Slow brain

[Psychmed]

I've been on eligard for 2.5 years or so. I asked my doc if eligard can make a person clumsy. He just said it slows the whole brain. Not only do we think in a fog we also move in one

Mike

[Shooter1]

No T and I am clumsy. Walk weird, bump into things and fall more often when feet encounter obstacles that I used to be able to catch myself when tripped. Seems to be new normal for me. 3 1/2 years of no T. And what was that word I was looking for???

[Boywonder56 in reply to Shooter1]

I second that commotion

[Kaliber in reply to Shooter1]

Same here

[Hidden in reply to Shooter1]

Me too. I became very accident prone early on in treatments.

[MiRob in reply to Shooter1]

Same here

[Hidden]

I've noticed I'm more clumsy. I drop more things, bump into things more often, and misjudge distances when moving around. It can be just a tiny amount between missing a glass and knocking it over.

It's very frustrating, but not really a major issue in the big scheme of things. Some of it could also be age, hard to know for sure.

[Kaliber in reply to Hidden]

Same here ... big time

[Psychmed in reply to Hidden]

It's the just barely missing that causes a lot of problems. The glass bounces off the edge of the shelf the foot grazes box on the floor, I miss Judge some thing which falls on the next thing and some thing else falls on the floor. My wife is amazed

[Hidden in reply to Psychmed]

Life on the edge !

[Hidden in reply to Psychmed]

I’m dropping stuff all of the time .. I was not that way before.. must take care with power tools . My wife’s has seen the decline .

[larry_dammit]

I thought it was the chemo brain. 😢. I know what I want to say but I have to draw a picture in my mind before I can spit it out. 😖. 51 months and counting 🙏🙏🙏

[leo2634]

On Eligard three years now plus Zytiga . I've noticed many changes over the years balance being a big issue. The side effects are many but not all of us seem to share in all of them. In reading into our type of therapy it seems it is a gradual progression and, deterioration of our mind and bodies that will ultimately become evident in all of us. The way I look at it is it keeping me above ground and that make each day count. Never give up Never surrender. Leo

[joeguy]

My experience with ADT is that it wrecks a man physically, mentally, and emotionally.......

[Hidden in reply to joeguy]

It destroys the man

[joeguy in reply to Hidden]

yes it does, I had to take a break from it after 3 years. At this point I may not go back on it untill I have exhausted everything else.

[Hidden in reply to joeguy]

Over five years on it for me..

[Hidden in reply to joeguy]

I understand

[Hidden in reply to joeguy]

Better slow brain than no brain.. 😷🙏

[Cramlingtonboy]

I'm a relative newcomer to Eligard and will get my fourth three-month shot in December. Once it kicked in, I struggled to retrieve information and words; was a wreck emotionally and yes, balance issues surfaced. Don't know if this is psychological but the effects seem to diminish towards the end of the three month periods.

I keep my brain sharp by watching quiz shows, discussing politics with my wife and by being active in the garden.

[Hidden in reply to Cramlingtonboy]

Garden very good !😎

[MateoBeach in reply to Cramlingtonboy]

Ask about trying the addition of an estradiol patch to your regimen. Cleared the brain fog quite nicely for me. And better energy. And protects the bones.

[CSHobie in reply to MateoBeach]

Do you encounter any adverse effects from the Estradiol patch?

[MateoBeach in reply to CSHobie]

Tits got a little tender and started to swell. So I added Tamoxifen 10mg daily and that went away. Everything else positive.

[mcp1941]

I am in the same boat as Leo2634. Eligard and Zytiga almost three years. I am in rehab to help regain balance. The hardest exercise is what they call tandem walking (heel toe). I do it by holding on to my instructor with one hand. Still I don't do a good job. I do a little better stepping over the cones but I still need to hold on to the instructor for balance.

[wagscure259]

After over 7 1/2 years on ADT I noticed slowed dynamic equilibrium reactions and anomia. A brain MRI revealed mild periventricular leukoencephalopathy. My MO at MSK couldn’t say it was age related (67at the time) or previous head injury or ADT.

[V10fanatic]

Bolt your doors.

Lock your windows.

There's something in the FOG!

From the 1980 John Carpenter movie

I've been dealing with it as well. Driving used to be a blast, not now

[j-o-h-n]

I've joined this group......(I'm the one with the flower pot on my head and in the white dress)

youtube.com/watch?v=Ywa6glF...(Not working as expected?)

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 11/04/2020 6:44 PM EST

[Hidden]

You’ve got skills .👏👏

[MateoBeach]

Estradiol patch added to ADT helps to clear the brain fog. Better energy. Eliminates hot flushes and protects bone density. As far as balance and coordination issues I have no idea. But may be worth a personal trial.

[Hidden]

I’m ready for it ..