and headache are not real ? Oh I thought you meant your cancer .This person is kind of strange or different . Since I had just changed to this doctor I am just now getting used to her . I keep telling them the side effects I experience from Zytiga are real but no one listens to me . This nurse practitioner thought the reason I have breathing problems and rapid heart rate was I have a blood clot . They sent me to have a Doppler test of my lower extremities and then a ct scam to test the rest of me . Good news n blood clots . But we still don't understand why the high rate and the breathing problems and the insomnia and the blurred vision problems . So had a echocardiogram and a Holzer heart monitor . No blockage , no afib or irregular heart beat . Well maybe with whatever this new treatment is If I can get off this hormonal treatment I sure would love it . Just think That maybe I could be a male again with testosterone !

[DenDoc]

Your data is pretty incomplete so it makes it hard to comment and sort out. Is your new doctor a medical oncologist specializing in prostate cancer? Does not sound like the nurse practitioner is particularly qualified/skilled to be responding to you about symptoms like you describe. The genomics of your tumor removed from your lung should be guiding your therapy very specifically. It should give direction to your next therapy.

It is highly unlikely that you will ever get off of hormone blockers since you have advanced metastatic prostate cancer and your original adenocarcinoma will continue to be fueled by testosterone, no matter how they treat your mets.

[westerville in reply to DenDoc]

No he is a Chemotherapy doctor at the James Cancer Center at Ohio State University . There is no medical oncologist specializing in prostate cancer in Ohio of the midwest . I have an appointment set up with Dr. Oliver Sartor at Tulane . I had to reschedule it from next week . I'm having cataract surgery on the 20th so going after that . have a zoom call with Dr. Monk the chemo doctor on Monday to discuss the positive test and treatment . As long as stays away from chemo I'm good . its hard to type 15 years of treatment experiences in this little box , sorry .

[j-o-h-n]

Again.... besides my Pca I am fighting a melanoma that mat to my lungs. So I am on Keytruda that is working....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 04/07/2021 7:52 PM DST